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inwaiting 
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Joined: 12 March 2011
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 Posted: 16 July 2013 at 9:50pm |
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We were lucky enough to have all 3 cycles publicly funded. We were under Richard Fisher in Auckland. He was great. It was him that made the decision for us to have the 3rd cycle paid for because there were no embryos up to implanting stage in the 2nd cycle.
In regards to funding, there is funding for a certain number of PGD cycles per year, and a couple of years ago not all were used, I guess because it still is relatively new and not many couples knowing about it yet. Worth a try asking though, what's the worst that could happen...?
When we had an appointment in Hamilton before our last FET, that was one thing the drs said, that they were having more success with FETs than they were with fresh transfers.
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daros
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Joined: 30 January 2013
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Posted: 16 July 2013 at 10:27pm |
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Hi inwaiting,
Thanks for the infos. You are right. We should ask for this. I thought for PGD, the two cycles are not going to be enough because we naturally will lose embryos for testing. I like Dr Fisher he is awesome. I will send him an email tomorrow and ask for an appointment. Will also ask Fertility plus to consider that as well. OMG iam so happy to have found you. I too dreaming of having a baby free from the disease, DH was quite adamant that the disease should stop with him but the whole pgd ivf process are so stressful and so expensive.
Do Dr Fisher do a clinical overwrite for you to get third funding or is it something that you asked for it?
Thanks so much for your help
Xxx
Rose
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inwaiting
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Posted: 18 July 2013 at 2:00pm |
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It was Richard that said we could have the 3rd cycle funded as there were no embryos up to implanting stage from the 2nd cycle. We found him to be amazing and so professional. The nurses we had in Auckland were also great. We couldn't have asked for better care.
We are off to see our specialist tomorrow, so that should be cool. We decided to go under a specialist with this pregnancy due to everything we have been through. Thankfully he is also great and makes us feel very comfortable.
We both had the thought that things will work out for us one day, and are lucky that this is our time. It's been a long emotionally hard process but hopefully once this baby is born it will all be worth it. All family and friends are so happy for us which is good, them knowing the long road that we have taken to get to this stage. From our first appointment in Hamilton till now has been 4 years. I didn't find the whole thing too difficult physically as I think I prepared myself for it to be worse than it was, but it is definitely hard emotionally which only those that have been through it will ever understand.
Do you have some close support people that you can talk to?
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daros
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Joined: 30 January 2013
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Posted: 18 July 2013 at 5:56pm |
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Hi inwaiting,
Thanks for your reply. We will try to discuss this with our FS the next time we see her. Iam so happy that you have received a great care from the specialist.
I have some close friends who knew what we do. DH family are not supportive of this so we keep it ourselve and all my family lives overseas and again they shouldnt know about the disease it just complex family arrangement that we have. But i do have good support from lots of wonderful ladies (other forum) and yoi are the first one i found so far that are doing PGD/IVF, thats why iam so grateful. Its hard to explain about ivf leave alone with pgd, its such a complicated process.
In our case, the child if having the disease it could be mild, it tend to be mild with the girls especially and we have twin. Nephews free from the condition. Other siblings are also mild only DH and his dad was a in a severe category. The blessing about this disease is that they are normally highly intelligent and sometime quite an autistic ( in a good way). We are meeting with the orthopaedic surgeon soon to discuss about the future surgery for DH to remove more bones and also what they can do in terms of bone lengthening and straightening for our child. The procedure is quite common in the USA but not many surgeon able to do it over here in NZ.
Do you know the sex of your baby yet?
Best regards
Rose
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inwaiting
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Posted: 18 July 2013 at 8:08pm |
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Hi Rose,
We have no idea what we are having and don't plan to find out, jut leave it as a surprise.
If we do find out before hand though we aren't too worried. We'll just take what we are given! We both have our own opinions of what we think it is, and we both have the same idea.
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catie
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Joined: 19 December 2006
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Posted: 20 August 2013 at 10:05am |
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Hi
just thought I'd let you know that Fertility NZ (which is a charity that provides information and support for people with fertility issues) has support groups in most NZ cities, as well as lots of info on their website: http://www.fertilitynz.org.nz/
good luck
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Rinky
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Joined: 16 October 2014
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Posted: 16 October 2014 at 3:52pm |
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Hi Rose
I am new to this forum but it looks like it will be a good support to me while I am going through this IVF treatment and don't have much support.
I would like to know more about IVF acupuncture, IVF massage and IVF yoga. Could you please post more details where they are available and roughly how much it costs?
I will be back with my story of my long IVF journey.
Cheers
Rinky
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Ivf buddy in Auckland& my ivf story