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mollycat
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Topic: Reflux baby and feeling down Posted: 02 October 2009 at 7:52am |
We just figured out that our baby has reflux less than a week ago and while it's nice to now know WHY he's crying out like we're putting cigaretts out on him - it's frustrating to realise how much different he is to other babies.
What's really got me down: I went to my antenatal coffee group yesterday. All our babies are very close to the same age and they were all talking about how they read to their baby or how much their baby enjoys their playgym/looking at things around the market, and how much they smile/giggle.
I was sitting there feeling absolutely horrible because I do very little of that with Ryan due to the fact that most of my day is spent either trying to comfort him when he's having a reflux attack and screaming his little head off or trying to calm him down to go to sleep because he's overtired from screaming for so long. He hates his carseat and his stroller because he's scrunched or reclined and it makes his reflux worse and he doesn't get good sleep because of the same thing. I can pretty much only take him out when he's in his Moby wrap as he's upright and falls asleep.
Ryan also rarely smiles - probably because he's usually in pain and that hurts as well.
I feel proud if I can get Ryan to be under his playgym for 10 minutes out of the day. He usually starts screaming afterwards due to being on his back. I can exactly read to him as he wouldn't hear me through his crying...It's so incredibly frustrating to feel like (1) you're being lazy (even though I know I'm not) and (2) that Ryan's missing out on things.
Does anyone else feel like this? Just needing some support at the moment.
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cuppatea
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Posted: 02 October 2009 at 9:08am |
Aw that is so hard. I don't think he is missing out on anything, you are giving him what he needs and that is all that matters for now.
Have you tried putting him in a swing or bouncy chair? Most of those come with toys so is a bit like a play gym but they don't need to lay flat. We had a swing for Kyle and it was awesome and sometimes the only thing that kept me sane. I think plunket hire them out.
Some babies don't smile that much even without reflux, I think there is another thread running in the baby bit about exactly that.
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oscarboo
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Posted: 03 October 2009 at 9:15pm |
to you. Remember you are doing a great job.
A friend of ours had the same and she imported some cot rockers from Australia which made a HUGE difference to his sleeping - the motion was what he enjoyed. In the beginning the only way she could get him to sleep was on her! She also found a dummy worked well. Our girl had reflux as well but never took to a dummy. Hang in there it does get better
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Lulu
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Posted: 04 October 2009 at 12:20am |
I always use to say when I was a new Mum, that as soon as you become a Mum, guilt becomes your middle name. Don't feel guilty, you are doing the best you can with a hard situation, and I find that a lot of people seem to give the rose tinted version of parenting, which can leave you feeling inadequate. I didn't have any difficulties with reflux or similar, but I have an extremely sensitive Daughter who has brought different challenges. She is just over two years old and just learning to walk, and a little slow with her speech. She is however extremely bright, her comprehension is absolutely awesome. I did the normal thing of forever comparing her to other children, but now I accept she is an individual, and that I do my absolute best, so I have to be happy with that.
I hope things improve for you, and that you realise that you are also doing the best you can.
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lilfatty
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Posted: 04 October 2009 at 7:52am |
You could also try propping him up under the playgym .. Elias is propped up everywhere (bed, changetable etc) as he brings everything up otherwise
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Mummy to Issy (3) and Elias (18 months)
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mollycat
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Posted: 04 October 2009 at 9:25am |
Thanks ladies! Things have slightly improved as our GP has agreed that Ryan can sleep on his tummy for naps during the day. It has made a big difference to my day as I am actually able to...oh, I don't know...eat, go to the toilet, do my hair, wash my face, brush my teeth....the list is endless! However his nightsleeps have gone backwards but I'm hopeful they will go forward again sometime soon - 2 hours between wakings when you have to feed and then hold him upright for 30 minutes leaving you about 50 minutes to sleep just ain't cutting it!!
We are trialling a swing which he likes for a little bit - and I am able to hook some toys to that which he can look at so that makes me feel better. I'm also thinking his medicine is working a bit better as he's been able to look at me for about 10 minutes interacting and making cooing noises.
I know it can only get better and that people have it far worse - but it's hard not to get down sometimes.
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Bizzy
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Posted: 04 October 2009 at 9:44am |
i bet you the other mums are exagerating slightly anyway... and you having him in the moby is much better for him than a pram... and can you say over stimulation! lol! try not to feel bad...hes only very little and you have lots of fun stuff coming
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busyissy
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Posted: 04 October 2009 at 8:00pm |
Oh, I remember those days, its heartbreaking and frustrating and sometimes you just feel like no one will help. Everyone says it will get better with time but they aren't the ones dealing with the 24hrs of screaming.
Things that really helped me was my hugabub (some days she spent all day in there except for feeds and changes, its completely hands free so you can get stuff done), bouncinette and when he gets older a exercircle (join a toy library saves buying everything), my bfing pillow kept her raised up everywhere even on the change table, oh and her dummy.
Issy had her mattress raised up at such a ridiculous angle that we had to put her in a safety sleep just to keep her in it, we side slept her (as she vomited constantly even in her sleep) but I notice now that she often rolls on to her stomach.
I'm sure you are already doing these things but you could try using karicare food thickener before feeds to help him keep the milk down. Can't use it if he is on gaviscon tho or he'll get constipated.
Hang in there, do your best to enjoy his baby hood I know it doesn't seem like it now but you will look back and wonder where the time went. Don't forget to look after yourself as much as you can.
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mollycat
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Posted: 05 October 2009 at 2:42pm |
I must admit - I don't know whether we're lucky or not - but Ryan has silent reflux so he very very rarely vomits - it's just the screaming. Since doing sleeps on his tummy at night and like Saffron suggested propping him up on a breastfeeding pillow and cutting out dairy we have had a much happier child with far fewer reflux episodes. I can only hope that we have a child who's reflux will get better sooner rather than later.
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KitKat
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Posted: 06 October 2009 at 1:25pm |
I just want to say- you are not alone, and I know what its like.
It is soooo hard.
Big tip- look after yourself, and get support- I found that helped me a lot. It doesnt solve the problem, but it helps. Its easy to suddenly find yourself wrung out. Major danger zone for PND, so keep tabs on how youre feeling and talk about it.
And try not to say to yourself 'Other people have it way worse'.... I do this all the time, and recently I found it easier/better to say- "We do have a difficult situation, and it is very hard to cope, but we will". Its easy to make yourself feel worse by minimising how youre feeling and comparing it to others. Its OK to admit that its extremely hard.
I could keep writing about this for ages- I think there is deffinately a book to be written about surviving a reflux baby!
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mollycat
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Posted: 06 October 2009 at 2:03pm |
Big milestone last night - Ryan decided he now likes his dummy. Oh the joy!!! It is so much easier to settle him at night, in the carseat, during a reflux attack - you name it. Before it was like he had no idea what to do with the darn thing but now he attacks it like it's his last hope and he settles right down. Bliss.
I am really really hoping that Ryan's reflux is actually getting better. He seems so much happier since he's been able to get decent naps and I have been able to cut down his Gaviscon intake from the maximum to half that amount. Fingers crossed.
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KitKat
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Posted: 06 October 2009 at 6:34pm |
OMG Dummies are the best!
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kebakat
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Posted: 06 October 2009 at 6:44pm |
Daniel had silent reflux. Some days were very hard. One thing I wish someone had told me is that once you find something that works for him, it may not always work, we found gaviscon like a brilliant cure for it, but it only lasted a week before we had to move to ranitidine. I wish I had known that then I would have gone straight back to the doc immediately and it would have saved us from some horrid days. I don't know if that is helpful or not but just make sure you keep going back to the GP if you feel something doesn't work. Silent reflux is awful!
But they do grow out of it!
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AandCsmum
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Posted: 10 October 2009 at 10:41pm |
Yay for taking the dummy! It was my lifesaver. Especially when popped in straight after a feed
No other advice but just sharing hugs. Also those ladies won't have it smooth sailing all the time.
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A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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