Wheat or Gluten or what can be?

Had anyone experience this?

When my DD was tested positive for wheat and soy allergy, I took her off wheat and soy to see if did any benefit. Meanwhile my DS2 show badly eczema flare up to Soy when I introduced him to soy to coming off breastfeeding at 14months, I took him off soy too. Having found harder to get bread without soy and most soy free bread are wheat free too. So it was easy for me to feed both of them on wheat and soy free bread. It was during that 2 weeks, I notice the benefits to DS2 to have no wheat, his eczema clearing up more.
Since then DS2 and DD have been on wheat and soy free diet as well as their usual allergies. Saw paed dr last week, she want to know why I took him off wheat and I explained his eczema was clearing up. She told me there is no allergy (I did actually thought it is intolerance, not allergy!), order him back onto wheat and gave me stronger steriod instead (!!)
Honestly I gave in as I was in state and getting fed up. Since both children went back on wheat, they have been having diarrhoea - very running and explosive poo, that can leaked out of DS2's nappy and very smelly, then pin dropped that was reasons why I did continue no wheat diet for both of them after 2 weeks trial. I honestly can't remember when did last times my DS had good poo since he was on solids before took him off wheat.
Today they had couscous with sundried tomatoes for lunch, four hours later both of them got diarrhoea espcially DS2 just done it on the carpet, just like explosive pop out onto carpet without warning, had to shower him again. DD's poo was also very running in the toilet....
Now is that wheat intolerance or is that gluten intolerance or what do you think??
Thank you, I am thinking about taking them to GP tomorrow but I want to be prepare with some suggestion to GP.

It certainly sounds like a gluten intolerance to me, which can't be diagnosed with the usual allergy tests. 

From what I understand you can get a wheat allergy but not a wheat intolerance and you can have a gluten intolerance (coeliac disease) but not a gluten allergy.  I got this info from the MFD which is compiled by Auckland hospital nutrition services and NZFSA.

It's up to you what to do.  There are 2 types of blood test that can be done but neither are definitive.  The most common measures the gliadin in the blood and can tell you if your child is likely to be coeliac but false negatives are common (I got a negative result with this test shortly before I was diagnosed), the other newer test is a gene test, it doesn't diagnose coeliacs but can tell you if your child carries the gene, if they don't then there's no way they have or can ever develop coeliacs but if they do then the chances of them having it now given their symptoms is very likely.  If you want them to be properly diagnosed with an intolerance to gluten you need to regularly feed them gluten until at least 4yo when there will be enough damage to their stomachs for a endoscopy and biopsy to reveal the intolerance.  

Alternatively (and this is my preferred option) you remove them both from gluten as you'd already done and don't reintroduce it even if a paed who doesn't know your kids as well as you do tells you to.

Good luck with the doc I hope he/she is more accepting that you know your children and know when something's not right with them.

Edited by MrsMojo

Thank you for your help.
Both of them did had allergy test in september on wheat & Soy via skin prick, DD showed both positive but not "big enough" to show serious allergy while DS2 showed both negative. So either he has false result or more toward gluten intolerance?
And is poss for child to be allergic to wheat as well as gluten intolerance? (thinking about DD)
Can GP authorise to do blood test on Gluten, instead of pead dr?


Edited by soph

Thank you very much for your help

Great.  Sounds like you have a very good GP.

update: took DS2 to medlab for blood taken on monday then today I took DS1 to same GP for treatment of his skin infection.
I told GP that I have took DS2 to medlab for blood test and he told he know because got some results back quick.
Because he knew I used to work in medical lab, he was very careful to tell me some results
All I know so far IgG, Ferritin, B12F tests not back yet, FBC is normal but LFTs is raised abnormal (not sure which ones as there are 4 of them in LFTs) which require further tests in new year (so it is not urgent, so that mean not serious, phew).
Will see him again in new year...
Merry Christmas and Happy New Year from all of us! x

I'm not sure what ALP is but it's all sounding promising in terms of figuring how who is intolerant to what. (I presume you made sure DS1 (neg for coeliac disease - did I get the right child?) was eating a regular amount of gluten at the time of and leading up to the blood test.)