Neocate

Hi all,
We are going to go on Neocate. I suspect Jackson has a milk protein intolerance. Those of you who know my story will know all my reasoning behind it. We've seen a significant improvement on an HA formula, but by the end of the day Jackson is unhappy again. Luckily my doc agrees with me and is arranging everything through the paed (who I still haven't seen yet!!).

Can people tell me about their experiences with Neocate. I have read about it on the web, but want to hear from people who have tried it. (For instance, the web says it tastes great, but I have heard otherwise).

What are the pros and cons? Are there any side-effects I should be aware of?

Thanks!

Hi. Spencer went onto neocate at 4.5 months. The only trouble I had was getting him to drink it. It doesn't taste great it tastes like raw potato. In fact we actually refer to it as his potato juice

To get him to drink it we mixed it with the standard formula and over a week increased the amount of neocate until he was totally on it and since then haven't had a problem. Just when you make it up make the two formulas separate and then pour into the same bottle. I didn't know that and caused him to projectile vomit a whole feed up.
If mixing the two together doesn't work then you can try adding a bit of vanilla essence and then weaning that out, or the other suggestion was golden syrup and weaning that out.
Any problems with it phone 0800 NEOCATE and talk to the nutricianist, she was awesome when I spoke to her. You might need to leave a message for her to ring you back as I think she works alone.

Once on it he was like a different baby, certainly didn't cause any problems. His back arching and screaming at feeds stopped immediately and his ezcema started clearing up and was gone by 2 weeks. He also started drinking much more at each feed and started sleeping through the night. He still spilled a lot until 7 months, but I think he was just a spilly baby as he was never distressed about it after being on the neocate.
Spencer is still on it now, he just went onto the toddler one around 16 months old, and he's definitely thriving.

The only downside I can think of is that it can only be made up for an hour and then has to be thrown away. But I just use to take out more feeds than I knew I would need, and would take water in bottles and had one of those divider pot things for the formula or would take the tin out as the tins are small enough to fit in a nappy bag.

Hope it makes him feel a lot better, i've never heard of anyone having any problems or side affects from it.

no advice on the neocate, but just wanted to say that it is great that your GP has taken some action finally. Did the video you made of Jack son help to convince him?

All the best for the transfer onto neocate. Hope it is all good from here on.

Yep, once weaned onto it he has gulped it down ever since without any trouble.

I would make up 210ml and then just let him drink however much he likes. Those feeding amounts are only a guideline, some will need more and some less.

Is good you got the number that quickly, I had to wait a couple of weeks for mine and that was after paying to see a paed privately!

No idea, maybe it has more calories per ml than the other formulas.
Maybe make up 210ml for a few days and then go down to 180ml if he isn't drinking more than that at any of the feeds. Just it's better for them to have some left in the bottle than to guzzle it all and be after more.

Spencer was never on HA he was just on the normal formula but once on the neocate he went drinking about 100ml a feed to about 160ml at each feed. He also soon after starting sleeping through the night which was a lovely bonus.

Spencer never had any trouble putting on weight, although he might of if he had been on the standard formula for a while. He gained weight fine on the boob and then when weaned it was only a couple of weeks before we found out the formula was the problem and got him switched over onto the neocate.

Try giving 0800 NEOCATE a ring and have a chat with the nutricianist, she will probably now about the weight gains and about the amount he is drinking etc. She might be able to give you some more advice until you see the paed next week as well.

Hope you get it sorted soon.

Oh and Kyle looks like he is getting his bottom teeth, I thought about Jackson when I saw them.

If I remember correctly it would have been about 6 feeds a day.

Yeah Kyle seems to have the hump, at least I have something to explain him being a bit unsettled. Not sure if they are gonna come through or just annoy him by moving up and down for months before coming through.