Molar/Partial Molar Pregnancy

Hi ladies,

I would love to hear from anyone else who is unfortunately going through this or has gone through this in the past. There is not a lot of info or support out there for us so I thought this might be a good place to talk about it.

We lost out baby in September 2011 due to a partial molar pregnancy. It was also a missed miscarriage so we were devastated when we went for our 12 week scan to learn she had died at around 8 weeks, after seeing her alive and well on a scan at 7w5d. It was out first baby. I had a D&C which went well but a week later had problems and ended up in hospital. A scan revealed I had retained products so had a second D&C done. The doctors told us that the genetic tests done showed PMP. We also found out it was a little girl. Ever since we found out I have been having weekly blood tests to monitor my HCG levels. This Friday will be 4 months worth of weekly blood tests. I would have also been 32 weeks along It's so scary knowing that what killed my baby could also kill me. All we wanted was to start a family, not only did we have to cope with the loss of our baby but now I face the prospect that I may develop cancer.

My levels have been very slow at dropping and have still not reached zero. Did any one elses take a long time? Has anyone had to have Methotrexate? Is anyone else now in the waiting period? (I have been given a 12 month wait time) Has anyone gotten pregnant before they were advised to by their doctor?

Any advice or just your experiences would be appreciated.

to anyone who has lost a precious angel x

i'm so sorry to hear what you are going through.
I don't have any knowledge on PMP or molar pregnancy but just wanted to give you a


Edited by pikelets

Hi everyone,

I went back to the hospital on Thursday and finally some good news! They did all the xrays ansd ultrasounds on me again and they all came back clear. I still haven't got a zero tumour hcg (been stuck at 1 for 5 weeks) but they think it is just a false positive so.... they are happy that I am going to be fine (no cancer) and 4 1/2 months of weekly blood tests later I can now go to monthly blood tests (thank goodness because my poor arms can't take much more). They will monitor me for 6 months (instead of the 12 months I was initially told) and if all is ok then we can TTC again!!!! So exciting!!!!

Edited by Moobear

That's lovely news to hear! Yay. And good luck with the Rey of your journey to motherhood.

Hi Oscar,
Thanks for your post. Sorry to hear that you had to go through what I am currently experiencing . I am so happy to hear that you have a beautiful baby now. It really gives me hope to hear that people do get through this and go on to have healthy babies. The hardest part for me was obviously the loss of our baby, but then not being able to move on because of the constant testing and monitoring and then the threat of cancer constantly in the back of your mind. Each weekly blood test was a constant reminder of my miscarriage . Of course then being told that we can not TTC for at least 6 months to 1 year was heart breaking.   

Oscar do you mind me asking how long they said that you should wait to TTC once your levels reached zero?

Thanks for your support Pepi-bebe and Pikelets

Edited by Moobear

Hi thesaff,

Thanks for your post
Congratulations on your two little angels, they look beautiful! We too are thinking of being a little bit naughty and ignoring the doctors advice. I have done a lot of research and found the chances of it coming back are almost zero and I totally agree with you about weighing up the depression thing with the risk of anything happening.

It helps hearing positive stories from other ladies who have gone through this so thanks so much! You give me hope

Hi KerryJ,

I am so sorry to hear what you are going through Life is so cruel sometimes. I was told the chances of it increasing after it has reached zero is practically nil but that it does happen in rare cases. This has given me a bit of a reality check.

As I am sure you have been told the cure rate is almost 100%. You will be ok hun, just stay strong and surround yourself with lots of supportive people. You can PM me anytime if you want to talk

My heart goes out to you and your family. Best of luck with everything. Please let me know how things go.

Moobear and KerryJ, just wanted to give you a hug and tell you a (sort of) positive story.

My eldest sister had a molar pregnancy, discovered at 5 months. She felt that something was wrong but her doctor basically told her not to be silly. Anyway, she went on to have two more babies, who are now aged 31 and 29, and are both pregnant themselves, and my sister has had no related health problems whatsoever.

Hello everybody,

I'm from Malaysia and hopefully I had a warm welcome into this forum coz I'm not Newzealander..

Actually I am now searching for molar pregnancy as I am one of the patient who just gone through this 'wonderful' challenge since I had my first D&C due to partial molar pregnancy on 19 December 2012. Unluckily,I had my second D&C on 13 January 2012 due to some molar cells still left behind (also heavy bleeding after the first one)..my beta Hcg reading for 8 weeks since the 1st D&C, went down from 320,0000 to 2,000 now but really slow on decreasing to normal according to the chart given by Gynae each time during check ups..

Eventually,the Gynae recommended me to do the chemo treatment aka known as Methotrexate (low dose as I am in low risk scorer) next week as she quite worried I might have persistent GTD if I'm not being treated well.In addition, those chemo is the only alternative way which will make me recover faster and able to conceive again for normal pregnancy in the future. I will be treated in daily care unit for Methotrexate on 1,3,5,7 and folinic acid on 2,4,6,8,alternately then a week after resting with checking blood results..At first,I am scared to death n couldn't believe with what I will go through but when my Gynae told that it is only low dosage chemo and not to worry much I will be just fine..I felt much more confidence and I keep telling myself to be strong for any upcomings tht for my own good..

Wish me luck and I welcome any of you will share their experience on sore mouth and hair falls during the treatment..Was it so bad? How long should I wait for another pregnancy? Thanks a million..Hope to hear from you guys sooner.. -Sal-