autism/aspergers

hey, i feel its a real shame parents are not using this part of the forum more, as support and knowing you are not alone is great help.

i have four children my 5 year old boy has aspergers and i have a 3 year old boy with autism he is non-verbal... have family history of aspergers one being my 20 year old brother.

would love to hear from anyone else with children/family of these disorders even older children, even more so someone with a nonverbal child themselves.

thanks

hi, my son got referred to SES for speech therapy 12 months ago and he has seen the lady 3 times
when he was one he had 2 words and by 1 and a half the words were gone and he hasn't spoken yet

hes a easy child (well kinda) but the biggest problem I'm having is no communication, and hes now finding it frustrating

hi jodie thats relly bad james sees his speech thepery at least once a fortnight and the outher on the outher week have you got hold of the autima surport groub also parent2parent are relly good resorse for us parents they can send you heaps of advice i would get hold of your speech therist and demand more help they should be helping him and you much more. also with the fustrtion its a big thing still in our house it has gotten better with james talking more but its still there

hi mel

i hope not to offend you, but i find it really hard to accept changing diets and things like that would in anyway change an autistic child, and i find it really unfair people who say that make false hope (not talking about you )

its a problem with the brain, like little floating wires that would normally connect somewhere but haven't

i have read a couple of books about how parents cured their autistic child in 2 weeks with special diets, but in my opinion they obviously didn't have autism in the first place

If that was the case autism with be cured in every case, but none are.

As every website says right down to Tony Attwoods
Autism has no cure.

Sorry this is not meant to sound rude or put you down everyone has the right to their opinion.
And maybe its something other parents could try

omg jodie that spceeh person is horrable is.nt it there job to help ,have you tried to go back to you gp maybe they will be able to find someone to help. james goes to the vera haywood center which has all his therepys in the same cente,r they are wicked there stright on to helping james with his speech and moter probelms . there is no cure for dyspraxia god i wish there was ,james will have to find ways to cope around it which he will. . big hugs jodie

hey james, thats the joys you have when you live in a small rural, low economical area
i aim is to find a psychologist in auckland or somewhere, where they would have alot of experience in children like my son, and get some real advice and an idea of what i am in for, whats helps, and what to expect etc

jodie.s pm me . where do you live, if you are in South or East Auckland I could send you a newsletter from our group

My son was diagnosed with autism at 22 months he is 6 in April but his speech therapist through the school thinks he has got dyspraxia more than autism. He is non verbal but he has got a few single words that he does say, he knows how to count, write words and can add.

hey kiwigal, at what age did your son start to speak?
and how old is your son james?

i dont know much about dyspraxia, well i didnt know anything until i looked it up today

and susieq, how is your daughter doing now?

is everyone here happy with there childs diagnosis?
meaning its the right diagnosis, not that your childs different

Its also great that most of your kids have been diagnosed early on - it wasn't till a year into school that they suspected Josh had aspergers.

Also i am sure you all should know but don't forget you can get a child disability allowance from Winz. Its around $80 a fortnight. Not sure whats going to happen next year with that when Josh goes to polytech but I am sure he will still get it until hes working or 18 years??!! Anyone know?