IVF with PGD
Printed From: OHbaby!
Category: Support
Forum Name: Coping with infertility
Forum Description: Have you been trying to conceive unsuccessfully? Dealing with primary or secondary infertility? Get support, advice, and help coping here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=25299
Printed Date: 23 May 2024 at 5:17am
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Topic: IVF with PGD
Posted By: AmyRay
Subject: IVF with PGD
Date Posted: 18 March 2009 at 2:35pm
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Anybody out there done an IVF treatment with PGD?
I have just started this treatment and start the buresulin injections next friday and then puregon about a week later. Due to fly to Akld about the 17th of April where they will send my cells to Australia to get tested before implantation. I have a chromosome translocation so they will only be implanting the cells with the correct number of chromosomes. Already had 2 miscarriages at 11 weeks (one natural, one IUI). It would be great to talk to anybody that has been through this or currently going through it (getting a little nervous now  )
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Replies:
Posted By: mylilmosaic
Date Posted: 18 March 2009 at 4:55pm
Hi amyenglert, I don't have any useful stories to add but just wanted to say welcome to oh baby and good luck with your ivf cycle 
I also have had two miscarriages last year so totally understand how nervous you must feel. But I will have everything crossed for you and I know you will find oh baby a really informative and supportive community. Goodluck again  ------------- http://lilypie.com"> 
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Posted By: Gizmog
Date Posted: 18 March 2009 at 9:18pm
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Hi amyenglert, I too am currently (start Buserelin on Tuesday) undergoing IVF with PGD. My cells have to also be sent of to Australia to get tested. I have an hereditary disease which has a 50% chance of being passed on.
This will be my first time trying for a baby so I am a little nervous as well. Looks like we are going through this around about the same time as each other so would be good to hear from you and others about how you are going with this.
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Posted By: AmyRay
Date Posted: 19 March 2009 at 9:06am
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Hi Gizmog! Its great to know there is someone else out there doing this too.
I am with FA wgtn and have been with them for 2 years now. Who are you with? I did a privately paid for IUI last year so have been on the Puregon injections before but Buserelin is all new to me. The injections arent so bad but towards the end you will find that your stomach is quite bruised and sore. This is the part im not looking forward 2! But this treatment is our best chance of having a healthy baby and being able to carry full term without my body rejecting it. Have they started you on the pill? I dont really understand why we need to take this?! Keep in touch, it will be great to hear your progress
appy2 - Thank you for your warm welcome. I think this site is a wonderful and informative support group
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Posted By: ginger
Date Posted: 19 March 2009 at 12:14pm
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AmyRay - From memory the pill is to try and stop follicles forming because this can b*gger things up with the cycle. I did IVF, but without doing the pill first, and I failed to down regulate on Buserelin because I had follicles growing, or follicles that had formed that the Buserelin kept going so we had to trigger and start over, putting us a good two weeks behind on the cycle.
All the very best both of you doing PGD - I hope everything goes well! ------------- Cuinn Lachlan 23.1.09 - 22:00 Antonia Helene 4.8.11 - 09:41 |
Posted By: AmyRay
Date Posted: 19 March 2009 at 2:51pm
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Thanks ginger. I think i have googled just about everything i possibly can on PGD today!!!
I mite do some further reading today on the growth of follicles. I will be able to write a book soon 
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Posted By: ginger
Date Posted: 19 March 2009 at 6:09pm
Just remember - Dr Google is NOT your friend!  ------------- Cuinn Lachlan 23.1.09 - 22:00 Antonia Helene 4.8.11 - 09:41 |
Posted By: Gizmog
Date Posted: 19 March 2009 at 10:01pm
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I'm with Fertility Plus in Auckland. I'm just starting on the injections, no pill to start with so I hope things work out ok with that.
I'm picking up my needles and things tomorrow so thats kind of exciting. Did you inject yourself, or did you get your OH to do it? Did FA say anything about how many embies they need to test on? We have to have 6 which is kinda daunting as if we dont get 6 then they wont be able to get an accurate enough test so no transfer for me. But I'm trying to be positive and hope for the best. Thanks for the well wishes Ginger..its really nice of you. Its good to have this forum and talk to people who are going through the same thing.
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Posted By: AmyRay
Date Posted: 20 March 2009 at 12:56pm
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I injected myself last time. Im not a huge fan of needles but once you've done it a couple of times you become somewhat of an expert!!
No FA havent told me how many embies they will need. I have an appointment there on Wednesday with the nurses to collect the drugs so i might ask them then. All you can do is stay positive and try not to let it consume your life or it becomes too hard if things dont work out. I find it amazing that they have the technology to test the cells in the embies anyway!! Not so long ago they would have been nothing like this offered to new zealanders
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Posted By: AmyRay
Date Posted: 02 April 2009 at 10:45am
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Started the Buserelin injections on Friday and im not enjoying them at all!! Ive used Puregon before but never the Buserelin. I found that the Puregon was much easier to use and didnt hurt as much as the Buserelin does. My stomach feels quite hard, is it supposed to feel like this??
I dread these injections everyday 
Got my last pill to take tomorrow, YAY! Gizmog - how are you getting on? |
Posted By: Gizmog
Date Posted: 02 April 2009 at 3:29pm
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I started my Buserelin last Tuesday..getting used to it..it does hurt a bit, but I find it hurts less if I get my OH to do it for me.
My stomach feels a little hard in some places and also feels tender and bruised. I'm also feeling quite tired and moody but i think thats to be expected with the drugs. Sounds like you having your EC about a week before mine AmyRay. Hope the injections get better for you.
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Posted By: AmyRay
Date Posted: 07 April 2009 at 2:30pm
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Yesterday i had my blood test to check that i was down regulating and it came back all good! YAY, stage 1 complete! They have now halved the amount of buserelin to 20mg and i have started taking 225mg of puregon daily.
But, a strange thing happened today, i started bleeding?? Naturally, i freaked out a little and rung the clinic but they have told me that it is nothing and not to worry. Apparently it can happen when you stop the pill. I stopped on Friday. I would have thought the buserelin would have stopped this?? Has anyone else experienced bleeding while doing these injections? I have another blood test on sunday to check and see how the puregon is going. Fingers crossed for that!! How are you Gizmog?? |
Posted By: Gizmog
Date Posted: 07 April 2009 at 3:07pm
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Congrats AmyRay on getting through Stage 1. I also had my blood test yesterday but didn't down regulate which means I keep taking Buserelin for another week and then have another blood test to check again. Means everything has been pushed out a week so EC will be delayed a while too.
The clinic said I should have started bleeding by now which is why I haven't down regulated or something. I didn't start on the pill so things may be different but I was on the understanding that when you down regulate you have a bleed - but not sure on that. Good luck for your next blood test on Sunday - hope things go well for you. Has anyone else experienced not down regulating when you should and is it anything to really worry about? |
Posted By: ScaredyCat
Date Posted: 07 April 2009 at 8:10pm
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Hey AmyRay, congrats on making it through stage 1 and yes bleeding is perfectly normal, I was like you and thought this can't be right but apparently it is!
Hi Gizmog, I'm not sure re not down regulating, sorry can't be much help but wish you all the best for your cycle anyway. Wishing you both the best of luck for the upcoming tests etc. ------------- TTC # 1 - 7.5 years 2 x IVF - 4 x Trf 3 x BFP's 3 x M/c  Feb 09June 10Sept 11
2 Blasties on Ice
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Posted By: AmyRay
Date Posted: 08 April 2009 at 9:20am
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Thanks for that. It's reassuring to know that the bleeding is normal.
That must be a little annoying that you havent started to down regulate yet Gizmog!! Another week of those horrible injections! I have read tthough that this is quite normal and that some people just take longer to down regulate than others. Good luck with your next blood test 
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Posted By: ginger
Date Posted: 08 April 2009 at 2:42pm
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Hi Gizmog! I failed to down regulate on my cycle and as you can see by my signature ... we made it through ok! I actually bled, but I had follicles still growing, so it wasn't even that I was slow to do it - I just failed to completely! They gave me a trigger injection and it was another 2 weeks of Buserelin after that. Don't worry - it's not an indication of how your end result may be! ------------- Cuinn Lachlan 23.1.09 - 22:00 Antonia Helene 4.8.11 - 09:41 |
Posted By: Gizmog
Date Posted: 08 April 2009 at 7:45pm
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Thanks Ginger..you have put my mind at ease, I was a bit worried that it would have stuffed everything up but I feel a lot better now. My OH said not to worry but its hard not to worry sometimes.
Congrats on the good news and the birth of your little one.
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Posted By: AmyRay
Date Posted: 14 April 2009 at 2:53pm
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Hi all, I had my first scan this morning. There were about 10 follicles all ranging from 10-11mm in size. They need to be between 15 and 21mm ideally. So im waiting for my instructions back but im guessing after talking to the doctor that they will continue me on the puregon and i will have to go for another scan in a couple of days. It was quite nerving having the scan today, i hope the follicles get bigger Apparently they should grow about 2mm per day??
They also found that i have quite a lot of endometriosis on my left ovary so that's a bit of a concern. Not sure how or if that affects my ivf cycle? Gizmog, hows things with the down regulating? Have you had another blood test? |
Posted By: Gizmog
Date Posted: 15 April 2009 at 11:15am
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Hi AmyRay - hope your next scan goes well and your little follicles grow and grow as much as they should
I had another blood test yesterday and still haven't down regulated - so need to do another blood test on Sunday - apparently I'm really close just not quite there yet - I've had a bleed but just haven't down regulated - sounds a bit like what happened with Ginger. So fingers crossed the next blood test will be a better result |
Posted By: AmyRay
Date Posted: 16 April 2009 at 10:58am
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Well, quick update - I had my second scan this morning and my little follicles are growing at the pace of snails - at least they are growing is suppose!! Today they ranged from 11-16mm. So waiting for instructions again but im guessing i will be continuing with the puregon and will have another scan in a couple of days...........
------------- 26yrs old TTC 5yrs Endometriosis & Chromosomal Disorder  Natural Jun 07 - BFP but MC at 11.5 wks
IUI Jun 08 - BFP but MC at 11.5 wks
First IVF/PGD Cycle Mar 09 - BFP but MC at 6 wks
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Posted By: AmyRay
Date Posted: 20 April 2009 at 11:59am
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Hello!
Well i havent had another scan since thursday but have had five blood tests!! My arms are very sore
Apparently my hormone levels are too high so they have taken me off the puregon because i am at risk of getting OHSS. Im still on the buserelin which apparently stops the follicles from releasing. Hopefully they will tell me today that my hormone levels are dropping. I cant go to auckland and have egg collection until this happens. This is turning out to be a very long cycle!!! Hows things with the down regulating Gizmog? ------------- 26yrs old TTC 5yrs Endometriosis & Chromosomal Disorder Natural Jun 07 - BFP but MC at 11.5 wks
IUI Jun 08 - BFP but MC at 11.5 wks
First IVF/PGD Cycle Mar 09 - BFP but MC at 6 wks
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Posted By: Gizmog
Date Posted: 20 April 2009 at 4:54pm
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Hey there. Well I still haven't down regulated. Went for a scan and apparently I had a follicle and egg growing or something so they gave me a trigger injection and I have to continue on Buserelin for another 2 weeks then have another blood test to see if I have down regulated properly.
Hope the blood test today gives you some better results AmyRay - this is turning into a very long cycle for me too - looks like egg collection will be about a month later then first expected. All the best
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Posted By: AmyRay
Date Posted: 21 April 2009 at 10:33am
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Oh Gizmog thats a bit annoying for you!!! So basically it sounds like you have to start your cycle again! Best of luck with the buserelin, i hope you're not too sore
My hormone levels have dropped since Sunday so this is a good sign. I had another blood test this morning so if they have dropped some more i will be off to Auckland tomorrow. Fingers crossed!!! ------------- 26yrs old TTC 5yrs Endometriosis & Chromosomal Disorder Natural Jun 07 - BFP but MC at 11.5 wks
IUI Jun 08 - BFP but MC at 11.5 wks
First IVF/PGD Cycle Mar 09 - BFP but MC at 6 wks
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Posted By: AmyRay
Date Posted: 05 May 2009 at 9:15am
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Hi Gizmog! How are things with you? Have you had a blood test yet to see if you are down regulating?
Well quick update - i had 11 eggs fertilised up in auckland and they were all growing well. Cells from each were sent to Melbourne for chromosome testing and out of the 11 only 3 came back with the right number of chromosomes. So i had embryo transfer last Tuesday which went well. They only implanted the best embryo and left the other 2 to continue growing in the lab so they could be frozen. Sadly they didnt develop enough to freeze so we only have the one embryo that has been implanted. We find out this thursday if the embryo has stuck or not so fingers crossed for us! Its a very nervous wait. Im back at work today - using work as a bit of a distraction. People keep asking me if i feel pregnant? ISometimes i think i do and then other times i feel like i have no symptoms so i can't be?? Its a very hard wait ------------- 26yrs old TTC 5yrs Endometriosis & Chromosomal Disorder Natural Jun 07 - BFP but MC at 11.5 wks
IUI Jun 08 - BFP but MC at 11.5 wks
First IVF/PGD Cycle Mar 09 - BFP but MC at 6 wks
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Posted By: Gizmog
Date Posted: 05 May 2009 at 12:11pm
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Hey AmRay
Had another bloodtest yesterday and still haven't down regulated..grrrrr. The nurse said my estogen(I think) levels have dropped heaps so I'm very close this time. Have to have another bloodtest on Thursday but by the looks of it I should have down regulated by then, so will start the Puregon on Sunday/Monday. Its kind of annoying having this delay but it can't be helped. I kinda think that its good things are going wrong this end but then I think maybe I wont react to the next lot of drugs as well. But only time will tell. Glad egg collection went well and 11 eggs fertilised is great going. Sorry to hear that none of the other embryos made it but fingers crossed this little embie of yours has stuck and that you will be getting a BFP on Thursday. At least you can be rest assured that its the best little embie that it can be. Let us know how you get on, I will be keeping my fingers and everything else crossed for you.
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Posted By: lil_l
Date Posted: 10 July 2011 at 7:13pm
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just bumping this forward to see if anybody is doing this atm as we're about to start the process in a couple of weeks....
Just having second thoughts about it all, so if anybody has been through it, I'd love to hear your stories! |
Posted By: spanky77
Date Posted: 11 July 2011 at 11:18pm
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Wow this IS an old thread!
Yep we're waiting for ivf/pgd and have had another 3 months wait stacked on, was supposed to be doing it any time now but on hold again. Also having second thoughts about it/fed up of waiting,hence ttc these last 2 cycles in a fit of desperate hope to avoid. Probably not wise I know, but hey ho There's a thread in the everybody.co.nz forum if you haven't already spied (infertility thread) and I follow a few blogs of people who have been/are going through it. If you want to know the blogs, pm me and I will send links If not, well, good luck anyway :-) ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Orca1
Date Posted: 12 July 2011 at 12:26pm
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Hi
I haven't been through it yet but like you am going to start in a few weeks time. We have been given a lot of reading material from our dr about it which I am sure is the same for you. I would be interested to hear from anyone that has been through it as well. Good luck! ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: lil_l
Date Posted: 13 July 2011 at 6:51am
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Spanky, how long have you been waiting^ Might pop over to everybody.co.nz, I haven't really discussed it much with anybody, so it's good to get everything out there! No doubt we'll be thrown to the bottom of the waiting list (we're both young, and I have a heart op next month so figure they'll take healing time into consideration)
Orca, no reading material yet, we're still in the "decision making stage" with the geneticists. We have an appt with our geneticist next week, so far they've really tried to talk us out of it, but my daughter and I have Holt Oram Syndrome and on top of giving us a 50-50 for the next child having it, he said it will most likely be worse off! (gee thanks mate!) |
Posted By: spanky77
Date Posted: 13 July 2011 at 5:52pm
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saw FS in March and he said 'see you in 2-3 months'. because I am not impatient at all (!) I phoned after 7 weeks to 'check progress' and turns out one of the pgd probes (they build 3 apparently) wasn't working so had to be rebuilt, also booking us in between 3 clinics can take two months minimum, apparently.
If its for the Holt Oram gene, I'm not sure how long you would wait. We are 34-35, no living children, and just the translocation that we know of. Supposed to be 3 months wait, although yopu never get a "definite timeframe". Its still a chromosomal issue for you(?) and thats a different funding stream to 'usual' infertility, also depends on your clinic, if AKL is busier than welly or not (probably twice as much, as all other pgd couples come to AKL for egg retrieval and biopsy, as far as I am aware) ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: lil_l
Date Posted: 14 July 2011 at 3:12pm
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I'm not sure what it will all entail for us, but I was prepared to be on the waiting list for at least a year!!!
I guess I'll have more of an idea after our appt on weds! I'm so nervous about it all!!! I don't even know what clinic we'll be referred to, actually I don't know much about it at all, hence why I'm on here!!!! |
Posted By: beano66
Date Posted: 16 July 2011 at 11:54am
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Hi we start this in a couple of weeks too, interesting to learn their are so many people going through the same process
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Posted By: Orca1
Date Posted: 16 July 2011 at 8:10pm
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BlondieKJ
I hope your appointment on Wed goes well and it helps you in making your decision. I am still waiting for my period to arrive. How things have changed, I have spent 2.5 years dreading its arrival and now I can't wait!!! Once it does arrive we will see our specialist to get the ball rolling. I have mixed emotions at the moment, I am excited but very nervous. Good luck! ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: beano66
Date Posted: 17 July 2011 at 5:29pm
| Does anyone know how long the waiting list is for this, public funded? |
Posted By: inwaiting
Date Posted: 22 July 2011 at 12:59pm
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I went through PGD in July last year. It definitely did feel like an extremely long waiting list, and heaps of tests that needed to be done. Our first embryo took, and split into twins, which we unfortunately lost at 8 weeks. After that had the other two embryo's that we had frozen inserted, one didn't take at all and the other we lost at 4 weeks.
We are now back on the waiting list for PGD which we were told would be in about Oct/Nov. We were told that in May, so therefore the waiting list is reasonably long, and there is only funding for a certain number of couples a year. As the probe has been made of us in Melbourne, we don't have to have the extra tests done. We are at the stage though that we have considered just TTC naturally even though we know the huge risks and like my husband says, we haven't been through all we have to risk our children being affected. Good luck with your PGD, physically I didn't find IVF too difficult, but yeah it can be pretty emotional at times. Its good to be able to talk to those that know what you are going through, cause so many people do not understand how hard it can be. |
Posted By: lil_l
Date Posted: 22 July 2011 at 5:12pm
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I was just told on Weds that there is no waiting list what so ever for PGD (question mark- as little one has ripped that particular key off our keyboard) Appt went well, sending our DNA samples off to the UK for testing should be back in 40 working days and then it's all go!
Mixed emotions as they are still deciding whether I go on the oral contraceptive or have the hormone stopper starter thing! (can't recall the exact name for it- but that's the general idea that I got). Oh and they publicly fund 40 of these a year, you just have to meet the criteria. |
Posted By: Topkat
Date Posted: 24 July 2011 at 12:18pm
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Hi ladies,
I pleased to see others are in the same boat, although not pleased any of us have had to get to this point. I'm in a similar postion as pgd is an option for us also. Out of pure desparation, I e-mailed Otago fertility assocation and was completly honest with them, ie: We already have one perfectly healthy 3 year old boy and that we have'nt been trying for very long for our 3rd baby just starting our 6 cycle. However we have already had a deversating lost 6 months ago having lost our second baby at 19 weeks due to abnormalities. I also am a BT carrier which can effect fertility and carrying a healthy baby. However our second baby was not effected by this the course of the abonormalities are un-explained. I recived an e-mail back replying that I can make an appointment with the receptionist to come in and go over our options. I will call them tomorrow. I didnt expect it to be actioned so quickly as had herd the waiting lists are long and realise I may not have been a priory since we have been blessed with our wondeful son. So anyway just jumping on in here to offer my support to others and hopefully we can ride the wave togeather. ------------- http://lilypie.com"> 
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Posted By: Orca1
Date Posted: 27 July 2011 at 1:09pm
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Sorry for your losses Inwaiting and thanks for sharing your story.
Welcome Topkat, very sorry for your loss, I can't imagine how devastating that must have been for you and your family. Like you, we are lucky to already had a child and have been trying for 2.5 years to have #2 with 4 miscarriages our specialist suggested PGD as an option for us. I have an appointment this Monday where I will be given the run through of my plan and when I will start things. I will be working towards an EC date of 2 Sept. I am nervous about the appt but eager to get started and will be good to have it all laid out and explained to us. Take care everyone! ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: Topkat
Date Posted: 27 July 2011 at 2:19pm
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Thats great you have app so soon and the ec date is not far away!!!!,
I will be keen to hear how you get on? If you don't mind sharing x ------------- http://lilypie.com">
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Posted By: lil_l
Date Posted: 28 July 2011 at 4:22pm
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sorry have been a bit awol as of late, had a TOE on tues and it knocked me down a bit (came home with a BP of 113\37!)
Welcome TK, sorry to hear about your losses too! Looks like we're all sort of in the same boat regarding that we already have children, they don't seem to really take that into consideration with the waiting lists though, I think everyone is equal in PGD... (maybe?) Would also like to hear how you get on Orca, Sept is so close! |
Posted By: Orca1
Date Posted: 30 July 2011 at 3:04pm
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I don't mind sharing at all, its nice to have some company on this journey! Will let you know how I go on Monday.
------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: lil_l
Date Posted: 31 July 2011 at 2:26pm
| Goodluck for tomorrow Orca!!!! |
Posted By: Orca1
Date Posted: 08 August 2011 at 11:21am
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Hi Ladies
My orientation appointment went really well. It was a lot of information to take in all at once but they gave us a lot of reading material so have had a chance to go through that. I have my first blood test tomorrow and I think I will start on the nasal spray. I have been feeling a bit more relaxed since the appointment and looking forward to getting things started. Hope you are all well. ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: Topkat
Date Posted: 23 August 2011 at 10:49am
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Hi Guys,
I have my app on the 14th of sep wondering what will be involved? It was pretty expensive so does this cost cover some of he tests or just a chat? How are you going Orca? ------------- http://lilypie.com">
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Posted By: Orca1
Date Posted: 24 August 2011 at 5:29pm
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Hi there
All going well here thanks. Since my last post I started on the nasal spray and last Sunday started with the injections. I wasn't sure how I was going to go with the injections but they haven't been too bad. Sorry can't help you with the cost Topkat as I am in Oz, going privately and not sure it will be the same. Good luck with your appointment on the 14th. ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: spanky77
Date Posted: 26 August 2011 at 10:12pm
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Hey peeps, we're up to seeing the FS on Monday, looking at cycle starting October
So relieved, as I heard that there's (virtually) no accommodation in AKL atm due to the world cup. Gives us a hope in hell of finding somewhere in November. Anyone know what the two hotels near the auckland clinic are? ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Topkat
Date Posted: 27 August 2011 at 8:47am
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Hey Spanky, would love to see how you get on since we are both dealing with a BT October not to far away yay,
Sorry can't help with accommodation since I am in Otago, but I'm sure it will work out xxx ------------- http://lilypie.com">
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Posted By: spanky77
Date Posted: 29 August 2011 at 8:19pm
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Oooooh thought we were cycle buddies then, but misread it, TK.
If initial appt, should just be basic bloods and scan and chat, maybe start feasibility test? I don't know, thats how it was for our first appt with FA I have a prescription now for the contraceptive pill. there's some query about when the cycle starts, as we have a wedding to go to on the other island in first few days of December, and if we leave it till Day 1 in October, its likely to clash with egg retrieval in AKL (DP is doing the wedding photos). We asked if we could count CD1 from September (I'm due on about the 20th) but that might be too early for the AKL clinic. And would be next cycle. So I might end up taking an extra week or so of the pill to help with the timing. Mid-November ER would be ideal - even if we don't have a result before the wedding (might be best) I can always do HPT if I need to know over there. Hoping we get some viable embies, of course ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Topkat
Date Posted: 30 August 2011 at 11:16am
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I wish it was as early as October! Although i'm not sure what the waiting times are like in Otago, guess will find out. Thanks for giving me some idea on what to expect, I ovulate on the 6th/7th of Sep so I think we will still try our luck on these days anyway and well if I go to my app on the 14th and they scan and say ohhh you have a little yolk in there well then great we will take our chance but still go over our options as could of course end in MC, horrible to think like that but hey, gota be realistic when dealing with a BT.
Hoping you can do Sep thats even better! ------------- http://lilypie.com">
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Posted By: spanky77
Date Posted: 30 August 2011 at 6:15pm
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yep morbid for some is reality for others. Its scary how matter of fact we get about it, isn't it. We did ttc (impatient me!)for 2 cycles and it was all based on "if I could miscarry, with or without retained products, quickly enough not to affect ivf"
I think even if you did get pg and (hopefully not!) miscarry, its good to have a plan b and plan c as back-up, these waits are so long and I think (depending on which chromosomes) many UBT babies stop developing by 8-9 weeks, although obviously this isn't a scientific and concrete statement from me. So even though wait might be 3 months min to start ivf, its worth definitely following. I would say anyway, although everyone is different I think what I will end up doing is taking the pill for 4 weeks and proceeding with a 'day 1' at the earliest point. We were told this didn't affect anything, so hopefully I start the pill in 3 weeks and take it from there ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Topkat
Date Posted: 30 August 2011 at 9:29pm
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So exciting to have a plan tho aye so much better than struggling along, I feel way more relaxed even just having made an app! The thing is I don't even know what our chances are? With the chromosomes I know which ones are effected and I know they are long arms? But don't know how large or small the break is and how likely i am to MC and at what stage? all I know is that I've been preg twice and never had a mc. I have read on a report that I am un-likey to ever carry an un-blanced baby to term so don't know what that means? prob be the same for any of us.
I'm so excitied for you, you only need one healthy emby! What if you have more than one healthy do they just implant one and freeze the others or implant more than one incase? Thanks for riding the wave with me. ------------- http://lilypie.com">
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Posted By: spanky77
Date Posted: 30 August 2011 at 10:52pm
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I think they put back max of 2. Freeze the rest. I don't think there's much chance of getting viable frosties from a BT situation though (although the FS is optimistic). I much prefer the idea of FET to all the drugs and invasivesh*t.
The sperm get ICSIed into each egg, so I'm sending lucky lotto-winning vibes to the embryologist who is going to do this for us. Hope he/she picks viable sperm, would be gutting if they were all unbalanced chromosome sperm. You will most likely need to go for genetic counselling also, its unlikely you will progress through ivf without it (hey thats what I was told - that the clinic need to have GC report to move on). The genetic counselling should go through all your options and the talk about the chromosomes from the genetics expert point of view. I think with smaller breaks more likely of carrying to term, and it also depends on which chromosomes involved, as they decrease in size - so Chromosome 1 is heaps bigger than chromsosome 23. We were told we had a 15% chance of carrying a baby with UBT if we make it out of 1st trimester without miscarrying. Some of the chromosomes are known to be more likely to be carried to term - 13/18/21. I think they are all trisomies though. Not really read much about them Do you have your actual karyotype? I found Unique in the UK really helpful when I found out about our BT, emailed them directly. http://www.rarechromo.org/html/home.asp - Unique also joined the Balanced Translocation yahoo group - I don't post much if at all, and seems to be a lot of americans (not being American-ist, just their whole insurance/health structure is a little different) Glad to have someone to ride the wave with, I've only met/spoke to one other person in NZ dealing with BT/Ivf+PGD, and its such a cliff-hanger, so am more than happy to keep in touch. How's Orca going on? ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Topkat
Date Posted: 31 August 2011 at 12:43pm
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wonder if it's different if the male or the female are effected? I guess they have to pick healthy eggs from me, and healthy sperm from your dp, wonder tho since billions of sperm your chances increase?
My Karyotype: is 46,xx,t(2:12)(q31.3:q13.3, our angel baby had the same one. Not sure about our 3 year old. maybe I could contact Unique thanks for the link, yeah hows Orca are you out there!!! ------------- http://lilypie.com">
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Posted By: Orca1
Date Posted: 31 August 2011 at 5:00pm
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Hi ladies
It is good to have a plan and to get the ball rolling. I have explained it to friends that once we started the IVF cycle we felt like we were taking some control of a situation that for a lot of the time is out of your control. Sounds confusing I hope you get what I mean!!! It seems like my body has responded well to everythign and I found out today that I am all set for EC this Friday!! I had a scan on Monday and have a total of 13 folicles. I am feeling pretty good about everything at the moment and will let you know how I go on Friday! ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: Topkat
Date Posted: 02 September 2011 at 11:09am
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Good luck today Orca, thats such fantastic news that your body has responded well excellent just what you need
Your right great to be able to take control! Really wishing you the best of luck sure everything will be fine ------------- http://lilypie.com">
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Posted By: spanky77
Date Posted: 19 September 2011 at 10:39pm
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How things going, Orca? Hope all good
I'm downregulating on BCP right now - 3 daze in ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Orca1
Date Posted: 20 September 2011 at 11:49am
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Hi ladies
Have been meaning to update for ages! I ended up with 7 egss, all mature and 6 fertilised. I only ended up with two eggs far enough along to do the PGD testing. One came back abnormal and the other was inconclusive due to not enough DNA being present in the cell to test. We decided to go ahead and implant the embroy even though it had come back inconclusive. Unfortunately its didn't stick. I have an appointment with my specialist tomorrow and I am hoping that we can do another cycle before Xmas. Interestingly enough my Dr said that if we had done a cycle without the PGD they would definitely have picked the wrong embroy to implant as it was at the right stage and down the microcscope looked the best. The overall experience was a lot better than I thought it would be. The worst I felt was after EC but that was only for three days. Very disappointed that it didn't work and took me a few days to work through that but feeling positive again now. How are you finding things so far Spanky? ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: spanky77
Date Posted: 20 September 2011 at 8:41pm
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Sorry to hear that Orca1, that sounds really disappointing. I'm dreading EC. What drugs did you have, do you know?
So far so good, but I'm only taking BCP. The nurse phoned through this morning with a plan - all dependent on blood tests and scans along the way, as you probably know. Learning to do injections next week - should be fun as I haven't been able to look at a needle since forever. DP will be doing it all, but I have a goal: to be able to inject myself - and EC around 2nd week of November Do you not have to wait between cycles? I thought we were told 3 months - but not sure if thats just because of the funding ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Orca1
Date Posted: 21 September 2011 at 7:46pm
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We have everything crossed for next time!
I started on Synarel spray and then went onto Gonal-f injections and finished with daily progesterone cream. Try not to stress too much about the EC, the procedure itself was fine it was just how I felt afterwards. Remember to drink plenty of water and eat lots of fibre. The injections were far easier than I thought, I decided to do them myself but I don't have any needle issues! I wasn't sure if I had to wait between cycles or not but I saw my specialist today and we are going to start again soon. We are going private though so maybe it is a funding issue. I hope all goes well and look forward to hearing how you go! ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: spanky77
Date Posted: 23 September 2011 at 10:14am
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Oh, hard not to stress about EC. I hate needles, and I'm pretty sure one through my ladytube is going to be unpleasant. What do they give you, do you know? I know midazolam is one (a benzo, it got me to the dentist so it might get me in the stirrups without too much fuss).
Quite different drugs - am on bcp then start 2 weeks of Buserilin. Stim with Puregon and Ovidrel for trigger. Progesterone will be through utrogestan, which I believe are pessaries (invisible liners at the ready). It must be the funding then. We were definitely told 3 months minimum (I'm already thinking through my second cycle - Feb/March) between, private they won't worry about spreading it out so much I reckon - although thats definitely one of the perks about going private - the control over your time! Did you have to pay privately to have your PGD probe built as well? ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: Orca1
Date Posted: 23 September 2011 at 7:15pm
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I can't remember what they gave me but I was told that I would be asleep but its a light sedation so that you wake up without feeling drowsy. I woke up feeling like I had had a really good sleep!
I am in Oz so it may work a bit differently. I do pay for the PGD. Definitely one of the perks about going private is more control over our time although I was really surprised we were able to go again so quickly. ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: Orca1
Date Posted: 12 October 2011 at 2:42pm
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Hi Spanky
How are things going? I am waiting to start my second cycle and have a blood test tomorrow and hopefully levels will be good for me to start on the spray. ------------- DD born 2008 Oct 2009, April 2010, Dec 2010, June 20117 x IVF/ICSI/PGD = BFN |
Posted By: spanky77
Date Posted: 18 October 2011 at 6:14pm
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Hey Orca how are your levels? You ready to rumble?
All ok here, I am just about to wind up BCP, and have had a week of Buserilin injections down. DP has been sterling with these, as I'm still not dealing with the needles :-/ A week of just these injections, and maybe a slight period, then next week start stims. Yikes. Long protocol feels REALLY long, but I know we started a week or two earlier than usual. ------------- 3x miscarriages, balanced translocation likely culprit. BFP from 2nd round IVF, The Bonk born in May 2013 |
Posted By: MrsMW
Date Posted: 31 May 2012 at 7:56pm
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Posted By: a.girl
Date Posted: 01 November 2014 at 10:03pm
| Bumping to see if anyone else out there is doing pgd??? |