Cleft bubbas?
Printed From: OHbaby!
Category: Support
Forum Name: Parenting a child with special needs
Forum Description: A place for those parenting children with special needs to find support and share their thoughts
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=41003
Printed Date: 01 May 2024 at 8:25am
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Topic: Cleft bubbas?
Posted By: mizim
Subject: Cleft bubbas?
Date Posted: 17 November 2011 at 10:48am
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Hey all. My little girl was born in March 2011 with Bilateral Cleft Lip & Palate. She spent nearly 3 weeks in SCBU and came home partially bottle fed and partially NG fed. She is now fully NG fed (for a lot of reasons she just went downhill and chose not to accept a bottle and we're not going to force it upon her). She has recently had her first surgery to repair her lip and still needs the NG full time. She'll have her next surgery around her first birthday. ------------- http://lilypie.com">  
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Replies:
Posted By: renata
Date Posted: 26 April 2012 at 9:23pm
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hi there,
I see you got no replay. I checked out your blog and your girl is beautiful. We just found out at our 20 week scan that our little boy has a cleft lip. They are unsure about the palate. It would be lovely to get to know you. ------------- url=http://www.TickerFactory.com/] 
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Posted By: mizim
Date Posted: 26 April 2012 at 9:47pm
Heya, Do you have facebook? Cause I'm more than happy to link up via that.... I also have a fb page that I run about my little girl. If not fb then txt or email.... :) ------------- http://lilypie.com">
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renata wrote:Posted By: renata
Date Posted: 26 April 2012 at 9:56pm
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Hi :)
i do have facebook. my name is renata rossi. in the photo i wear a hat.need more info to find me? ------------- url=http://www.TickerFactory.com/]
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Posted By: mizim
Date Posted: 26 April 2012 at 10:01pm
Think I have found you, sending a friend request to you now. :) ------------- http://lilypie.com">
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Posted By: BeccaBecca
Date Posted: 06 May 2015 at 7:01am
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Hi There, I have just had my 18 week scan and found out my baby girl has a cleft lip, and the palate appears to be intact, but we will need another scan with fetal medicine to check further. I was wondering if you managed to breastfed with your bubba? And would love to hear more about having a baby with a cleft lip if that's possible. I looked on facebook and couldn't find any support groups. This is all so new to me still. |
Posted By: mizim
Date Posted: 06 May 2015 at 7:50am
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Hi BeccaBecca. I'm a fellow cleft mum, 4 years old now, bilateral cleft lip and palate. There is a great page on Facebook for cleft affected families. Cleft lip only it is possible to breastfeed but from what I hear requires a lot of determination. If you message me on Facebook I can send you a link to the group. Miriam Matthews - foggy street profile photo ------------- http://lilypie.com">
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Posted By: Jemesque
Date Posted: 15 May 2017 at 5:54pm
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BeccaBecca - https://www.facebook.com/groups/faceitcleftnz/ this is the link to the New Zealand cleft support group. Really great group of mums on there! I'm part of one that is worldwide but most members are American, called Cleft Mommies. I believe there are some people on there who have experience with breastfeeding their clefties. My boy has/had a bilateral cleft lip & palate. He is now 1 and is having his palate repaired in September, his lip was done when he was 6 months old. Dont know what hospital you will be based in but we are in Dunedin, so if you have any questions just message me :) |