Heart Children roll call

Have just had our anatomy scan and we are having a healthy little girl - so excited. But yes, I will be even more so once the baby is born - and its really true!!

Big Hugs to nikki and Jacob xx

Edited by Raspberryjam

Yeah it is, I couldnt have gone through all that again. Im really looking forward to having my own newborn!

Hi ladies, update from NikkiB -

"Catheter went well. Jacob good. Prob delayed op for another 6-12 months as J classed as stable, but will find out more on wedsnesday"

Nikki asked me to update her OB friends, so thought I would come and update you lovely ladies too!

 

Thanks for the update Simsam!

Yes it was nice to bring Morgan home and not have to go back to hospital for a month! We couldn't make any different decision as we didn't know there was a problem til he was 3.5wks, but would not change him for the world now of course!!! (Although would love to have not gone thru all the stress of course!)

Congrats on another little girl RJ So pleased the scan went well

I was lucky, I had the opposite to you guys. My first DS is completely healthy, so I had that great experience of taking my brand new baby home.

Our trip to Akld was very quick. Catheter went well on Monday (even if it did take 4 1/2 hours ). They were able to coil off one of Jacob's MAPCAs that had high pressures. His other MAPCAs have normal pressures so they've pushed his surgery out to within a year. We aren't too disappointed about this, as Jacob can only get bigger and stronger - which will be great for surgery. It was lovely seeing familiar faces on Ward 23b and back at the Ronald McDonald House.

Its good to be home though....far too hot up in Akld for us Wellies

The only difference I have noticed is that he can now saturate slightly higher, which is a good thing

Have you relaxed a little bit more about this pregnancy now and hopefully enjoying it a bit more?

Great to hear it went well Nikki!

Of course I would change the heart defect thing if I could (not that its an issue now, but to not go thru that couple of months would have been wonderful), but I wouldn't change Jake as hes such as awesome kid, and I'm so glad I didn't have the option of termination. although I would much rather have known when pregnant what I was in for, instead of the shock we had.

If we had found out that there was a problem with Morgan, I would have really struggled with what to do to be completely honest (horrible as that sounds). When she was born I was all ready to ship her off to starship for tests just to be sure, but the docs all assured me there was no need!

Nikki wrote: Of course I would change the heart defect thing if I could (not that its an issue now, but to not go thru that couple of months would have been wonderful), but I wouldn't change Jake as hes such as awesome kid, and I'm so glad I didn't have the option of termination. although I would much rather have known when pregnant what I was in for, instead of the shock we had. If we had found out that there was a problem with Morgan, I would have really struggled with what to do to be completely honest (horrible as that sounds). When she was born I was all ready to ship her off to starship for tests just to be sure, but the docs all assured me there was no need!

Sorry Nicki, I didnt mean to make it sound like you meant anything but that, of course you would change that bit. I actually think it must be very hard to think you have a healthy babe and then all hell breaks loose.
I agree with on the struggling bit with number 2, I cant imagine what I really would have done if we were faced with this issue again. We got this ones heart checked at the 12 week scan to check for 4 chambers, that would have been a huge deal to not see them. But I dont know it it would be a deal breaker without being in that situation. I think there are some situations I could cope with and others not. There arent many heart defects worse than truncus, but then you never no what that child will be like either.

I also think Nikkib, with 1 babe to care for already, having number 2 be unwell must be soo hard, for all the normal reasons and the juggling act too

Also, Rex and Jacob are already so close....I just love watching my boys playing and interacting together

We have never stopped Rex from seeing Jacob, no matter how sick Jacob has been. I think this has helped Rex understand that Jacob isn't healthy and has allowed Rex to have more empathy towards him.

How old is your step daughter? Kids can be so nasty at times. If Milla can get through OHS, she can ignore silly comments like that.

I'd like to say that life is settling back to 'normal' again, but I've had DH off work since we got back from Akld....he broke his hand the day after we got home As you can imagine, I'm not getting much help around the house from him Today is his first day back at work...yipppee!

Jacob has come even further developementally since the cath. He is almost crawling I think he'll be crawling today or tomorrow Not bad considering he is only 11 months corrected. We are now going to work on getting him off his ng tube and fully feeding. Its going to be a long hard road, as he isn't taking anything orally, but it will be so worth it.