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Joelle View Drop Down
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    Posted: 12 April 2010 at 7:27pm
Hi,
3 weeks ago my little one was diagnosed with Autism along with global development delay. His autism seems fairly mild as we have so much interaction and he's so loving.

On the delay side of things he's just learning to walk with a walker and he's non verbal. Thursday he started feeding himself so that was a great step.

Any other families going through similar things at the moment?

Thanks
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Juzzo View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Juzzo Quote  Post ReplyReply Direct Link To This Post Posted: 13 April 2010 at 1:53pm
Sorry Joelle, not me but sounds like he's doing great things.   It can't be easy for you but you're doing an amazing job!
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Joelle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Joelle Quote  Post ReplyReply Direct Link To This Post Posted: 13 April 2010 at 10:10pm
Thank you

He's doing great we've always had fairly good eye contact and the smiles we get are great.

The new things we've seen like pulling the toys of the shelf in The warehouse and showing an interest are fab He would just sit in his buggy before showing no interest whatsoever.

Then old skills reappearing. Its funny to think how excited you get to see your 20month old clapping as he's not done it in 10 months
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High9 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote High9 Quote  Post ReplyReply Direct Link To This Post Posted: 14 April 2010 at 8:33am
Hey Joelle, sorry I can't help but I know one of the woman in the due feb 2010 forum has a nephew with autism... I'll mention this to her for you ok!

And yay for your boy clapping and the other new things too!
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james View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote james Quote  Post ReplyReply Direct Link To This Post Posted: 14 April 2010 at 9:03am
i have to run out the door but my wee boy has dyspraxia a form of austim will post tomorrow big hugs hun
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Richie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Richie Quote  Post ReplyReply Direct Link To This Post Posted: 14 April 2010 at 1:55pm
Hi Joelle, as mentioned above by NKAP9, my wee Nephew (now aged 4 and a half) has an Autistic spectrum disorder. To be honest, I'm not too sure what type of Autism it is exactly but I know that it has been tough on my sister. He wasn't diagnosed until he was about 2 and half but we always thought there was something 'different' about him. He too was slow to start speaking, and even now he is quite difficult to understand. We all know what he is saying because we are used to certain words etc but to a stranger, they'd have no idea.
He is the most loving little boy and so much fun. To me, he is just a normal little boy except for the lack of speech.
The things my sister finds the most difficult are little things like telling people no when they try to give him a sticker or a stamp on his hand. To most kids, they'd LOVE that but it terrifies him. My sister finds that people tend to be quick to judge and look at her as if she is a mean mother not letting her son have a sticker.
He has come ahead in leaps and bounds since the birth of my wee daughter, now 7wks. We weren't sure how he'd react to her as he'd never met a newborn before but he is besotted. He has started recognising emotions for the first time ever. And he is full of kisses for her. Until she was born, he'd never kissed anyone but now he kisses anyone that crosses his path lol
He is started to put sentences together now. For example, if my wee baby starts crying he will say 'baby Isla is crying' or 'baby isla is sad'. That is a huge step for him.
Another thing he does is he is fanatical about straight lines. If we go into a toy store, he will rush in and straighten everything on the shelves. There daren't be a toy out of place, cause he will straighten it. Haha. Going to make a great merchandiser when he's older I reckon! His attention to detail is amazing so altho he is behind in some things, he is way ahead in so many other things.
I know it will be a huge life changing experience for you but it will get easier. I'm only speaking as an Aunty of an Autistic child so can't imagine what it is like as a parent but I know that my sister got thru those difficult first few months but now she does so well with him. It's just their way of life now and he is growing up to be a great little boy and I'm sure your wee one will be the same. There are a lot of people out there affected by Autism so there will be plenty of people for you to talk to.
Congrats on doing such a great job so far xo Take care
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Joelle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Joelle Quote  Post ReplyReply Direct Link To This Post Posted: 14 April 2010 at 9:09pm
He sounds gorgeous. The progress he's making, especially on the emotional side and putting words together is great

Kaiha too is very loving full of kisses (open mouth ones - yuk) and cuddles.

We always knew too that there was something different and we suspected when he was 13 months. Then a month later we were referred through the system due to his global development delay.

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Nothing View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nothing Quote  Post ReplyReply Direct Link To This Post Posted: 15 April 2010 at 7:10am
Hiya Joelle, sounds like you have a great boy there who loves life. I have no experience with Autism however my dad reakons he has a mild version of it and was telling me about this exercise that you can do which builds new pathways through your brain. It is supposed to be really good for hyperactive/ busy kids as well, and he said that it has made a difference to him.

Basically you put your left hand on your right ear lobe, your right hand on your left ear lobe (so your arms are crossed) then crouch down into a squatting position- as you do this you breath in a deep breath and then as you stand breath out. It looks rather comical, but worth a shot I reakon.

Good luck with everything

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Joelle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Joelle Quote  Post ReplyReply Direct Link To This Post Posted: 15 April 2010 at 1:13pm
Like the sound of the exercise once he's more sturdy on his feet I'll get him doing that.

I play an arm and leg crossing game with him which he enjoys!!

One of the reasons why crawling is good for brain development is to help form these pathways. We have seen improvement since he started crawling - he was 16 months when he started.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mucky_Tiger Quote  Post ReplyReply Direct Link To This Post Posted: 03 May 2010 at 9:57pm
i can reccomend getting a book on activities to do with autistic children. they mention activites to do that co-ordinate them and help with the different senses, that need helping along
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susieq View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susieq Quote  Post ReplyReply Direct Link To This Post Posted: 08 May 2010 at 9:37am
I have a 24 year old daughter who is globally developmentally delayed, operates in some areas as a 7 year old but others older, I suspect she has autistic traits but never officially diagonosed and she has epilepsy.
The only things she was diagnosed with were the epilepsy and the global developmental delay

She is TheKelly's sister,
Kelly is my oldest daughter who comes on ohbaby.
I am a member of the East and South Auckland special needs support group for Mums/ caregivers of children/adults with any special needs, and we have coffee and dessert evenings if there is anybody in East or South Auckland.
Joelle feel free to pm me
susie
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emmaohara View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote emmaohara Quote  Post ReplyReply Direct Link To This Post Posted: 11 May 2010 at 4:10pm
Hey Joelle

Goodness I haven't been on oh baby for soooo long...that happens when you have a busy nearly 4 year old autistic boy and a 2 year old bubbly handful 2 year old!

My son was diagnosed a year ago when he turned 3 he was not delayed with walking or motor skills etc but his speech was and he didn't get social interaction with other kids, his family and adults yes but not kids, so we knew something was different from around 2 and a half

We have gone down the biomedical approach , and saved up to see an autism specialist in Auckland called Dr Leila Masson, she was awesome , Ben is 100% times better than he was a year ago, he still is autistic but hes far calmer, speaking more a happier little man understanding things heaps more

Check her out online Dr Leila Masson.com i think!, Ben is now gluten and diary free ( a huge thing for most autistic kids) on a natural range of supplements, allsorts! Epson salts, the works! we sre stretched finacially but we see what it has done for him in a year so we are sticking to it as our thousands of other parents..it works!

If you want anymore information pm me

Emma :)


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Joelle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Joelle Quote  Post ReplyReply Direct Link To This Post Posted: 29 May 2010 at 11:21pm
I know what you mean about keeping busy and tied to the cooker!!! We too are doing the biomedical - GFCF with all the supplements. We have also gone down the route of RDI.

In some ways I suppose we were lucky because I strongly suspected and I had done a lot of research before the diagnosis and Leila's name kept cropping up. We were really lucky and got an appointment with her about 4 days after the diagnosis.

We have already dropped 17 points on the ATEC score which is absolutely great.

In fact we're due to see her again on Wednesday. We're having problems with the sleeping now but hopefully Leila can suggest something - we're getting the night time waking for a couple of hours about 3 times a week and then not going to sleep until very very late

Still its worth it for the improvement we are seeing.

Susieq - love the sound of coffee and dessert evenings. We haven't touch base with any other families yet but have every intention of doing so as I think its nice to have those connections.

CCC - what's the name of the book you recommend?

Edited by Joelle
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rorylex View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rorylex Quote  Post ReplyReply Direct Link To This Post Posted: 20 June 2010 at 2:36pm
hi there
im so glad someone has brought this topic up.
my son (who has just turned 5 on friday) was diagnosed with moderate to severe autism and global development delay, in april.
he is my oldest i also have an almost 4yr old, a 2yr old and a 5mth old.
samuels problems to start off with seemed like it was just speech, i had no idea his (then) behaviour was a problem he was my first child i just put it down to thats how kids are and maybe i was just a bad parent god knows everyone else seemed to think i was. but after i had him refered to speech theropy, he was then refered on to early intervention teacher, who then refered him to paeds 1st referal to paeds got lost so instead of waiting 6mths it was almost a yr before he saw paeds. who very quickly picked that samuel was autistic and to be honest i wasnt even shocked he is a 5yr old who as far as communication and social is concered is only at a 2yr old level. mobility wise how ever he is beyond his peers and i now have people more surprised at how well behaved he is for a child with such difficulties.
we had his needs accessment done yesterday and apparently i will proberbly get a care package that will allow me to pay someone i know to take for the day a bit like home help etc.
the problem we have is that we dont do family outings becoz with samuels unpredicable behaviour we dont know if he is going to have a good day or bad, on good days he can be fantastic however on bad days i often have to walk away.

Mummy to 4 boys
Samuel - 18.6.05
Rory - 15.7.06
Mason - 13.06.08
Emmett - 24.01.10
Baby #5 - cooking
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rorylex View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rorylex Quote  Post ReplyReply Direct Link To This Post Posted: 20 June 2010 at 2:44pm
we recently got samuel a puppy , i have to say she is the best, before we got here had was obsesed with bugs to the point he would be awake all night outside looking for them. now his new obsession(milly the puppy) goes to bed at night which leaves him with nothing to do but go to bed so the day before we got her we were lucky if the kids were asleep at 9:30pm for us that was an early night. but the day we brought milly home was followed by instant 8:30pm bedtime or earlier. which hasnt changed since.
samuel starts school in the new term, we applied for orrs funding and thankfully he was accepted and will be getting all the help he will need with schooling and all i have to worry about now is his uniform. he wont be going to the same school as the other boys will be as the school we are zoned for doesnt have the help he needs. only real bummer about that is had he not needed the help uniforms would have just been bought and used for the other boys, the school he is going to has alot more to there uniform than our zoned school does. which means when rory goes to school im going to be buying 2 seprate uniforms. but silver lining is that samuel gets to go to school at all.
Mummy to 4 boys
Samuel - 18.6.05
Rory - 15.7.06
Mason - 13.06.08
Emmett - 24.01.10
Baby #5 - cooking
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james View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote james Quote  Post ReplyReply Direct Link To This Post Posted: 20 June 2010 at 8:01pm
yay for getting all the help samuel needs james has just started school and we are waiting to see how he will go but everything is sett up for him
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Joelle View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Joelle Quote  Post ReplyReply Direct Link To This Post Posted: 27 August 2010 at 7:44pm
Hi Rorylex

Kaiha was diagnosed with the same, moderate to servere ASD and GDD. We have gone down the route of biomedical intervention along with a couple of other therapies. We took an ASD test that give us an idea of the severity. In 4 months his score has dropped by 25 points which takes him down the scale.

I have heard wonderful stories about the way dogs help autistic kids.

If you want any info on biomed to see if its right for you just pm me. I've also read loads of books and I have a bible - I read this before Kaiha was diagnosed and it just clicked for me and for the way Kaiha was. It's called the New Childhood Epidemics - ASD, ADHD, Allergies and Asthma by Kenneth Bock.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Aquarius Quote  Post ReplyReply Direct Link To This Post Posted: 28 August 2010 at 5:59pm
hi there,..
been awhile since i have been on here but thought i would drop in.
My 10yr old has autism and was diagnosed at 2 yrs old.
i have had 8 yrs of specialists, special ed, orrs funding, teacher aides, speech therapists, diet ideas, bad teachers, good teachers, main stream schooling, wrong decisions, right decisions, minor issues, MAJOR issues, tears, laughter and so on and so on

my family were lucky enough to be chosen recently to feature on a education dvd for families with a diagnosed child. it is called ASD plus- education for families...i think IDEA funded it.
the whole idea was to give a snapshot into a few yrs down the track and what to expect.

My advice....have strong support around you. its gonna be tough and emotional and you need someone there to pick you up each time.

remember the child you have now, will not be the child you have 5, 8 or 10 yrs down the track.
when Enson was 4 i thought he will NEVER cope with school....i was wrong.

slow and steady wins the race!!!! take it day by day, week by week. Dont sweat the small stuff and grow a thick skin.

diets and supplements caused major stress on us. not to mention financial strain. we ditched it all and have been fine.

he will ALWAYS be autistic...you cannot cure it. but he is learning to manage it and so can you.

lastly...choose your battles. if its a choice between brushing teeth or wearing a hat to bed then a hat to bed it is..haha

pm me anytime..

mum to mr 16 & mr 10
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susieq View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susieq Quote  Post ReplyReply Direct Link To This Post Posted: 02 September 2010 at 10:17am
hi rorylex,
we have a special needs support group for parents/cargegivers of special needs children/adults in East and South Auckland which covers Pkekohe, I can give you the names of a couple of mums with autistic children who live in Waiuku if you pm me
susie
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kiwigal Quote  Post ReplyReply Direct Link To This Post Posted: 06 September 2010 at 10:27pm

I have been dealing with this for 5.5 years years my son was diagnosed when he was 22 months. He started out on GF diet because it helped with his behaviour but since being at school he is completely on gluten and seems to be doing okay just his 7 year old attitude we have got at the moment.

He has come a long way as Aquarius has said a child now it is not the same child a year ago or 5 years ago they go so many milestones on achieving something like eating with a spoon. I think what my boy has achieved with the input from us and his therapists over the years is overwhelming of what he can do not what he can't do. 

He was feeding himself by the time he was 20 months and is great sleeper always has been 10-12 hours a night. He is toilet trained took us awhile but we got there in the end, loves when it is his birthday and having friends over he is just like one of them and has a big smile on his face when they sing happy birthday to him. He is still pretty much non-verbal with some sounds/words and repeating words because he has learnt to say it but doesn't understand the concept when to use it.

At the moment we are trying something out called neurofeedback where they do an EEG of his brain and find what his brain activity is doing.

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