Reflux - Vent!
Printed From: OHbaby!
Category: Support
Forum Name: Reflux and Allergy Support
Forum Description: Struggling with a refluxy baby? Looking for tips to deal with allergies? Share your experiences here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=30291
Printed Date: 23 November 2024 at 10:31am Software Version: Web Wiz Forums 12.05 - http://www.webwizforums.com
Topic: Reflux - Vent!
Posted By: Shezamumof3
Subject: Reflux - Vent!
Date Posted: 02 December 2009 at 8:41pm
I am one VERY stressed out mummy right now......
I feel so alone with all this reflux crap, I feel like no one understands just how damn hard it is dealing with it(apart from you girls), and a 17 month old and trying to look after myself(which I'm not cos I feel like sh*t).
I just want my baby to be happy and I want to enjoy her and I'm not and that makes me feel awful! Some days I just feel like running away from her
I don't even know how I get through the days sometimes. Today she cried 80% of the time!
She is finally on losec, its day 7 today, after seeing 3 Dr's the 3rd Dr(my family dr) gave is losec as he saw first hand what she is like and he knew right away what was wrong, if those other stupid Dr's had listened to me she would have been on Losec weeks ago! We go back Friday for a review and to see if she needs more than 5mg a day, which I know she does.
Im just so tired and I feel like a zombie
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Replies:
Posted By: cuppatea
Date Posted: 02 December 2009 at 8:53pm
Aw, I wish I lived close by I would come round and help out. Sorry all I can offer is cyber hugs
Thankfully one doc listened to you
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Posted By: Shezamumof3
Date Posted: 02 December 2009 at 10:13pm
Thanks Marisa
I think just getting it all out helped too, and just hearing some reassurance that it does get better *sigh*
Thank goodness Caden is such a good little boy and doesn't cause me extra problems! lol
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Posted By: AandCsmum
Date Posted: 02 December 2009 at 10:36pm
Thank god you had a dr with smarts!!!
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: Hope
Date Posted: 16 December 2009 at 9:26pm
I hear ya luv! My bub was on ranitidine but it wasn't strong enough. I had to go to three bloody doctors and then the third referred me to a paediatrician who finally gave me losec - bub was by then 7.5 months. He has improved a lot and will actually sleep in his cot at nite instead of with me! One b**ch of a doctor told me to leave him to cry! The nerve!
You are not alone! My reflux bub is difficult too, and you really can't talk to mums with non-reflux babies about sleeping, because they never really get it. I feel like s**t most of the time too!
Good luck and good vibes to ya, and lets hope our bubbas grow out of reflux soon!
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Posted By: NikkiB
Date Posted: 17 December 2009 at 7:12am
Shame the first two doctors couldn't do their job properly
Hope the Losec kicks in soon and I also hope you manage to get some down time for you soon
------------- A very lucky mummy to two gorgeous boys:
RB 3/10/2008
JB 29/12/2009
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Posted By: KitKat
Date Posted: 10 January 2010 at 5:52pm
sorry- need to vent/bitch......
FIL and MIL are driving me nuts- always have... I wont go into details as its totally irrational.
Yesterday- I overheard FIL saying to BIL: "Its so great that his wee tummy doesnt hurt anymore and he is always so content and smiling" WTF!!!!!!!! It got me so mad. They have NOOOOOOOO idea. GOD it pisses me off. They used to do this a lot until they saw first hand what a reflux session looked like- they were ready to take him to the hospital he was so worked up- we were like- "see, this is what its like for us"
People just dont understand.
AND THEN: FIL is sitting behind Locks as he has only just in the last 2 days started sitting on his own.... and then he just gets up and walks away! Sure enough Locks starts falling backwards rightly thinking that we are there to support him (I assumed wrongly I could trust my son with his grandad), and luckily SIL is there to catch him. I saw all this from the kitchen- and was so upset I was speachless. Talk about careless. Imagine if he had just slammed his head back.
shudder to think.
Sorry vent over. for now. dont mean to sound ungrateful for family.
A bit off topic- sorry .. the first bit is a reflux vent though I guess.
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http://www.littlegreenfruit.blogspot.com - Little Green Fruit
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Posted By: AandCsmum
Date Posted: 10 January 2010 at 10:04pm
Yes, Daytime reflux is not even a patch on what happens at night!!!
My parents got treated to seeing a small bit of reflux issues earlier in the week. They were gobsmacked when I came out & announced I was going home as I needed the support of my DH in the middle of the night.
Sometimes men are dumb...period!
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: AandCsmum
Date Posted: 23 January 2010 at 12:06pm
Just wanted to say I hate this....I want one full nights sleep, I don't want to be bitten, I want to eat what ever I want with out consequences.
I'm sick of being woken every 2 hours during the night. It's not as if it's a wake & go straight back to sleep!
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: KitKat
Date Posted: 26 January 2010 at 9:32am
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http://www.littlegreenfruit.blogspot.com - Little Green Fruit
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Posted By: RinTinTin
Date Posted: 26 January 2010 at 9:40am
I don't want to speak too soon, but Mac has/had Colic and a bit of reflux. I took him to a Cranial Osteopath last week. She warned me he could be worse for a week or so then get better. Well it's a week today and I haven't had any episodes out of him for the last 2-3 days.
Might be worth a shot for those of you at your wits end.
Hugs to you all. I can only imagine what you're going through with Reflux but I know Colic was hell.
------------- http://lilypie.com">
http://lilypie.com">
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Posted By: AandCsmum
Date Posted: 26 January 2010 at 9:50pm
After saying this we had a good night of 4 hours from 1am to 4.30am then that day had a big 4 hour sleep & then another good night.
He's in his own room so maybe self settling?
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: KitKat
Date Posted: 17 February 2010 at 8:32pm
AAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHGGGGGGGGGGGGGGGGh
I am soooooooooooooooooooooooo over it!!!!!!!!!!!
No more whining, no more spewing, no more no more!!! I wish they would stop saying he is feeding off MY emotions!! Please say its not MY fault!!!!
argh
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http://www.littlegreenfruit.blogspot.com - Little Green Fruit
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Posted By: AandCsmum
Date Posted: 17 February 2010 at 9:07pm
Walking helps heaps I know that is a little way off for you but it's definitely made things better in the past week or so. So there is a light at the end of the tunnel!
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: AandCsmum
Date Posted: 17 February 2010 at 9:08pm
Is he on Losec? What's his diet like? Sorry don't know how extreme you have got in the quest for a settled baby.
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: KitKat
Date Posted: 17 February 2010 at 9:44pm
we have tried everything and are trying everything.
A friend is studying up on naturopathic remedies (we have already tried a fair few!)
He is on Rinitadine (has been since 8 weeks),... every time I mention another medication to the doc we are advised against it... 'he'll grow out of it soon', 'only in severe cases' (AT what point is it classed as severe?)
I went to the doc today to address this reflux issue again- she was lovely, I (yet again) broke down, and so then it became about me somehow, and perhaps L is feeding off my emotional crap- which is triggered by him cos Im upset I cant cope or help etc. So now this is the 3rd professional who has made me feel like its my fault. I was fine this morning... until 2 hours later I was run down to a crying wreck. I am so bad at dealing with it I feel like such a failure.
Anyways....
We are doing the diet things, and the allergy things, and the physical things, etc etc etc.... I dont want reflux to affect his development.. is that possible? Its hard not to compare with other kids his age. He is so clingy which is fine but he has started getting painfully shy and upset with strangers again... Fine to a point....I had to leave a friends place the other day- as soon as I walked in the door- he screamed- was hyperventilating he was so upset.... Just didnt want to deal with anymore sensory input I guess. I cant imagine what hed be like at playgroup, he finds it hard enough with 1 or 2 other babies he knows... He is like me I guess- enough is enough.... there we go.
I love him to bits, and am glad he is so sensitive. and cuddly.. but its so draining sometimes when I dont know how to help how he is feeling... I know its the reflux irritating him.
Day sleeps are now out the window too.
frustrated.
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http://www.littlegreenfruit.blogspot.com - Little Green Fruit
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Posted By: FionaS
Date Posted: 17 February 2010 at 10:28pm
Huge hugs to you. My first was very very much the same. She just couldn't cope with anything. She cried anywhere except at home and wouldn't even let her grandparents hold her. If we even sneezed at the other end of the house she would melt down and once she was crying it was so hard to rein her in. She'd only sleep 20mins at a time for a long time. We tried reflux meds to no avail so it seemed all her issues were sensory. I won't go into details (though let me know if you want them!) but overall it got much better when she could walk and although she remained quite full on it just got better and better with time. Now at 3.5 she is a very well adjusted and happy kid. She is extroverted, confident and full of fun. Her only issues now are being a picky eater and not sleeping well...but her sleep disorder is another story.
It is so hard watching your baby struggling in the world...I totally understand. It feels like it will never end and it is so hard not being able to fix it for them.
It is also hard when people tell you it will get better but it feels like you're drowning in today. However, from someone who has been there...it will get better. It is unlikely his development will be slowed but even if it is he will catch up. And most of all...he will not remember. Before you know it he will be a happy, well adjusted kid racing around laughing.
The biggest problem is that YOU will remember. I had another friend in a similar situation and all the advice I could give was to try not to lose herself in it. I can't really say how to do that as I failed in that regard. However, as he won't be harmed long term and he won't remember, all you can do is do your best for him and take care of you. My friend recently told me that my advice really helped her to cope and get through it intact hence why I am now passing the same advice to you.
Feel free to PM me if you have any questions at all. Hugs again.
------------- Mummy to Gabrielle and Ashley
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Posted By: KitKat
Date Posted: 18 February 2010 at 7:00pm
Thanks so much for the support guys...
I know itll get better- but its so hard when youre in the midst of it.
I had MIL say to me today- "Why dont you let people help you- if you let us blah blah blah- you would be able to be a much better mum" God I nearly lost it and walked out. Talk about last nail in the coffin. Mil,FIL are reliving parenthood (or in MIL's case- living it as she never had kids).... they dont understand one little bit.
We deffinately ask for help when we need it... but I draw the line at them taking on such a major role (as they want to) in his upbringing. We are his parents not them.. plus I dont really connect with them.
Sorry- that wasnt reflux related really.
I am on fire arent I!!
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http://www.littlegreenfruit.blogspot.com - Little Green Fruit
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Posted By: Peanut
Date Posted: 18 February 2010 at 9:31pm
I am hearing you! I really believe reflux babies are sooooo much more sensitive to those around them. DS2 is really temperamental but the poor child is still dragged out to things as DS1 wouldn't cope not going out. DS1 will not sleep in public and just screams if noise gets too loud.
I do ask for help but only from my parents as they get that at times I am on the edge and don't make me feel incapable. DH's parents don't get how bad it is and always comment on how good he is which makes me insane.
DS is on ranitadine and it is doing great so far but should probably be on losec but refuse to give in to it. I would see another dr.
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Posted By: AandCsmum
Date Posted: 18 February 2010 at 9:36pm
You need Losec. Cooper got put on Losec at 11 months! They don't all grow out of it. He should have improved not stayed the same. Have you been to see an allergy specialist at the hospital?
This is what my boy eats.
Pears, up to half a day. Either fresh & peeled thickly or canned in syrup & the syrup rinsed off.
Banana maybe about half one of the long ones, only a couple of times a week.
Farex, 8-10 month ones.
Porridge, millet cereal, homemade pancakes. Woolworth bakery white bread.
Pasta or white rice. Chicken & red meat, only veges in tea are spring onions, garlic, leek when available, swede when available, potato in small quantities.
Sakata plain crackers or Salada original crackers.
We are very extreme on our diet here because he is dairy free as well. He can not tolerate any other fruits or vegetables. I have a huge range of recipes so it's not as if our diet is boring at least! But he's just started sleeping through the night & he's not spilling & he's happy.
Is he formula fed or breast fed? If he's formula fed maybe one of the elemental ones would help him?
Also, do you have a teething necklace for him? Might help with its anti inflam properties?
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: AandCsmum
Date Posted: 18 February 2010 at 9:39pm
Losec is way better! Get the capsules which you put straight on their breakfast, once a day. Ranitidine is flavoured which can still upset some babies.
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: rocmummy
Date Posted: 21 February 2010 at 4:47pm
Its like i have just read the history to my experiences!!
My girl is 8 months and 4 days. I was at breaking point this morning, left the house went for walk, didnt know where i was going, so went to the local bus stop and sat there, ha ha ha, i can laugh now, but i needed time out and air! She was crying incessantly and the night was even worse!!!
Off to the doctors tomorrow as the Losec sounds good?? She has started solids before being BF so i hope i havent hit a rough patch??
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Posted By: KitKat
Date Posted: 21 February 2010 at 9:30pm
AandCsmum wrote:
You need Losec. Cooper got put on Losec at 11 months! They don't all grow out of it. He should have improved not stayed the same. Have you been to see an allergy specialist at the hospital?
This is what my boy eats.
Pears, up to half a day. Either fresh & peeled thickly or canned in syrup & the syrup rinsed off.
Banana maybe about half one of the long ones, only a couple of times a week.
Farex, 8-10 month ones.
Porridge, millet cereal, homemade pancakes. Woolworth bakery white bread.
Pasta or white rice. Chicken & red meat, only veges in tea are spring onions, garlic, leek when available, swede when available, potato in small quantities.
Sakata plain crackers or Salada original crackers.
We are very extreme on our diet here because he is dairy free as well. He can not tolerate any other fruits or vegetables. I have a huge range of recipes so it's not as if our diet is boring at least! But he's just started sleeping through the night & he's not spilling & he's happy.
Is he formula fed or breast fed? If he's formula fed maybe one of the elemental ones would help him?
Also, do you have a teething necklace for him? Might help with its anti inflam properties? |
Yep to all of that, tried all of it... and he is FF as I couldnt BF (literally).... but we are prob even stricter on what we give him given the extreme allergies in our family. (my bro cant eat any raw veges or fruit!). L gets funky w porrige (oats), pasta,not going near banana as I am highly allergic to that. But we have found the corn and quinoa cruskits a godsend... what did we do without them! Just tried him on Avo again and he seems ok with that now too... phew.
Long story short- we have dropped another bottle in the morning, and launch straight into brekky (pear millet porrige)- and the last 2 days have been heeeeeaps better. so now he is only on 3 bottles a day. funny thing is- we are giving him less med because of it... how ironic and interesting.
Half a pear wouldnt touch the sides for L. He was born ravenous!!! lol
We tried Pepti etc, and that made it all worse. I think we tried every formula available!!
I think he isnt a milk boy at all. I wish that was the answer to all our probs though! reflux still reigns.
Rocmummy- how did you get on????
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http://www.littlegreenfruit.blogspot.com - Little Green Fruit
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Posted By: rocmummy
Date Posted: 05 March 2010 at 8:58am
The doctor gave me liquid losec. Because i breastfeed her, she has never wanted a bottle, so at the moment it is difficult to give to her. I wonder if i can mix it in with her farex??
Soooo frustrating!! Interrupted night sleeps, and short day sleeps, i toughing it out at the moment to be attentive to her and keep sane! Im sure you understand! My next step is to force the doctor to give a referral to a peadiatrician.
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Posted By: mollycat
Date Posted: 05 March 2010 at 7:29pm
Watch out - my boy's on liquid omeprazole which is a form of Losec and it tastes TERRIBLE so if the liquid losec is the same you wouldn't want to mix it with milk or food of any kind. We measure out in a syringe and give to Ryan when he's lying flat on his back. If he's sitting up he'll just spit it out. So when I change his nappy, in goes the meds as quick as I can.
------------- http://tickers.cafemom.com">
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Posted By: AandCsmum
Date Posted: 05 March 2010 at 8:34pm
I get the capsules & empty them onto farex on his breaky. Easy peasy.
Kitkat, he only has half a pear a day as for intolerant adults 2 pears is max dosage. All to do with the Salicylate acid in the fruits & veges.
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: busyissy
Date Posted: 22 March 2010 at 8:17pm
The liquid losec is just the capsules dissolve in sodium bicarbonate the the sb in it can make them vomit it back up too. Even an very young baby can have the capsules just broken open and given with a bit of stewed apple or pear. You don't have to worry about the apple or pear being a solid because it acts like the syrup that most medications are put in to disguise the taste,eg pamol is just paracetmol in a very sweet syrup. Plus, the acid in the apple/pear helps the losec to work. Also be aware that the goverment subsidise omprezole is not the same as losec and often doesn't work. So if you are having trouble with losec and it is coming in blue and black capsules it is Dr Reddy's omprezole, you need to specifically ask for the losec brand, it has pink capsules.
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Posted By: Karan
Date Posted: 25 March 2010 at 12:08pm
Hi,
i have 12 weeks old baby and it was it took me long to discover is was suffering from silent reflux. Upon doctors visit she was prescribed Ranitidine ,,which was not very effective so they prescribed a stronger one...omeprazole. This was little better than the other one however my bas reflux was gone by colic calm grip water. It is just one of the amazing product i have ever tried.
,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,Colic calm worked wonder for my baby.
It is a natural remedy, produced in USA....though little expensive but worth it.
All the best
Karan
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Posted By: AandCsmum
Date Posted: 25 March 2010 at 7:54pm
Saffron, we have yellow & purple Dr's Reddy's. Working a treat at the moment. Are the blue & black ones for a 20 mg dose?
How did you find the Colic Calm Karan?
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: MARY
Date Posted: 09 April 2010 at 4:01pm
Rocmummy: Yup. To leaving the house. After only two months of not sleeping for more than two hours in a row, I (stupidly) got in the car one night, drove around the block, then around again, and again, talking myself sane. It didn't help everyone said it would get better (god, if anyone told me that it would get better once my baby was WALKING ... I just couldn't cope with the thought I had a whole year of this to go through!~!!!)
We had to wait until bub was nearly three months old before we could see a specialist and then we finally got on to ranitidine, after persisting with gaviscon six times a day (he was exclusively breastfed, of course wouldn't take a bottle!!). All I can say was that I didn't care if bub didn't like the spearmint taste: I got that syringe, 0.8mls in total, and squirted it right at the back of his mouth, bypassing his tastebuds anyway!! (might sound mean, but I knew it was for the best). Just like mollycat said, just get it in there quick as you can.
Ok, he had silent reflux, so vomiting it back up wasn't an issue for us. But within three-four days of tmt, twice a day, he was a textbook sleeper.
He's 19 months now and still on ranitidine, but now he loves the taste says "yum yum" after he has it!!! LOL
Perservere, get to the specialist, and get on the right dose for your baby. I interrogated ours about the long term effects of taking ranitidine and as far as they could say there weren't any. (Besides, what has to be far worse are the long term effects of sleep deprivation for you and your family?)
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Posted By: Karan
Date Posted: 10 April 2010 at 7:43pm
hi Kel
yes my baby got relief from both the reflux and colic by having that colic calm. I would suggest that to every parent whose baby is suffering due to colic,,gas,,reflux etc
wht a wonderful product!
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Posted By: AandCsmum
Date Posted: 15 April 2010 at 10:21pm
Stupid reflux & stupid food which causes it. Nuf said
------------- Kel
http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12
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Posted By: busyissy
Date Posted: 19 April 2010 at 7:26pm
Hi AandCsmum, sorry I haven't been on for ages but I think the the black and blue capsules are the 20mg, unless they changed the capule colours. Issy's always been on a very strong dose.
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Posted By: nikitarose
Date Posted: 20 April 2010 at 8:02pm
Hi im new in here but not new to reflux, and my darling last is the worst, so i do know what everyone is going though but on top of it all shes failure to thrieve as well,we have been down all the food roads all the meds which take the edge of. We are hoping she will out grow it shes 11 months today weighing 6.5kg at last weigh in , weve had great help with her i.e docs etc took a bit of pushing but was worth it. So hugs to to all going through this and its so hard to watch your baby in pain and not know what to do to help and it makes me so mad when docs dont listen, we as mums knows somethings not right.
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Posted By: Kazper
Date Posted: 13 May 2010 at 8:14pm
Oh so good to see a thread with other mums going through similar stuff. We are just starting to get on reflux issues now. Had a baby that always cried, refused to feed and stopped putting on any weight. Would throw up acid all the time. Was not pretty. Fortunately for me Dr listened and Leah threw up acid all over the place three times while in Dr office so he couldn't ignore our issues. Ranitidine did not work and is now on reflux, which worked for a while, but going to have to up the dose cause it's getting bad again.
I remember being a total wreck when it was at it's worst. I wouldn't leave the house cause I couldn't handle her crying while we were out or while I was driving. She would scream at the top of her lungs.
I'm guttered she refuses to bf now. She still associates it with the pain she went through and will only take bottle. So now I can only really bf twice a day when she is at her most relaxed and it will only be a slight snack feed.
------------- http://www.fertilityfriend.com/home/545141" rel="nofollow">
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