New Posts New Posts RSS Feed - Support needed
  FAQ FAQ  Forum Search   Events   Register Register  Login Login


Forum LockedSupport needed

 Post Reply Post Reply
Author
lillypip View Drop Down
Newbie
Newbie
Avatar

Joined: 23 October 2008
Points: 5
Post Options Post Options   Thanks (0) Thanks(0)   Quote lillypip Quote  Post ReplyReply Direct Link To This Post Topic: Support needed
    Posted: 23 October 2008 at 4:24pm
HI, Im new to these boards.:) I have a 16m old....who has allergys to dairy, wheat, gluten, soy and egg.
Its so stressful!!....I dont have many friends with children...and the one good one i do doesnt reallly understand how hard it is to have a child with allergys. we had an incedent at playgroup the other day where my daughter ate some muffin that some other child had "hidden" in the toy kitchen in the playroom. I was really upset about it and to be told im over reacting is so not helpful.
What do your playgroups/center etc do to stop things like this happening.???
Back to Top
Sponsored Links


Back to Top
2girlsandaboy View Drop Down
Groupie
Groupie


Joined: 25 July 2008
Points: 44
Post Options Post Options   Thanks (0) Thanks(0)   Quote 2girlsandaboy Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 6:23pm
Oh how horrible for you.

I know when I have taken my son to playgroup all the children eat at on a mat then when they get up they wash their hands before they play with the toys again.

You are not over reacting - its not the other people who have to deal with a sick child for days , I'm not sure if your child is Anaphylaxis but do other parents know that "small things" like hidden food could be life threatening . My son is only allergic to Dairy and I find that hard enough to cope with.

Chin Up, The people that post on here have lots of good ideas and support.

Back to Top
soph View Drop Down
Senior Member
Senior Member


Joined: 23 July 2008
Location: Canterbury
Points: 144
Post Options Post Options   Thanks (0) Thanks(0)   Quote soph Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 6:46pm
Hello welcome to forum!
Yep it is hard to explain to other mums about allergies because mainly they never did experiences or see the reactions to understand how serious can be.
I had issue with one of playgroups where they have "morning tea" after games, where children sit on the floor, but left mess on the floor afterward, enough for my DS2 who is crawling around helping himself to dairy product! So I explained to leaders quietly at the end of session that DS2 suffer from anaphylaxis shock if he get hold of dairy or simple trace of dairy on the toys/climbing frame etc. They wrote a warning on the sign-in books to remind parents about dairy products (most of mums have stopped bringing milk bottle to sessions. )
Also I had a small talk to principal recent about school bus children been giving foods to my DS1 despite he know he shouldn't accept it and bus driver got no medications for him on her bus. DS1 is only 5 years old and fully aware of his allergy ie knowing he is having reaction to warn me for his mediaction but not fully grasp the serious if he accidently ate foods that contain allergens in it without his medications Prinicpal did have word with school bus children and wrote a letter to parents to explain there is a child with serious food allergy on the bus.
Just talk to leaders in quiet and calm times when all of you are not too busy to explain the allergies. Allergy NZ got good information pack for playgroups/kindy to explain about allergies and how to deal within playgroups, that might help as did help with my DS1 and DD's kindy.
Most important, your LO need very calm mummy (five years on I learnt to hiding my "panic" feeling to allow my children to calm down during the reactions, not easy but it does help my children)
Back to Top
cuppatea View Drop Down
Senior Member
Senior Member
Avatar

Joined: 05 February 2007
Points: 7798
Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 6:55pm
My son is 16m and allergic to dairy, eggs and peanuts. Is difficult sometimes and when he went to daycare for a while I was terrified as I wasn't there to ensure he wouldn't eat stuff, but they were great and would leave him at the kai table (his favourite place anyway ) whilst they cleaned up the other kids and the floor.

We now go to playgroup and the kids tend to only have fruit so that is a lot easier on me, but I am always vigilant of what he eats. I have had him eat something that looked like a bit of choc muffin off a cafe floor before I could get to him or get it off him though so I now how easy it can be for them to eat things.

Perhaps you could ask them to have stricter rules on where the kids eat, if they all only have food in one place its easier for you to manage. Also have you asked around at your playgroup as you might find you aren't the only one with an allergy child.
A playcentre that I visited had what I thought was a great system, peanuts were banned (pretty standard these days) and then all children with medical problems had there photo up on the wall and a description of the problem and the medical attention necessary. I.e Severly allergic to peanuts, phone 111. Asthmatic, inhaler kept in lunch box, ring parents/doctor.

The biggest thing I do though is just watch him like a hawk, very difficult sometimes at coffee groups, b-day parties and the like and I find having lots of safe snack foods with me is a must.

Back to Top
Andie View Drop Down
Senior Member
Senior Member
Avatar

Joined: 01 January 1900
Location: New Zealand
Points: 3614
Post Options Post Options   Thanks (0) Thanks(0)   Quote Andie Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 8:30pm
Hi, and welcome!   I have a 2-year-old with anaphylaxis to dairy, and she's nut and seafood free as a precaution for a couple more years at least. The support on this Board has been pretty cool, I've found. Also, are you a member of Allergy NZ? If not, they're good - their regular mag has info for us and if there's a support group in your area then they're worth getting involved in. If there isn't, are you keen on starting one up? There's bound to be other parents nearby facing allergy issues, and I hear ya on needing people who've 'been there' to understand sometimes.

That's pretty stink that you were told that you were over-reacting after the muffin incident. Have you had the chance to explain to the other mums at playgroup what happens when your child eats these foods? I found it incredibly scary at first with my daughter's allergy and all the foods flying about everywhere we went, especially when other kids were eating and sharing, and smearing food everywhere... but in time the people we know understood more, I settled down some (didn't get complacent, but came to terms with it more), and now I'm working on teaching my daughter not to taste foods that didn't come out of her own bag, and to understand that milk will make her sick. We're not there yet, but I'm hoping she has enough understanding to keep herself safe once she's at kindy.

...also (at risk of a monster-long post!), written info, plain factual info really helped our families and friends understand the risks unknown food posed to her. If it's something that takes the emotion out of the issue and is more about the medical facts, I think that helps some people decide for themselves whether or not they think an allergy parent is 'over-reacting'. And the people who know us are pretty good now and even help me keep and eye my girl when we're out and she's getting inquisitive. Take heart - it gets easier, and support is out there - it's not only the allergy people who can be supportive, I find it really touching when friends want to have food that's safe for my daughter at their houses. That said, I also look for food-free toddler activities to take her to (gymnastics, the kids time at the library), and the ones we go to with food are with people who know us.

Edited by Andie
Andie
Back to Top
lillypip View Drop Down
Newbie
Newbie
Avatar

Joined: 23 October 2008
Points: 5
Post Options Post Options   Thanks (0) Thanks(0)   Quote lillypip Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 8:56pm
Thanks so much for your words of encoragement!!! (sp) some great suggestions thanks.......I have talked to the ladys that run our playgroup..they were really good and are going to make the playroom food free which is great!! as that it where she has eaten food each time it has happened. so that will solve the problem there as i sit with her while she eats her lunch or she is in a highchair.
We are very lucky as her reactions arent as servere as anaphylaxis. but still cause her a lot of pain. she gets whelts on her face arms and bottom, diahoria(sp) and refluxes. she also gets eczema. she gets the worst reaction from dairy.
I really didnt expect my friend to react the way she did as last week she was going on how horrible it was that her daughter got Hand foot and mouth from someone at group and how irrasponsable(sp) it was to be taking a sick child there etc.
I dont know what to say to her about it....??? as i dont see a diff between the2!!?? so how am i overreacting?.....
Back to Top
cuppatea View Drop Down
Senior Member
Senior Member
Avatar

Joined: 05 February 2007
Points: 7798
Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 9:21pm
I don't think you are over reacting, the trouble is though a lot of people just don't seem to take allergies seriously and probably never will unless they themselves had a child with an allergy.

It's a real shame that someone who is your friend doesn't understand though, I could understand that attitude from a random mum at the group but I would have thought that someone who knows what you have been through and what your child is like when they eat the foods would be a lot more understanding.

Back to Top
soph View Drop Down
Senior Member
Senior Member


Joined: 23 July 2008
Location: Canterbury
Points: 144
Post Options Post Options   Thanks (0) Thanks(0)   Quote soph Quote  Post ReplyReply Direct Link To This Post Posted: 23 October 2008 at 9:36pm
Originally posted by cuppatea cuppatea wrote:

I don't think you are over reacting, the trouble is though a lot of people just don't seem to take allergies seriously and probably never will unless they themselves had a child with an allergy.



Agree

I have different group friends and they react different to news about my children's multi-food allergies. I found mums with children who got food allergies are more supportive and more understanding. Also giving you a hand during rough times like recent with my DS2' soy allergy. Other mums without allergies doesn't fully understood but prepare to help out like birthday parties, they contacted me for birthday cake recipes and clarification on foods suit him so my DS1 didn't miss out. Some other mums walk away as soon as "allergies" mention!!! that how some people are.....
Your friend really need to learn about allergies to understand how much it will effect on your LO.
Back to Top
Andie View Drop Down
Senior Member
Senior Member
Avatar

Joined: 01 January 1900
Location: New Zealand
Points: 3614
Post Options Post Options   Thanks (0) Thanks(0)   Quote Andie Quote  Post ReplyReply Direct Link To This Post Posted: 24 October 2008 at 10:11am
Sounds like you're onto a really cool plan for playgroup now - yay!
About your friend, if it's just a one-off difference of opinion, maybe it won't matter at all in time, as she'll learn more about allergies from you and that tends to gradually change people's perceptions. Before I had a child with an allergy I thought a lot of 'those' mums were over-reacting too. And in all honesty, I still think some people react in a way that doesn't help the situation at all, and who knows, maybe some people think I'm being too over-protective with my girl? Doesn't matter at the end of the day.
Andie
Back to Top
lillypip View Drop Down
Newbie
Newbie
Avatar

Joined: 23 October 2008
Points: 5
Post Options Post Options   Thanks (0) Thanks(0)   Quote lillypip Quote  Post ReplyReply Direct Link To This Post Posted: 27 October 2008 at 11:07pm
Hey.... Talked to my friend the other day....we have sorted things out and everything is good now.....Yay!
We are going for missys allergy tests on thursday.....so heres hoping for it to be as easy for her as poss.....Most of the people ive talked to including my partner say its not to bad?~ let you know how i goes.
Back to Top
Andie View Drop Down
Senior Member
Senior Member
Avatar

Joined: 01 January 1900
Location: New Zealand
Points: 3614
Post Options Post Options   Thanks (0) Thanks(0)   Quote Andie Quote  Post ReplyReply Direct Link To This Post Posted: 28 October 2008 at 1:06pm
Ooohhh good luck for Thurs!
The tests aren't too bad - I was a ball of nerves before Ella's ones but they turned out not to be worth stressing over quite that much! What's she having done? Is it a RAST test or skin prick test, or both? Take something to entertain her for the 20mins you spend holding still for the skin prick test if she's having that done
Andie
Back to Top
Kellz View Drop Down
Senior Member
Senior Member
Avatar

Joined: 01 January 1900
Location: Gisborne
Points: 7186
Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellz Quote  Post ReplyReply Direct Link To This Post Posted: 28 October 2008 at 1:21pm
Get her something new and interseing,..like one of those little books with flaps to lift up,..and I find bubbles great idstraction too! Escpecially those sticky bubbles that u can join together. The first time Isla was in ED the nurse had them and they were great distraction!

Good luck!
Back to Top
cuppatea View Drop Down
Senior Member
Senior Member
Avatar

Joined: 05 February 2007
Points: 7798
Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 28 October 2008 at 3:15pm
Yeah Spencer found the skin prick test ticklish, he is a strange one though. Our paed didn't make him stay still for the results to come up he was able to sit on the floor and play with toys.

Good luck

Back to Top
lillypip View Drop Down
Newbie
Newbie
Avatar

Joined: 23 October 2008
Points: 5
Post Options Post Options   Thanks (0) Thanks(0)   Quote lillypip Quote  Post ReplyReply Direct Link To This Post Posted: 30 October 2008 at 6:08pm
So we had our skin prick test today.... . It was not at all what i was expecting...bubs was very upset...I think more at the fact the nurse lady was holding her down than in pain.....i really wish i was able to have waited to have them done by our pead!
.
Anyway, the reactions that showed up straight away were wheat and soy....then rice and a mild reaction to pork. no reaction to cows milk which suprised me...but they arent always right in young kids are they??
Back to Top
cuppatea View Drop Down
Senior Member
Senior Member
Avatar

Joined: 05 February 2007
Points: 7798
Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 30 October 2008 at 6:17pm
Over 12 months they are normally accurate. That is stink that the nurse was so mean. Spencer had some more tests today and he was again fine, the paed just had him sit on my lap whilst he did them, not sure why the nurse felt the need to pin her down.
Still never mind it is over with now, and i'm sure she has forgot all about it. It probably upset you more.

The skin prick test wouldnt' show up an intolerance, so if you think she isn't good on diary she could perhaps be lactose intolerance. Lactose intolerance is caused by a deficiency in the enzyme needed to break the lactose down, where as an allergy is an immune response.

I'm surprised about the rice, that is normally a "safe" food. Although Spencer reacted to parsnips and root vegetables are normally "safe" as well.

Back to Top
lillypip View Drop Down
Newbie
Newbie
Avatar

Joined: 23 October 2008
Points: 5
Post Options Post Options   Thanks (0) Thanks(0)   Quote lillypip Quote  Post ReplyReply Direct Link To This Post Posted: 30 October 2008 at 6:27pm
Shes fine now....forgotten already....busy playing with her new dolly... .
thats what i thought about the milk. an intolorance rather than an allergy.
Im very suprised too about the rice!!...shes been having rice milk in cooking and before bed when im at work once a week. and rice is her favourite food.....
So will be organising our script for pepti jr tomorrow!!! just as well we have a number!
Back to Top
 Post Reply Post Reply

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.05
Copyright ©2001-2022 Web Wiz Ltd.

This page was generated in 1.109 seconds.