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RaraMoo View Drop Down
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    Posted: 01 April 2014 at 8:35pm
Hi There,
I'm currently searching for mums that have had &/or lost babies due to ARPKD in NZ.
This is a very rare disease & from my research I believe that less than 5 babies die from his disease in NZ each year & my son is one of those babies. Since this is such a rare disease there is very limited information on it in NZ & I haven't been able to find anyone from NZ that has had to deal with this disease.
If anyone has dealt with this disease I would love to hear from them.
Thanks
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