Gastric Reflux - how many?

Hi, am just curious here. How many here have babies or children with Reflux, or had it? If there was support made available would you be interested is becoming a Regional Co-ordinator?

I have approached GRSNNZ but they were not interested in combining, differing views etc. But what is important, regardless to how many support groups are available, who people turn to, it is important that support is there.

Yes, it is a shame. I have looked up our member list, and no we do not have any members in the Whangarei district either. We have no Regional Co-ordinator covering that vicinity, at this stage.

Part of our Co-ordinators role is promoting the support group in their area (at GRSIC's cost), creating coffee groups and fielding phone calls. Our co-ordinators are supported in their roles by myself and our committee members.

Our aim is to ensure that parents and caregivers are reassured that they are not alone. It is amasing how we seem to feel isolated, only those with or had Reflux babies know what it is like. The thoughts and feelings that go with it too. We grieve, because our hopes and dreams were soon dashed. There are so many words to describe it all, yet not enough space to put it.

15mg's Losec, ATM, hmm as long as there is no need to increase it, my fingers are crossed for you. My children are all on Losec, till we reached it there was little to no relief till then. Two of mine are combining theirs with Zantac, and all three young ones are on Motilium for Delayed Gastric Emptying. It has been a hard battle, I have finally completed 10 years of sleepless nights, many only 3 hours sleep at night. A hard graft.
I empathize with you.

Edited by Donna.I

Who says I am not nuts lol. Everyone tells me I am.

The whole reflux thing, does tend to make us question our abilities. In the tend it does strengthen our resolve. Not only the exhaustion that goes with it, the emotional and physical, but also the fact we have to learn to push ourselves. We push our own abilities by questioning the doctors, trying to find a remedy that works. One comment I have been pulled up on is "Doctors are not God, they do not know everything". It is true. Through my journey I have in the past stood in my pediatricians office, trying to persuade this person that though my son is constantly irritable, there is more going on and I felt it was Reflux given the symptoms displayed, regardless to the fact that Zantac was not working. Through my persistance Cimetidene was tried, and a happy baby pervailed. A PH Study later showed severe silent Reflux. It is not easy. But when you know there is something wrong with your child, they are not responding well to one medication, be it the dose or the medication itself, you have to fight. We are our childrens advocates. They rely on us solely. How do we know to fight, without someone there holding our hand, informing us what is available, how best to ease babies pain.

Becca I symathise with you. I hope the gaviscon continues to control it.

He's 6.5 weeks old. We have an excellent GP who is keeping a close eye on him.

my son has Reflus hes nearly 9months old and he still has it not as bad as he did but he had it really bad till he was 7months. its hard because they throw up all the time and you you and them never stay clean for very long. i never got any help from any organisation my brother had it till he was 2 so my mum had been through it so she helped alot.any one from christchurch.

Donna.   While looking for possible causes on Jayde’s condition, My husband came across Dysphagia on this website:

http://www.babywhisperer.com/forum/viewtopic.php?t=18509

Dont know if you know much about it, but sometimes its misdiagnosed as reflux or they have this as well as reflux. We are going to go back to the Speech lang therapist. As all Jaydes symptoms fit it.

Thought id let you know incase any of your parents have babies that are presenting problems like this.

Well it would be great if the info will help someone aye! Man your a busy lady!

Just passed your details on to a mum on another website Donna. Hope that is ok!