Asthma kids...
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Category: Support
Forum Name: Parenting a child with special needs
Forum Description: A place for those parenting children with special needs to find support and share their thoughts
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=20736
Printed Date: 24 November 2024 at 6:01am
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Topic: Asthma kids...
Posted By: Kels
Subject: Asthma kids...
Date Posted: 07 September 2008 at 10:27pm
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Sign in here: I know there are a few of us here with asmatics. I am wanting to know how you cope with the changing of the weather?? We had 2 nice days at the start of the week and then it got cold again. Arrgghh I noticed the waterfall clear streaming nose on friday with Alize and knew it was coming and sure enough I was hit with an attack this morning. I nebulize him with his ventolin up to 12 puffs and he responses well but the poor boy still spends the day trying to run and plays as he never sits for a second all the while doing a great redition of darth vada or a baby with whooping cough. Any ideas on how you cope??
------------- http://lilypie.com"> 
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Replies:
Posted By: lizzle
Date Posted: 08 September 2008 at 6:34am
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hey Kels. Taine gets asthma too. was talking to his child care workers and she said apparently a lot of kids go hyper on the ventolin - something to do with the sugar they use or something. we have the same problem. Two years ago Jake and Taine were both hospitilised with asthma. the day they came out we were on "slowly does it" mode and I couldn't keep Jake off the trampoline. Niiiice.So i have no words of advice.
As for the weather - this is the first time it hasn't effected ME! Yah! |
Posted By: james
Date Posted: 08 September 2008 at 12:25pm
yep james as well he just wont stay still even whens hes have a attack sorry no advice hun bit bg hugs the doctor has just put him on seretide which is a long acting ventolin sicne he was on this his wezzying gone down ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: Shorty
Date Posted: 08 September 2008 at 12:31pm
Count me in 
Have any of you contacted the Asthma Society? We had a lovely nurse come into our home....been twice now. Just taught us what asthma was, we have no family history so literally have no idea! Then helped us with when to use his ventalin etc. The 1 thing that has meant so much to us since she last came, if Tyrell is getting a cold or something minor, up his ventalin. Give him 2 puffs 4 hourly. This will help his lungs to fight whatever nasty is going on in his body. We have had 2 head colds and both times they didn't go to his chest (finds wooden desk...touches wood) Every other little thing has gone to his chest....including hayfever! Are your kids on preventors? If they become unwell or change in weather trigers them, we were advised to increase from 1 puff to 2 puffs twice daily. Like above this has helped us with fighting off any unwanted chest problems. ------------- http://www.alterna-tickers.com"> 
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Posted By: jack_&_charli
Date Posted: 08 September 2008 at 4:17pm
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jack hasn't been 'diagnosed' as yet because he hasn't been in hospital since his first attack at 18mths.
but he's been using his inhaler abit lately with the cold weather. he seems to be getting colds non-stop. i've noticed i'm using mine alot more too...really must remember to use the flixotide!!!  ------------- http://www.alternatickers.com"> 
http://lilypie.com"> 
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Posted By: jack_&_charli
Date Posted: 08 September 2008 at 4:20pm
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shorty...i'm monitoring jack's ventolin usage at the moment so the dr can see if he needs a preventor or not.
i'm just glad jack's now at the point where he's happy to use the spacer without me having to restrain him in a towel! that was an absolute nightmare!!!! ------------- http://www.alternatickers.com">
http://lilypie.com">
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Posted By: james
Date Posted: 08 September 2008 at 5:09pm
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yep james is heaps better using his spacer thank god he use to scream like i was killing him so not nice ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: Kels
Date Posted: 08 September 2008 at 9:54pm
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Ooo thanks Amy about the info Amy. I havent had any contact yet. I ahve a care plan from the paed we saw. HIs beclozone is 2 puffs per day so maybe I will ring and see if I should up it too 2 puff twice daily. Luana, maybe I might see if Alize is better on serotide. I have been reluctant to change him as his asthma is unstable and all over the show at the moment, but will def ask now I have had reassurance fro a mother in the know. Alize is a pro with the spacer and doesnt have the mask at all. He seals his cute little lips around the mouth piece. I think he has clicked it helps him feel better. My asthma has been terrible this year too. I hope Jack is given a preventer soon. I saw a fast change once we started here. ------------- http://lilypie.com">
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: Kels
Date Posted: 08 September 2008 at 9:58pm
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Amy, sorry to hound you but in my OP I said he was getting the tell tale streaming nose on Friday, should I have upped the ventolin dosage then?? He wasnt wheezing at that stage but I knew it was coming. He didnt have a cold or flu it was just the asthma nose I call it lol ------------- http://lilypie.com">
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: james
Date Posted: 09 September 2008 at 6:41am
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my doc put james on the seretide after him having so many attacks and ending up in hospital they dont uselly give it to kids under two but thats only because they have no studys on it for under twos but james is just soo difff with it so much happier and able to play ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: Shorty
Date Posted: 09 September 2008 at 10:02am
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Kels, I would, well that is what the nurse told us.
She said at any sign give him more. We were under the impression that Ventolin was a bad thing and only used in "severe" cases. She put our mind at ease and explained what it is really for....helping open the airways. For us too, just like the Paed & Dr, it is trial and error. (Hopefully not too many errors)EVERY single child is different and asthma has so many forms. It took us a while to up his ventalin, it took a severe attack during the night to realise they NEED it. If Tyrell gets a runny nose we literraly up ventalin that day and just keep an eye on him, if it helps we continue, week before last he had a cough....not like his normal asthma cough, so I thought ok Flu is coming, uped the ventalin and he didn't change, didn't get worse but it didn't get any better. We worked it out that it is just the change of weather and he is fine without it. This is our trial and error. For us when we had the Flexotide (sp?) introduced, we had a huge improvement within the week we started it. It is slow release and I thought, nah aint working then all of a sudden he improved. We made sure we kept our a regular appointment with the Paed. He would say trial this for ... a month, so we would go back in a month. That way we were able to ensure the correct diagnosis and plan of action.  ------------- http://www.alterna-tickers.com">
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Posted By: Shorty
Date Posted: 09 September 2008 at 10:03am
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ok that was a long post.
It is something I am passionate about right now....trying to learn about asthma to enable me to help my son.... sorry! ------------- http://www.alterna-tickers.com">
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Posted By: Kels
Date Posted: 09 September 2008 at 2:13pm
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You go girl. The more info that is out there the better. I have always been happy to dose up with ventolin but only because I have nebulised kids at work with it etc. I have even written care plans for my patients of all ages but when it comes to my own, all that info seems to be lost to me. I have been trained in Asthma as a speciality in my practice nursing days so I know the anatomy and physiology of the disease and pharmacology inside out but boy when it is one of your own and your on the other side of the fence it can be very overwhelming. I just get beside myself sometimes and ring my mum, friends, healthline anyone who can sort of reign me in and put it into perspective for me as I can freak out and not know what to do..... Meh im sure we all have "those" days lol ------------- http://lilypie.com">
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: james
Date Posted: 09 September 2008 at 2:33pm
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yep we do its because hes your baby and its so hard and overwheling with all the info out there james father and uncle both have asthma so it runns in my familiy i grew up with it and i still got overwhelmed ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: Shorty
Date Posted: 09 September 2008 at 3:07pm
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I am very overwhelmed with it, we have no family history of it at all!
I freak every time Tyrell has an attack....it is awful and so heart renching! ------------- http://www.alterna-tickers.com">
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Posted By: james
Date Posted: 09 September 2008 at 6:45pm
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iff hes having attacks that offen he needs to be on a pereventer thats not fair on him or you to have to go thur that you should take him back to another doc and get another dignosies asthma attacks are very sersiors and can result in hospitalatoin or worse james went down hill so fast that he collaspe at the hospital please get him checked again ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: james
Date Posted: 11 September 2008 at 6:49am
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i was told after the age of two which was quite annoying as james was being treated as a asthmacti not that i wanted the dignonse but its good to have name to what was wrong if you get what i ment ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: jack_&_charli
Date Posted: 12 September 2008 at 3:02pm
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we were told they wouldn't diagnose it officially until jack was over 2yrs old.......silly considering that's how they have been treating him, like someone with asthma, yet they just won't call it that ------------- http://www.alternatickers.com">
http://lilypie.com">
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Posted By: Kels
Date Posted: 12 September 2008 at 7:15pm
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Alize was officially diagnosed with Asthma at 10mths old as the Gp wanted to put him on a preventor because he was having 2wkly attacks. Saw a paed and they were happy with diagnosis. ------------- http://lilypie.com">
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: james
Date Posted: 13 September 2008 at 7:35am
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hay kels hows his asthma now now hun we have attack plan if james strats getting sick but only got that that after we ended up in hospital ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: Kels
Date Posted: 13 September 2008 at 8:26am
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He is great Lu. I used the ventolin and spacer to nebulise him for 2 days straight and then kept his ventolin on his high dose for a few days after. The action plans are great and really help when they have an attack. I am going to use Amy's idea and when I see that asthma nose I will be upping the ventolin to hopefully avoid an attack! Hows your wee man?? ------------- http://lilypie.com">
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |
Posted By: james
Date Posted: 13 September 2008 at 1:51pm
hes doing great not even a wezze or anything yay (doing my happy dance) he can even run around and play without getting tried . glad to hear the ventolin is helping hun its so horrable whacthing your baby trying to breath ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: Redbedrock
Date Posted: 17 September 2008 at 2:10pm
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My turn to jump in here now as I have just come back from our docs with a salamol inhaler and all the spacer kit. Fay has never had an attack or even been slightly wheezy but she has been having night attacks of coughing and choking recently (last 6 weeks) I thought it was the tail end of a cold and then realised it had gone on for 6 weeks. so we are trying it for 6 weeks and then having a break to see what happens
neither Nei and I have asthma but I am the only one in my family to miss out so we knew something was coming. ------------- http://www.babysfirstsite.com"> 
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Posted By: james
Date Posted: 18 September 2008 at 6:56am
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aww poor ffay and mummy big hugs hun ------------- <a href="http://lilypie.com"><img src="http://b4.lilypie.com/nLJ5p13.png" alt="Lilypie 4th Birthday Ticker" border="0" /></a> |
Posted By: fallen
Date Posted: 29 September 2008 at 9:50pm
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Hello ladies.
My daughter is will be 10 in late November. She was first diagnosed with Asthma at around 9 months old when she was hospitalized with her first attack. The first few years were pretty rough with very unstable asthma. Finally our doctor referred us to the Asthma society. We went every couple of weeks where I learnt how to correctly use her inhalers and spacer (the doctors hadn't shown us properly!!) We kept records of her health, flair ups, environmental details etc. This helped me understand her triggers and how to act to prevent an attack. I totally recommend them to anyone dealing with asthma in their family. I learnt so much. Now days her asthma is pretty well controlled, she still uses Flixotide daily, does a peak flow every morning and has Ventolin as needed. There are two forms of salbutamol inhalers that can be obtained on prescription. The Ventolin brand which occurs a part charge of $4.30 approx per pump or the fully funded Salamol brand. I work in pharmacy and most of the regular customers using these inhalers choose the Ventolin ones as the Salamol don't seem to work for them. Salamol is also prone to clogging so needs to have its nozzle run under a hot tap regularly to clear it. For the record I choose to pay the bit extra for the Ventolin brand, I find it works better for my girl. I also get a 'Child disability allowance' for her though WINZ due to her asthma. Its not based on the parental income. Its worth looking into. To apply just get a form from WINZ, get your doctor to fill it in then return it with the relevant identification papers. I've known other people have it for children with severe reflux too. Just an idea... |
Posted By: lizzle
Date Posted: 29 September 2008 at 10:25pm
| good point about the salamol Fallen. i have asthma myslef and always pay for ventolin. have had too many attaacks when the stupid thing jams and I'm freaking out and not clam enough to unclog it easily. i hate them. |
Posted By: Kels
Date Posted: 30 September 2008 at 7:54am
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Argghhh Asthma rearing its ugly head here again. I woke in the middle of the night to check on Alize because he came home from DC with a cough. No wheezing or the usual runny clear nose but anyway go tup to fine him grunting and whezzing so bad but still asleep my poor wee man. I woke and gave him 6 puffs of ventolin via the spacer. He just went back to sleep. I checked him and his grunted had stopped and the wheeze wasnt as loud so went back to bed. This morning I went in and again he is grunting and wheezing so bad he cant even cough and he says to me "breather" lol that is what we call his ventolin and spacer. Have put him on 4 puffs 2hrly and will just let the DC know. Otherwise well, so he can attend DC, they have a care plan and know when to contact me if he even slightly chnages and they are really good like that. OK that is my rant for the day... Fallen, was your daughter ever tested for allergies?? Alize has been and is allergic to dustmites and animal dander. The paed seems to think these are why my son suffers asthma. ------------- http://lilypie.com">
Busy mum to Miss 15yrs, Miss 10yrs and Master 4yrs |