FPIES anyone else dealing with it?

hi i have a 22 month old with severe FPIES and also neutropenia and is feed mostly thru a mickey and wondered is anyone else was dealing with the hurdles of FPIES

I'm not dealing with anything that is that severe but I am dealing with food intolerances. C has reflux & from some of the fruits & vege's I've trialled him on intolerances to some higher salicylate vegeables. They go through him in about a 12 hour period, coming out looking like they went in & also the burning pooh that you were talking about in the other thread. A has food intolerances where they send her hypo & regress her brain function ie reading capabilities.