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dear_albie 
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Joined: 07 July 2012
Points: 2
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 Posted: 20 July 2012 at 9:03pm |
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The operation has been put off again - the third time. Hard work this waiting as I really feel like our life is on hold till we get on the other side of it. Do any of you keep blogs of your lil' ones journey? Ours is http://mrwrigglesworth.wordpress.com
Anyone else due at Starship anytime soon?
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Nikki
Senior Member
Joined: 02 October 2003
Location: West Auckland
Points: 2279
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Posted: 22 July 2012 at 8:22pm |
Hi dear_albie .... are you on facebook? We have a group on there now where most of us post, so if you want to be added add me as a friend and I'll add you to the group( Nikki Davy ) 
And may be best to send a message so I know its you!
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DS (5yrs) and DD (3yrs)
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aims_one
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Joined: 27 March 2012
Points: 10
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Posted: 22 July 2012 at 8:32pm |
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Nikki - would you be able to tell me the facebook page too?
Thanks
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Amy
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Nikki
Senior Member
Joined: 02 October 2003
Location: West Auckland
Points: 2279
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Posted: 22 July 2012 at 9:48pm |
Yep, send me a friend request and I can add you (you need to be friends with someone on the page for them to add you).
Assuming you're Sarah dear_albie? 
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DS (5yrs) and DD (3yrs)
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Nikki
Senior Member
Joined: 02 October 2003
Location: West Auckland
Points: 2279
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Posted: 22 July 2012 at 9:54pm |
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Added you Sarah :)
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DS (5yrs) and DD (3yrs)
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aims_one
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Joined: 27 March 2012
Points: 10
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Posted: 22 July 2012 at 10:00pm |
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Cheers Nikki. Request done.
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Amy
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Nikki
Senior Member
Joined: 02 October 2003
Location: West Auckland
Points: 2279
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Posted: 22 July 2012 at 10:02pm |
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And Amy :)
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DS (5yrs) and DD (3yrs)
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worm28
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Joined: 16 November 2009
Points: 2
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Posted: 23 July 2012 at 1:57pm |
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hi,
could i be added to the group please, my girl has a asd
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Nikki
Senior Member
Joined: 02 October 2003
Location: West Auckland
Points: 2279
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Posted: 25 July 2012 at 8:49pm |
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Sure, send me a friend request and I will add you.
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DS (5yrs) and DD (3yrs)
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Keleho
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Joined: 27 February 2010
Points: 1011
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Posted: 02 October 2013 at 11:04pm |
Does anyone still come in here? We found out last week that our #3 has Tetralogy of Fallot. Heading to Auckland for a CTG in a couple of weeks to determine the extent and talk over what happens next with the drs, so early days and rather daunting at the moment. Would love to join the facebook group
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Limochick
Senior Member
Joined: 29 September 2008
Location: Mount Maunganui
Points: 3621
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Posted: 03 October 2013 at 8:17am |
Hi Keleho, I'm so sorry to hear about your sons diagnosis. How old is he?? I will send you a pm on here so then you can join us
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Keleho
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Joined: 27 February 2010
Points: 1011
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Posted: 03 October 2013 at 9:28am |
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Thanks Limochick!
Baby (he or she, we kept it a surprise :P ) is still in my belly at the moment, Im just shy of 21 weeks (found out about things last week at the anatomy scan).
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rheenz1
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Joined: 05 October 2013
Points: 1
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Posted: 30 October 2013 at 3:43pm |
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Hi, we have a little boy, about to turn 1 that has pulmonary artresia (sp), he's had two major heart surgeries and due to have his fontarn done around 3 years of age. Growing okay, and doing well so far. Would love to hear from other mums in the same/similar situation. Thanks :)
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aims_one
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Joined: 27 March 2012
Points: 10
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Posted: 30 October 2013 at 3:58pm |
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Hi Rheenz1. I don't think people use this forum much now as there is a closed group Facebook page instead. Everyone on there is really supportive and great for advice/info. Let me know if you want to join. I'd just need to temporarily facebook friend you, and then can add to the group.
Cheers
Amy
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Amy
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Heart Children roll call
