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k1wimum View Drop Down
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    Posted: 09 April 2011 at 8:09am
in the next few days we will be giving birth to our son he has spinabifida and wont have a great outcome we have tried to work out how we could make it work with the multiple surgeries possible seziures etc that can be an issue for alot of babys in this condition but with to other young children to consider and quality of life for them as well as baby we came to this heartbreaking decision. we have been here before and it sux im worried about my mental capabilitys dealing with this again and the effect on my eldest which we explained the best we could that his baby brother will be going to heaven and not coming home with us.i just want to fix everything and i cant and feel i have failed again at being a good mother i love and adore my kids they are my world and with this being the second one im a high risk has anyone else gone on to have a normal baby after losing two with spinabifida
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MummyFreckle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MummyFreckle Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 11:27am

I didnt want to read and run. I am so sorry for your loss, I dont have any advice, but just wanted to send you some

 

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Limochick View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Limochick Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 11:45am
I am so sorry that you and your family are going through this, I don't have any advice but didn't want to run without letting you know that I will be thinking of you

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EmDee View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote EmDee Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 11:52am
I am so sorry that you are going through this, again. How utterly heartbreaking My thoughts are with you and your family
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Lexidore View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lexidore Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 12:11pm
Also didn't want to read and run, I can't offer any advice but huge hugs and sympathy


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AandCsmum View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AandCsmum Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 1:20pm
Oh huge hugs. I can't imagine what you are going through.

Kel


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Topkat View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Topkat Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 5:14pm
i'm so very sorry and sad to read this you must be a strong and couragous women to have to do this twice! But I know you would skip the life lessons, and the strength you gain, to not have to go through this. It's the hardest thing in the world losing a child of any age and for you to have to go through this twice is truly un-fair.

It is nearly four weeks since I gave birth to our angel baby at 19 weeks due to Kindney problems, we are doing ok but I know how you will be feeling. There is another lady on here who has lost a child to spinabifida I hope she gets in touch as I know she has gone on to have healthy bubs. Please Pm me if you want to chat but I guess you already know the emotions and the process you will go through. I'm sure you will go on to have a wondeful heathy bub once you find the strengh to carry on. As will I......Massive hugs to you xxxxxx

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kebakat View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kebakat Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 5:51pm
I'm sorry that you have to go through it twice! That's just beyond unfair.

Jared was our spina bifida bub. About a month after I had him I put myself on 5mg of folid acid rather than the 800mcg and took that just in case we got pregnant again, I didn't want another bub straight away but I thought that if I did get pregnant again I wanted to make sure I had loads of folic acid. Alex is healthy and doesn't have spina bifida. I was offered an amnio which can tell you if your bub has spina bifida. But that's still at like 15w.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WestiesGirl Quote  Post ReplyReply Direct Link To This Post Posted: 09 April 2011 at 10:09pm
Im so sorry hun. Thinking of you and your family during this sad time
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Post Options Post Options   Thanks (0) Thanks(0)   Quote queenbean Quote  Post ReplyReply Direct Link To This Post Posted: 10 April 2011 at 5:49pm
Oh k1wimum, this is heartbreaking. I'm the other Mum with a spina bifida baby. You'll be going through so much right now, but there definitely is hope. Like kebakat, I take a whopping 5mg of folic acid when TTCing, and have had two wonderfully healthy children since losing Eva.

I'm so, so sorry hun, please feel free to PM me anytime


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k1wimum View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote k1wimum Quote  Post ReplyReply Direct Link To This Post Posted: 16 April 2011 at 3:36pm
we had our son last night and named him max he is beautiful he was with us for nearly an hour and passed away peacefully in his daddys arms, i feel so hollow and empty and miss him so much but am glad he in a better place i wanted to thank everyone for there kind words and advice
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Limochick View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Limochick Quote  Post ReplyReply Direct Link To This Post Posted: 16 April 2011 at 4:32pm
A very beautiful name for a very special little boy!! I am so sorry for you and your family, I will be thinking of you in the days and weeks to come

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kabe View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kabe Quote  Post ReplyReply Direct Link To This Post Posted: 16 April 2011 at 8:18pm
So very sorry to hear about your loss. Know that we are thinking of you and your family

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Post Options Post Options   Thanks (0) Thanks(0)   Quote shadowfeet Quote  Post ReplyReply Direct Link To This Post Posted: 16 April 2011 at 9:20pm

I'm so sorry , Max is a lovely name for your loved wee boy


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Topkat View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Topkat Quote  Post ReplyReply Direct Link To This Post Posted: 17 April 2011 at 7:33pm
so sad, it's so hard it sounds like max passed away peacefully bathed in love....please come on here and chat to us if ever you need anything we are all thinking of you and your fam
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WestiesGirl Quote  Post ReplyReply Direct Link To This Post Posted: 17 April 2011 at 9:24pm
Our Angel July 08 Gone but not forgotten

And to complete our family, our princess has arrived
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k1wimum View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote k1wimum Quote  Post ReplyReply Direct Link To This Post Posted: 19 April 2011 at 10:34am
baby max will be arriving home today my partner has gone back to work and the world keeps turning it just doesnt feel that way for me.am trying to keep myself motivated and doing things that need to be done but its so very hard. we went and did shopping yesterday and everywhere i looked there were brand new babies i no they would have been there anyway it just made me feel so empty
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Post Options Post Options   Thanks (0) Thanks(0)   Quote queenbean Quote  Post ReplyReply Direct Link To This Post Posted: 20 April 2011 at 11:18pm
I know how you feel hun, everyone just carries on as normal but for you it feels like the world has stopped. Big hugs xx


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Post Options Post Options   Thanks (0) Thanks(0)   Quote bikershaz Quote  Post ReplyReply Direct Link To This Post Posted: 21 April 2011 at 3:35pm
I'm so sorry for your loss k1wimum. I still find going shopping really difficult. I have started going after work to avoid couples with their babies at the weekend. I just can't cope with it. I have had to walk out sometimes as I'm near to tears.

I had the feeling and still do that the world is carrying on yet I'm stuck.

Big hugs to you and your family and I know it doesn't really help but you are not alone.

Take care and PM if you ever feel like someone to talk to.

S xxx
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shezamumof3 Quote  Post ReplyReply Direct Link To This Post Posted: 25 April 2011 at 4:59pm
Im so sorry for your loss
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