Endometriosis advice....

Hi ajs, welcome to OB! Sounds like you have some pretty painful period's, poor you it really is no fun!

I was diagnosed with stage 3 endo in February this year. The only real way of diagnosing endo 100% is by having lap surgery. I had 2 laps done, one was in September last year where they thought everything was fine, and the other was in Feb this year where they found the endo was in quite obscure places. I had it all removed in the same op. It was a bit of a shock to me as I didn't have a lot of pain with my periods, definitely painful, but not always excruitiating and could normally just pop a couple of pills and be ok. Sometimes it would be worse but not often.

If you have been suffering with it for that long, I would say see a gyno. Going on the pill may help for now, but it's not a long term solution and suffering that much is not cool!

Good luck

Hi I just wanted to add I am seeing an acupuncturist who specialises in womans health and we have talked about how much acupuncture can benefit woman with endo. Maybe you could look into acupuncture treatments to help with the pain etc but also possibly see another doctor aswell. Especially if you are thinking of TTC soon. Acupuncture can also help regulate your cycles and prepare your body for pregnancy. Best wishes.

Go the gyno...

i had really bad period pains/cramping (3 weeks of the month) and i just thought it was normal but its not ;-)

And I only have 'mild' endo...

good luck!

ED: for pain - alternate between neurophen and paracetmol when its bad...hot water bottles...nothing really works for me though :-(

Edited by Sag76

sorry that address again - www.nzendo.co.nz

Hey, just wanted to mention that the Oxford clinic in chch are very good - my gyno is Dr Brown, she is lovely and very talented. I had stage 3 endo, and she removed a very large chocolate cyst sac from one of my ovaries, which evidently is very difficult.

Dr East is also reputedly excellent, but I used to work for him when he owned Muddy Water, so felt I'd prefer to see a gyno I didn't know in my working life.

Mike East was my gynae for endo as well, he's fantastic, great you have some answers

I see it's been a few months since you posted - but you must have been so glad to get it looked at and have the reason for your monthly pain confirmed ajs29 (not that it is good to find out you have endo).

I had a laproscopy mid last year for suspected endo too. I had been booked in for this years ago but the surgeon felt that I 'most likely' didn't have it, so I hadn't gone ahead with the lap back then. Even though I have always suffered with extremely bad period pain I guess I still managed to somehow 'soldier on' and not complain too much.

So I had the lap and they found the most severe stage endo everywhere! Luckily my tubes were still intact and the dye test showed they are not blocked (thank goodness). My surgeon worked on me for a very long time and was very thorough.

I am soooooo glad I went ahead and had the lap as I now have the most pain-free periods -it is like having a whole new body - so this is how other people without endo find AF. It really is just a small amount of minor discomfort now. I'm hoping it makes a difference with TTC too, but it has been 9 months since so....

Hi Hopeful,

It's been awhile since I looked at my Ohbaby and have just seen your post.
I do hope your lap went well, and you got the results that you wanted.
Hopefully now life will be less painful!

Best Wishes