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Forum LockedSilent reflux & lactose intol - formula?

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Bberry View Drop Down
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    Posted: 22 September 2009 at 1:43pm
Hoping someone can give me some advice based on their own experience with a reflux baby as I can't get through to anyone on the Karicare helpline and they don't return my calls!

My sixteen week old daughter is fully breastfed at the moment but I'd like to be able to give her the occasional bottle of formula. The problem is that she has silent reflux and when I eat dairy products it really seems to affect her, so I don't know what formula to buy. My Plunket nurse suggested soy (which is what I drink myself) but I've read some not very good things about soy formula for babies.

Should I try the De-Lact formula, Anti-Reflux or Soy? I'm reluctant to just pick one and buy a tin of it without being recommended one by someone in the know. And they don't seem to sell the little sample packs of these varieties. TIA.
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 22 September 2009 at 2:04pm
Hi, firstly I would steer clear of soy altogether, it's not good, just google it to find out why. (I can't remember exactly but something to do with hormones and it making babies grow boobs and them not even knowing the long term effects of using it, if you look on a tin of soy formula it even says to only use under medical supervision, dunno why they sell it at the supermarket really)

I don't think the de-lact will be ok either (although I haven't looked at one to see), it sounds like you have an allergy going on. Lactose intolerance and allergy to cows milk protein are two very different problems. Lactose intolerance is a deficiency in the enzyme needed to breakdown lactose and it is extremely rare in babies, usually starts in early 20s. Cow's milk protein allergy is when the immune system actually sees the protein as an invader and acts as it would to fight of a disease and you get stomach problems, ezcema, reflux and in really severe cases breathing problems and anaphalaxis.
Breast milk actually has far higher levels of lactose than cows milk, hence it being very rare for babies to have a problem with it.

You could try goats milk formula or sheeps milk formula, but they are quite similar to cows so she might still react or you could try karicare HA which is hydrogenised (which means the protein has been somewhat broken down, therefore her body may not recognise it and attack it) and I believe that they do a HA AR which is a hydrogenised one that is also thickened for reflux bubbas. The other options unfortunately are only available via script and need a paed to get authority for them a GP can't authorise it cos of how the funding is done.

If you ring 0800 NEOCATE and leave a message she is really good at ringing back and is very helpful. Neocate is one of the formulas you get on script but it's made by Karicare so she will know about the other formulas too and she might be able to send out some samples for you.

HTH

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Bberry View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bberry Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 1:28pm
Hi cuppatea, thanks for the advice. You seem very knowledgable on this subject! I finally got a call from the lady on the Karicare line and she recommended the HA formula too, so I'll buy a tin of that and see how we go. Thanks again.
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 2:12pm
I have two boys allergic to dairy. One is on neocate and I'm on a restricted diet as the youngest is still breastfed. I knew nothing about this stuff a couple of years ago. It's amazing what having kids teaches you

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KitKat View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote KitKat Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 8:11pm
I have gone around in circles on this subject- we have actually found Locks to be fine on S26. He has 1 scoop normal and 2 scoops AR- to help him with the spilling.
He seemed only to react to all Karicare, and Pepti jnr...

As cuppatea said though- sounds like a dairy sensitivity.... HA is a good start.

(warning- dont taste it! And dont worry bout the smell and colour of the nappies!!)

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Post Options Post Options   Thanks (0) Thanks(0)   Quote oscarboo Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 8:44pm
We had silent reflux here as well and also found out she was intolerant to normal formula - she started to refuse to feed and had bad ezcema. We are now on Neocate (script only) but did use the HA while waiting to get onto Neocate and it did start to help. Hopefully things improve for you soon
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mischeif Quote  Post ReplyReply Direct Link To This Post Posted: 28 September 2009 at 1:17pm
Bberry... Personally I think soy is fine for girls, but not for little boys I was told. (Soy is high in oestrogen the female hormone)I too have had a lot of problems with all 3 of my children when it comes to dairy. The oldest is 5yrs now, youngest 4mths. Some doctors tend to think you're talking a load of rubbish when you tell them it is a food product causing the problem... but my oldest was diagnosed with Cows milk protein intolerence in his 1st year but could tolerate Goats milk , no.2 also couldn't have dairy and had on going ear infections for the 5mths he was on Goats milk finally started sceaming and refusing it. I put him on rice milk at 1 and never had another ear infection!! (like cuppatea said they have some of the same proteins so many who cannot tolerate cows milk cannot tolerate Goats either) #3 is worse off again, dairy soy egg (Possibly Gluten like #2) but is now on Neocate - prescribed through the Paeds. Apparently, so I found out this time round, Soy too has some of the similar proteins so the formula I have her on is totally Hypoallergenic (over $100 tin but VERY highly subsidised). I have not had any of my children on Soy as my 1st 2 were boys and #3 cannot tolerate soy either. (Amazing what can pass through your breast milk - We do not make very good filters do we )
I am off all these foods myself too as I am still breast feeding and am expressing as much as possible (back at wrk 40hrs wk) I would suggest if you haven't already eliminated dairy from your own diet, do this and see if bubs shows obvious signs of improvement. There is no real test for cows milk protein intolerence so elimination and re introduction is the best test! I hope you get this sorted soon if you haven't already. It is a great weight off when you know exactly what they can and can't have!!!

Is it silent reflux - they thought that at 1st with my lil girl, had her on losec for a few days but I took her off and went through the elimination process and wah lah found the problem!! But I guess its easier 3rd time round to know what you are looking for

Take care

Edited by Mischeif
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mischeif Quote  Post ReplyReply Direct Link To This Post Posted: 28 September 2009 at 1:36pm
I cannot say all because I don't know... but alot of formulas especially the specialty ones, do say use only under medical supervision. ie Soy, as cuppatea said, but so do others including the one I am using.. Rice milk also says not suitable for children under 2 but that is what was recommended for my little ones at 1yr.
Its all just so people do think about use and Just to cover themselves I think!!
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cuppatea View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 28 September 2009 at 1:36pm
My boy was skin prick tested for dairy allergy (it's not an intolerance, they are two very different things that are commonly mixed up) but under 12 months you can get false negative results.
Yep if they are allergic to dairy and you introduce soy before 12 months you can cause them to become allergic to that as well and personally I wouldn't give it to a girl either, they aren't suppose to have all those hormones when they are a baby so I'm sure it still wouldn't be doing much good and there are no long term studies on it so no one knows either way.

I restricted my diet as well but as Kyle has got older he seems to tolerate me eating more, I suppose cos he isn't drinking as much milk as he was before being on solids.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bberry Quote  Post ReplyReply Direct Link To This Post Posted: 28 September 2009 at 5:09pm
Hi guys, thanks for all your replies. I've bought a tin of the HA formula but we haven't tried it yet. I'm still breastfeeding, I just wanted the option of giving her a bottle of formula occasionally, especially since we are going on holiday soon and staying with family and so DH and I might be able to have a night out on our own!

Mischeif, it is silent reflux (she's on Ranitidine for it) and I came to the conclusion that she is sensitive to dairy by cutting it out of my diet upon the advice of an osteopath we saw a couple of times. I've had dairy a few times since and have noticed that anywhere from 6 - 24 hours later she is really unsettled (to the point of screaming in pain at times) and alot more refluxy. I mentioned this to my GP and he basically told me that reintroducing it a couple of times was not enough of a test and I should try it 20 - 30 times before I can be sure. I'm not prepared to put my baby (or myself!) through that though!

I drink soy milk instead of cows milk. I hope me drinking soy doesn't affect her through my breastmilk? The extra hormones etc? Does anyone have any thoughts on this? Also, despite me switching to soy and cutting all dairy products from my diet, my wee girl still often has green poos. In fact more often than not they are green with the occasional yellowish one. Anyone else experienced this?

Edited by Bberry
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Post Options Post Options   Thanks (0) Thanks(0)   Quote busyissy Quote  Post ReplyReply Direct Link To This Post Posted: 28 September 2009 at 7:05pm
I was told that soy is not appropriate for under 1's. And also a lot of children who have diary intolerances also have a soy intolerance so worth avoiding until later. Our little girl is lactose and soy intolerant and we use Karicare De-lact with the karicare food thickner to help with her reflux.
What formula you choose depends on what your baby is reacting to in the diary whether it is the lactose or the cow's milk protein. If it is the protein then Karicare also do a HA AR which is partially hydrolysed (proteins been changed) and anti-reflux. You can't buy it in the supermarket tho and have to get it direct from biolab who are the distributors of karicare in NZ. FYI - all formula is cheaper direct from biolab. The de-lact we use is like $15 cheaper from biolab than the supermarket.

Re; the screaming pain when you are on diary, we had that with Isobelle and it turned out to be lactose intolerance. YOu can get a simple stool test done by your gp to test for it.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 28 September 2009 at 8:28pm
You could swap to rice milk instead. I still don't let Spencer have too much soy now and I didn't drink it when I had cut dairy out, I just went without. I tried rice milk in tea, well I say try, I put it in the tea took one look at it and decided it would be better off tipped down the sink!

With the green poos they can sometimes get that from too much foremilk and that can happen either if you have a huge over supply problem or if the baby snack feeds or if you swap sides before baby has fully drained one side properly. My boy was really bad at drinking the foremilk then being too lazy to work for the hindmilk so we had this problem a bit. I found giving him the left side at the start of two feeds and then the right at the start of the next two feeds and so on helped rather than swapping at each feed. (hope that makes sense). I would also express some of the foremilk off if he had gone a while longer than usual between feeds as my boobs are a little crazy and make milk like there is no tomorrow.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mischeif Quote  Post ReplyReply Direct Link To This Post Posted: 29 September 2009 at 11:29am
Bberry sounds like she has a delayed onset reaction to dairy. But I totally hear ya on the not wanting to put bubs or yourself through the trying it THAT MANY times, thats just crazy.

Ya know people say so many things about the different formulas/allergies/intolerences (Cuppatea sorry your child may have an allergy but my children apparently have an intolerence (1st child told by Paeds Cows milk protein intolerence, and yes I am definiately fully aware there is a big difference between the two - if it is a quick onset reaction it tends to show up on the skin allergy test, but my kiddies tend to have the delayed onset reaction like Bberry is talking about)

It is soooo difficult for people when the specialists say such different things -

Bberry you just need to do what ever it is your instincts tell you and what works for you. Bubs and you both have to be happy I have had a dilemma with doctors too, so this time I went to a private Paed. But to be honest the Paed at public 1st time was just awesome and really knew alot about my childs condition. It is really who you get and what experience they have had/come accross.

Listen to what people say but take on board what you think sounds right for you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cuppatea Quote  Post ReplyReply Direct Link To This Post Posted: 29 September 2009 at 1:38pm
Yeah Spencer now has slow onset, he no longer reacts to the skin prick test and it takes about 24 hours for it to show up when he eats something he shouldn't. Still tests positive to peanuts though, he's never eaten one of those so don't know what will happen if he does.

I've never heard of cow's milk protein intolerance, only lactose intolerance or cow's milk protein allergy. Yep is confusing when we are all given differing advice.

Yeah I wouldn't want to test it that many times either, sounds like a crazy thing to say.

We are also under a private paed. If you are in CHCH then I can pass his details on if you ever want to go that route. You have to see a paed if you want to get either the pepti or the neocate as a GP can't get the authority number (which gets you the subsidy) and I have no idea what the waiting list is to go on the public system, I dread to think though.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote busyissy Quote  Post ReplyReply Direct Link To This Post Posted: 30 September 2009 at 8:16pm
I definately agree with going with your instinct. I was so sure that Isobelle was lactose intolerant and all the doctors and specialists were telling me she wasn't. It took 8 mths of constant screaming and I had just had enough, I went out and bought the de-lact formula and within 3 days she was a different baby.
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