Cow’s milk protein allergy
Printed From: OHbaby!
Category: Support
Forum Name: Reflux and Allergy Support
Forum Description: Struggling with a refluxy baby? Looking for tips to deal with allergies? Share your experiences here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=15853
Printed Date: 24 November 2024 at 7:39pm
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Topic: Cow’s milk protein allergy
Posted By: ElfsMum
Subject: Cow’s milk protein allergy
Date Posted: 31 March 2008 at 4:23pm
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Well....my boy (check out thread in first babies if you want the full story) is allergic to cows milk protein..so it's off to the specialist.and Neocate for us..he said 'modern technology is wonderful, you got some good advice'
lol meaning the Plunket advice was crap(dangerous even) as lactose free would have been crap(thanks Marisa and Emma for helping me) so Neocate and allergy specialist it is.. *sigh* i hardly drank any milk but had lots of cheese..would this mean next pregnancy i need to avoid these things..he said it could have been part of the reason i was having such trouble with him feeding.. ------------- Mum to two amazing boys! |
Replies:
Posted By: arohanui
Date Posted: 31 March 2008 at 4:35pm
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KA, sucks about the allergy but it's great you've got the diagnosis and know what to do to have a happy lil boy. Hope things go smoothly for you from here.
Eeek, I drank SO much milk when I was preggie. Made me feel less sick, made heartburn a bit less, and I craved cold milos  Can lots of dairy products in pregnancy possibly make bubba develop an allergy? I didn't know that...------------- Mama to DS1 (5 years), DS2 (3 years) and... http://alterna-tickers.com" rel="nofollow"> 
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Posted By: ElfsMum
Date Posted: 31 March 2008 at 4:35pm
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so i asked him if i could give him more neocate (as hes having 120) which is the level for 3 month old sand he said yes keep going..so does that means its ok to give him 150mls(5 scoops?) he finishes the 120 bottles every time? and did anyones child grow out of this problem..im assuming cause it was so quick and bad maybe he wont:( still at least dont have to worry bout real food for a while..though i suspect they will tell me to delay till 6 months:( ------------- Mum to two amazing boys! |
Posted By: cuppatea
Date Posted: 31 March 2008 at 5:04pm
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I don't think having cow's milk during pregnancy can cause an allergy, but if you have a history of allergies in your family then there is a school of thought that says avoiding these things can help as they don't get exposed to it inutero, which is why they sometimes advice you to avoid peanuts during pregnancy. However if there is no history of allergies then they actually think it is better to not avoid these things
We had no history of allergies so it caught us a bit by surprise that Spencer has them, oh well nothing we can do but trudge on with it. yeah Kawwww give him as much as he will drink, they are only guidelines on the tins not exactly what he should be having. The only way you will overfeed is misreading hungry signs for tired signs or not making the formula up correctly. They do normally stop when they are full. ------------- 
 
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Posted By: ElfsMum
Date Posted: 31 March 2008 at 5:10pm
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doc away till april 15th:( gonna be expensive till then! lucky hes on our insurance.we put him on it before 1 month.. he will be covered wont he even though he was obviously born with it... he didnt develop it till now.. ? ------------- Mum to two amazing boys! |
Posted By: ElfsMum
Date Posted: 31 March 2008 at 5:12pm
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no arohanui i don think it could..i had hardly any..i do know they recommend not to have any if you have child with allergies though.. ditto what cuppatea said if you dont have history better to have it..
awesome thanks cuppatea.. appointment not till april 15th and we cant keep using yours!! ------------- Mum to two amazing boys! |
Posted By: cuppatea
Date Posted: 31 March 2008 at 5:13pm
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Could you not go see another paed instead? We didn't have a referal when we saw our one, I just phoned them up and made an appointment. Screw paying full price for the tins.
As far as I know they will be insured but probably worth checking your policy or phoning and asking them to make sure. -------------
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Posted By: ElfsMum
Date Posted: 31 March 2008 at 6:16pm
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yeah i will.. nope we got no option...they even made the appointment for us. the only thing they asked was were we happy to go private. maybe this is why milk made me sick in pregnancy?:) ------------- Mum to two amazing boys! |
Posted By: Maya
Date Posted: 31 March 2008 at 8:06pm
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Your insurance won't cover the cost of the formula as it's a food product not a drug, even tho it's on the Pharmac list - believe me I tried lol! Insurance will cover seeing a paed in private practise tho.
There's no evidence to suggest that consumption of dairy during pregnancy causes/increases the risk of cows milk protein allergy. I did an allergy prevention course with Dr Allen Liang when I was preg with the gremlins and he doesn't recommend avoiding anything except peanuts during pregnancy. Breastfeeding is a different story, he advocates a dairy free diet while breastfeeding but only if one or other parent, or a sibling of the child, have cows milk allergy. He doesn't recommend it as a "just in case" option as it has to be done under strict dietician supervision to ensure that you have an adequate intake of vitamins and minerals. He does advise REDUCING the dairy intake in the third tri, not as a preventative, but just so that iit isn't so much of a shock to the system when you go dairy free after delivery. He had some other recommendations too, I posted them in the EBC Allergy section. I followed them with the gremlins and yet they still had shocking allergy problems, so am being a bit more relaxed this time round. Re: growing out of it, the severity of the reaction does have an impact on how likely a child is to outgrow an allergy, but THE most important thing is observing a strictly allergen free (so in Ethan's case, milk free) diet. The fewer exposures the child has, the more chance is they will outgrow their allergy. Regular allergy testing will be able to determine whether an allergy is lessening in severity. 95% of children with allergies do outgrow them by age 5. -------------  Maya Grace (28/02/03)
 (02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: ElfsMum
Date Posted: 31 March 2008 at 9:28pm
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no i mean insurance covering the paed visit.. ------------- Mum to two amazing boys! |
Posted By: ElfsMum
Date Posted: 31 March 2008 at 9:30pm
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what EBC allergy section?thanks for the info.. doc was impressed with what i already knew thanks to you guys:) ------------- Mum to two amazing boys! |
Posted By: Maya
Date Posted: 01 April 2008 at 10:55am
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www.everybody.co.nz go to the Bulletin Boards section and then scroll down to Allergies. The thread is near the top coz I bumped it up for someone else last week.
I honestly think some of us allergy mums know more than a lot of health professionals, there's a huge gap in knowledge between the 'experts' (immuology/allergy paediatricians) and GPs, Plunket nurses, even hospital regs and general paeds. Jan Sinclair, who is one of NZ's top paediatric allergy specialists is working with Allergy NZ atm on a huge education programme for GPs and for general paeds in smaller areas where there is no access to allergy specialists to bring them up to speed. ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: ElfsMum
Date Posted: 01 April 2008 at 11:29am
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yeah i do too..honestly the doc handed me a thing that was printed out and it was just what you guys had told me.. he is referring me to the specialist on the 15th(1st available appt) and until then I'm paying 85$ a tin for the Neocate and freaking out as to whether this will affect my boy forever , whether he has a life threatening allergy or just a wee problem..and feeling guilty for giving it to him and a bunch of other things:(
I've certainly learnt stress makes my OCD worse:( so I'm trying to chill out.. as you know I'm a worrier but I'm working on it:)! I'll have a look at that page after i've had some breakfast(and my first V for two years) Thanks again Emma...you have been a great help. ------------- Mum to two amazing boys! |
Posted By: Maya
Date Posted: 01 April 2008 at 1:27pm
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LOL I LIVED on V when the kids were smaller! ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: ElfsMum
Date Posted: 01 April 2008 at 4:40pm
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i love it but my mum goes on about it being bad for me(which it is) but i dont care:)! ------------- Mum to two amazing boys! |
Posted By: ElfsMum
Date Posted: 01 April 2008 at 5:13pm
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the sutpid plunket nurse said..why no go to goats milk? then theres nothing wrong with soy.. then that the flecks in the milk were 'just iron' ...umm so i am not having him swallow whole bits of iron...I'm so over plunket already:( ------------- Mum to two amazing boys! |
Posted By: Maya
Date Posted: 01 April 2008 at 6:55pm
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Goats is a no go as the protein chains are so similar to cows milk that most kids who are allergic to cows also react to goat. ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: ElfsMum
Date Posted: 01 April 2008 at 9:02pm
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thats what i said to her..she said but they are so similar..im like that the point love! just talking to a friend who has been to the same doc.. he will get a skin prick test on his back to show what else he may be allergic too. so he shold for 265!!hopefully it doesnt cause too much of an adverse reaction. ------------- Mum to two amazing boys! |
Posted By: MissCandice
Date Posted: 05 April 2008 at 2:12pm
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Kawww. Hugs to you, must be hard. I really reccommend Tamariki Ora services.. As apposed to plunket. If you get the same ladies i have they are awesome. She lives in Pap so you should. Give them a call. Mine nurse is Ngahina, and my other lady is Ngaire. While Ngaire is older she is really nice and i just love Ngahina shes the nicest lady ever! Also she is a registered nurse. ------------- ~ Mummy to a beautiful girl ~ |
Posted By: ElfsMum
Date Posted: 06 April 2008 at 6:41pm
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lol i just saw this msg after i pmed you:) ------------- Mum to two amazing boys! |
Posted By: emeldee
Date Posted: 22 April 2008 at 5:18pm
| Connor has milk protein intolerance and egg intolerance. He's a pepti junior kid.... anyway, his skin prick allergy test came up fine (no reaction) because he has a non-iGe reaction - that doesn't mean he can have diary or egg though. Connor sees Jan Sinclair too - she's great. Good luck with it all! |
Posted By: ElfsMum
Date Posted: 23 April 2008 at 8:17am
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yeah i just dont see the point in doing the test and then saying its not reliable anyway:( never mind hes loving pepti so thats good..how much am i supposed to give him..hes easily finishing 150mls now but it says on the tin that much for four months or something.. do i give him another scoop? and with the other formulas we just rinsed our bottle and gave them a quick scrub with bottle brush but with pepti its taking forever to clean them..why is that? ------------- Mum to two amazing boys! |
Posted By: AnnaFlynn
Date Posted: 25 April 2008 at 3:17pm
| Hi foxxy_one, just posted a message in your other thread. |
Posted By: emeldee
Date Posted: 26 April 2008 at 5:59pm
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We throw the bottles through the dishwasher - seems to be the only thing that gets them clean. Connor has 210mls a few times a day - but he's 18 months and eating his body weight in solid food each day too. The info on the side of the tin is a guide. You could talk to your immunologist/paediatrician about increasing the amount to 180mls - or just give him 180mls anyway and see how he goes. One word of warning though - when Connor first started on Pepti he would hog a huge bottle down and then first burp, bring it all up over whatever lucky parent was holding him at the time. Ewww stinky pepti junior, warmed in baby insides briefly.
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Posted By: emeldee
Date Posted: 26 April 2008 at 6:20pm
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heh. Just read Maya's post about allergies a page back - it's funny (in a really disturbing, worrying way) how much misinformation there is about allergies and intolerances.
Connor has dairy and egg protein intolerances. This means, although he won't go into anaphylaxis, if he has egg he'll have violent diarrhea and if he has diary he'll get colitis, days of screaming, writhing pain, diarrhea and occasionally blood in his poo. When he had his first reaction to milk protein (he was four days old) he was taken to Starship (he had gone pale, floppy and unresponsive) and after hours of waiting around and seeing a junior doctor, we were told it was probably a reaction to the formula and not to give it to him any more and to exclusively breast feed. At six months we had an appointment with an immunologist at Starship and were told it probably wasn't anything to do with the milk and we could start him on formula and milk in his solid foods. Two weeks later we were back at Starship emergency after he pooed blood (and lots of it - we took him to our GP first who absolutely freaked). Yep, back on the idea that he could have an intolerance and by that time my breast milk had dried up, so no going back onto that. We were given pepti junior, but only one tin and told to wait for an emergency immunology appointment. Six months of formula and no dairy or egg later, we get another appointment with the immunologist who asked that we trial egg and dairy to see if there is a reaction, because lots of kiddies grow out of it. Sure enough, another trip to the emergency department because he has been screaming inconsolably for two days and we needed to check that he hadn't twisted or ruptured anything and the medical professional confirms that he might still have an intolerance. The doctor that we saw then, was absolutely lovely, however hideously uninformed on allergies and intolerances. He suggested that we start introducing milk to Connor in watered down amounts over a month so he could get used to it. Our immunologist, when we finally saw her, freaked out, that someone could give us such bad advice. It was only at 14 months that we got access to a dietitian to give us support and ideas for food options for Connor. At this stage, he was on the 20th weight percentile for his age. Allergies and intolerances have become so common, but there is still so little support and expertise available to assist parents. You often feel like you are navigating blindfolded through a minefield with your child's health and wellbeing all reliant on you not tripping or knocking something you shouldn't. Good luck!!!! |
Posted By: ElfsMum
Date Posted: 27 April 2008 at 8:06am
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we dont have a dishwasher and i dont think our can go in there?:( esp with all this drama about heat atm.. lol he hardly spills so we are lucky there:)
yes we seem VERY lucky we got to see Rodney(top doc) straight away ..as my doc is so great.. because it could have ended up like yours:( (sorry to hear that btw) I learnt from here that you can get free tins (or tins on loan) and at Rodney's you can get 4$ tins till the number comes through as well.. again I'm so glad we got to see ROdney early..apparently he's one of the top docs in NZ ..and Ethan is thriving :) ------------- Mum to two amazing boys! |
Posted By: Maya
Date Posted: 27 April 2008 at 12:23pm
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Elemental formulas like Pepti and Neocate leave a filmy residue on the bottles, not sure why, but the best way to clean them is to soak them in baking soda and warm water. I used to do ours once a week. ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: Maya
Date Posted: 27 April 2008 at 12:24pm
PS. Maree, sounds like poor wee Connor has been run around the mulberry bush  We had similar issues with Maya, she ended up with gastric bleeding coz doctors kept insisting we try different things. Thankfully by the time the gremlins arrived I had turned into allergy nazi mummy so they've been spared the worst of it.------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: ElfsMum
Date Posted: 27 April 2008 at 12:59pm
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so the rest of the time you just clean them in hot soapy water Maya? ------------- Mum to two amazing boys! |
Posted By: Maya
Date Posted: 27 April 2008 at 1:04pm
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Yup and microwave sterilised them. ------------- Maya Grace (28/02/03)
(02/01/06)
The Gremlins:Sienna Marie & Mercedes Kailah (14/10/06)
Lil miss:Chiara Louise Chloe (09/07/08)
Her ladyship:Rosalia Sophie Anais (18/06/12)
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Posted By: ElfsMum
Date Posted: 27 April 2008 at 1:23pm
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yeah thats what we do atm.. cool..thanks:) ------------- Mum to two amazing boys! |