Reflux Episodes??
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Category: Support
Forum Name: Reflux and Allergy Support
Forum Description: Struggling with a refluxy baby? Looking for tips to deal with allergies? Share your experiences here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=34622
Printed Date: 23 November 2024 at 11:13am
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Topic: Reflux Episodes??
Posted By: Anonymous55
Subject: Reflux Episodes??
Date Posted: 10 July 2010 at 3:16pm
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Little Nina is 4 months old and has been on Ranitidine and Gaviscon from 6 weeks old.
The Gaviscon was replaced by AR formula at 3 months due to the Gaviscon loosing effectiveness. Nina also likes the porridge-like thickness of the AR formula. She is on the max dose of Ranitidine (1.5ml x 2/day) but for over a week now she seems to have a bad episode of relux. Does reflux come and go?? After introducing the AR formula things seemed so good, with her drinking every bottle offered for 2 or so weeks and minimal discomfort but now things have AGAIN turned to custard and she is not eating at all throughout the day and only sporadic at night. I manage to keep her hydrated, just. The doctors are refusing to let me try losec at this point. Does this sound familiar to you? Thanks heaps, Julia |
Replies:
Posted By: AandCsmum
Date Posted: 10 July 2010 at 5:17pm
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Why on earth would they refuse losec?
C was on Gaviscon which we found was only effective if we gave the maximum dose & when we shifted to the ranitidine we found it didn't work. We went back to Gaviscon which wasn't cutting it & then got Losec. You could try and give her gaviscon as well as the ranitidine. ------------- Kel http://lilypie.com"> 
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Anonymous55
Date Posted: 10 July 2010 at 7:18pm
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Effectively I'm just getting fobbed off everywhere!
I've been to 2 GP's (at the same practice tho) and they say they can't prescribe losec, only a specialist can! I've heard from other mums and a pead over the phone that this is NOT the case, nonthless they're refusing to give it to me. I have been once to the acute assesment unit at the hospital and the pead registrar told me he wanted to keep trying the ranitidine at max dose for a while but did admit the ranitidine doesn't work for every baby. I can't add the Gaviscon anymore because it says on the pack that you can't give it together with AR formula. I'm guessing it makes it too thick....? The GP has referred me to the outpatient clinic at the hospital but the waiting time is 3 weeks to 2 months and it's just not an option to wait that long. She has only been drinking around 250ml in 24 hours for the last week. That's down from the usual 800-900ml. I'm desperate but don't know what to do. I also have the opportunity to see a pead privately (he works at the hospital but sees people before/after work) but it's $250 and I don't have healt insurance.... 
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Posted By: Kellz
Date Posted: 10 July 2010 at 8:31pm
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You can buy losec 10mg capsules over the counter at chemist shops. I doubt they would give it to you if u say its for her tho..... but they are the same caspules that u get for babies- but u have to open the capules and give the granules- instructions are on cryingoverspiltmilk.co.nz
You could ring around other GP's and ask specifcally for one that has experience with infant reflux. I wpuld ask to speak to the practice nurse, explaing the issue and see if the gp there can help, if not kept tring different ones. Plunket may know of a GP in your area with expecience with this too. |
Posted By: Kazper
Date Posted: 10 July 2010 at 9:28pm
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Oh you poor thing. Those Drs sound terrible. Ranitidine did nothing for my lil girl and I took her straight back to Dr and he prescribed Losec and Gaviscon.
I may have heard it on here, but can't remember. Someone actually videoed their baby having a reflux attack and took it into the Dr and demanded he listen. Could you give that a go? Other than that, Kellz has a good idea to ring around asking. Also may be speak to your Plunket Nurse and ask if she has any other mother's with refluxy babies and perhaps find out who their Drs are. If not, join a forum on cryingoverspilmilk website and see if any of the ladies are in your area and ask which Drs they know are best and can prescribe Losec. ------------- http://www.fertilityfriend.com/home/545141" rel="nofollow">  |
Posted By: drumstx
Date Posted: 11 July 2010 at 12:42am
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hey there
on my second reflux baby, go to the crying over split milk web page it is great, the differing meds are that losec reduces the amount of acid that you make in your gut, and the gaviscon sooths the burn, the instance affect that it has, i never discounted using it, as my kids grew then then i used it wenever it was needed. and boo friggin hoo to your doctors, go with ammo i say, take the info from the website and stand up for your baby, you know you baby best, when it comes down to it you are not their friend and they are professionals, their feeling or egos dont come into it. sorry but it makes my so mad as i had to fight for my kids and still am. So much positive thoughts and will for you is coming from me. i hope that it works out and that you get wot u need for your little one |
Posted By: Anonymous55
Date Posted: 11 July 2010 at 9:51am
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Kellz, I will try to call PN tomorrow and ask her if she knows another GP. I've been reading on cryingoverspiltmilk.co.nz but do really want to get a doctor to approve of the change in meds.
Kazper, last week when I was at the GP again Nina actually had a attack right there and then! She just looked useless and sent me home with the referral to the outpatient clinic...... 
Thanks, drumstx! Are you guys saying/thinking that you can combine Gaviscon and AR formula?? The pack says you can't which is why she's not on Gaviscon anymore! |
Posted By: nikitarose
Date Posted: 11 July 2010 at 7:11pm
| Hugs i am to down in the south,i am on my 3rd refluxer we had issues with my 1st refluxer same kind of attitude no she doesnt have it so i do understand its hard sometimes.Also it pays to be a bit pushy , my 3rd refluxer is the worst and we have been lucky with the hospital and our doc have been great but sometimes i need to give a little push to. |
Posted By: Anonymous55
Date Posted: 13 July 2010 at 2:12pm
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I'm off to the hospital this afternoon to the acute asessment unit.
The plunket manager called the hospital and arranged this for me. She did say to me tho that they seemed 'funny' on the phone and I will have to be really pushy to get what I want.....
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Posted By: Kellz
Date Posted: 14 July 2010 at 8:04am
| How did the hospital appt go? I hope the listened and were helpful. |
Posted By: Anonymous55
Date Posted: 14 July 2010 at 8:50am
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Hi Kellz,
it went well and we now have 6 bottles of losec! I had to really push it and tell them that I want to try it and after consulting their consultant they agreed to it. I just gave her the first dose on some apple puree and she wasn't impressed, maybe a third went actually down. It was the first time she's had solids. |
Posted By: nikitarose
Date Posted: 14 July 2010 at 11:22am
| Hi what day were you there, we were there yesterday and day before in acute assessment unit miss has brocilites excuse spelling, may have seen you. |
Posted By: AandCsmum
Date Posted: 14 July 2010 at 11:40am
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Julia, try it on pears, it's a little sweeter. ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: AandCsmum
Date Posted: 14 July 2010 at 11:41am
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Oh did you get the liquid or the capsules? ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Anonymous55
Date Posted: 14 July 2010 at 12:56pm
| Got the capsules, A&Csmum. I've got some only organic pear/custard jar stage 1. would that be ok too? |
Posted By: Anonymous55
Date Posted: 14 July 2010 at 12:57pm
| Nikita, we were there yesterday at around 3! |
Posted By: Kellz
Date Posted: 14 July 2010 at 1:34pm
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Try plain pears- be very weary of the custard baby food- contains dairy- and if shes got such a problem with reflux ahe may be allergic or intollerent to dairy also.
Glad someone finally listened to you. I hope the losec works. |
Posted By: drumstx
Date Posted: 14 July 2010 at 9:52pm
also try opening the tablets and grinding the granules into powder, is heaps easier on her, also can disolve this into a little water, though taste horrid can mix into pear and is heaps easier to get down. and i agree with the pear, it is one of the most hypoallergenic food ever, apple is way hard on their tums, also try the crying over split milk website for foods that are good for reflux babies. good luk xoxoxo
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Posted By: Anonymous55
Date Posted: 14 July 2010 at 11:55pm
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Thanks drumstx!
I was told tho to never ever crush the granules! |
Posted By: nikitarose
Date Posted: 15 July 2010 at 9:05am
| Hope all is going better for you, we were home by then thank goodness they were really busy, wed been in on Sat night as well and had to spent night in assement unit as it was busy as, she has bad breathing holding spells as well.I hope you have a follow up appointment. |
Posted By: AandCsmum
Date Posted: 15 July 2010 at 2:46pm
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Don't crush the granules!!!
They need to go into the tum whole, but yes open the capsule & sprinkle on the pears. Give at night too, as then you have more of a chance of having a better night sleep. I have found giving them around 5pm is a good time. Make sure her bed is raised too it it's not. ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Anonymous55
Date Posted: 15 July 2010 at 4:51pm
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A&Csmum, I thought so too.
Nina sleeps in a hammock so is naturally raised a little through the curving. I still can't get her to take it! She just spits it out. Even tried funneling it through a slit teat....they just sit in the bottom tho. 
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Posted By: drumstx
Date Posted: 15 July 2010 at 10:23pm
| thats funny we have done it for the last year and was told to do it, also the chemist makes it every week for us crushed and into water so i can get it thru a mickey button... different doc different ideas... only way to get it into jack. never been told not. any reason? |
Posted By: Kazper
Date Posted: 16 July 2010 at 9:43pm
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Hmm yeh our chemist makes Leah's especially crushed and mixed with water I guess to liquid state so that I can syringe it in. I do it when she is happy playing on the floor or change mat and just squirt tiny bits in when she is smiling or something. It works really well so there shouldn't be any problem with crushing it. ------------- http://www.fertilityfriend.com/home/545141" rel="nofollow"> |
Posted By: AandCsmum
Date Posted: 17 July 2010 at 11:40am
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Cause they are time release capsules. I've also heard that the liquid version is less effective after a week. Ahhh drumstx, just read that you get it weekly.
Try putting them in a big syringe with some water. Takes a few goes to get them all out though. I use the nurophen syringe if I've forgotten to give them with dinner. ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Kazper
Date Posted: 17 July 2010 at 1:47pm
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Oh wow, wonder what our chemist does with ours then. Ours says it will only last a month, but haven't had any issues with it. Seems to work really affectivley. May be its the strength. ------------- http://www.fertilityfriend.com/home/545141" rel="nofollow"> |
Posted By: Kazper
Date Posted: 17 July 2010 at 2:17pm
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MUM2HIAWATHA I just contacted our pharmacy to get some info for you on losec.
They said you need to find a compound pharmacy. The reason I can get it in liquid form is because they have specialised equipment that not all pharmacies have. Losec is apparently an unstable compound and doesn't last long like what AandCsmum said. Prescriptions don't cost anything, but to have it made up specially in liquid form it only costs me 50cents per month. It just needs to be kept refrigerated and shaken really good before administered every day. So now you could possibly do a ring around in your area of pharmacies and ask if they are a compound pharmacy and/or if they have the equipment to make things into liquid form such as losec. ------------- http://www.fertilityfriend.com/home/545141" rel="nofollow"> |
Posted By: Anonymous55
Date Posted: 17 July 2010 at 8:56pm
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Thank you so much for this info! I'm very greatful for it.
I do think we need to go down that path of liquid losec as it's turning into a granules-everywhere-but-in-her-mouth-and-screaming session every morning and night. *sigh* She taks her ranitidine fine so I suspect she will be fine with the liquid losec which will not need acidic fruit with it either because apparently it needs milk straight after. Much better. I will let you know how I go about finding a compound pharmacy. |
Posted By: drumstx
Date Posted: 17 July 2010 at 11:03pm
good luck, i get mine every week and give it morning and night, definitly unstable and do need to shake heaps but my pharmacy waves my 10c a week  and makes it every monday for me to pick up on the way to school, i hope that you can find one, though i was told that it was at its best to get weekly. it does taste yuk ( yes i tried it) and i did mix it with something else to cover the bitter taste. oh and you are doing great! reflux babies are so hard sometimes, it is hard not being able to fix the sad. all the best and let us know how u get on
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Posted By: Kazper
Date Posted: 18 July 2010 at 6:39pm
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Goodluck with getting it in liquid form!
That is really nice of your pharmacy to do that for you drumstx. My latest one is going to run out soon, but will need to go back to Dr as I have used up my repeats. Last time I was told to see how she would go without it so I am nervous he will do the same as it usually means a week of a screaming baby having reflux attacks ------------- http://www.fertilityfriend.com/home/545141" rel="nofollow"> |
Posted By: arohanui
Date Posted: 18 July 2010 at 10:00pm
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Just be aware that the liquid can lose effectiveness as it gets older - we found that after about 5 days, Zac started screaming at night again in pain. It also tastes very nasty!
We've since gone onto granules and they're great. I got a can of baby pears and put tiny blobs onto gladwrap in the freezer - so each night I just defrost one blob and put the granules with that. It's only about 1\4 teaspoon and he eats it well. Just another option ------------- Mama to DS1 (5 years), DS2 (3 years) and... http://alterna-tickers.com" rel="nofollow"> 
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Posted By: AandCsmum
Date Posted: 18 July 2010 at 10:25pm
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Liz that is a brilliant idea! I usually mush a pear 1/4 now but that would have been easier for a little bub. ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Anonymous55
Date Posted: 19 July 2010 at 9:37am
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arohanui, so it might not even be good enough to get the liquid weekly? I don't want her screaming again after 5 days.
We tried everything in terms of getting the granules into her! On a spoon with puree, on the fingertip with puree, through a teat with big hole and watered down puree, etc! As soon as she feels the granules she starts choking and tries to throw up 
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Posted By: Juzzo
Date Posted: 19 July 2010 at 11:00am
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Julia, we find it lasts fine for 2 weeks, it's just the last few days Harlow starts to get a little bit niggly again. I think it's worth trying. ------------- http://lilypie.com"> 
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Posted By: drumstx
Date Posted: 19 July 2010 at 1:48pm
| MUM2HIAWATHA jack as severe silent reflux, and is on the high dose, we have given him liquid losac for the past year, he is 2yrs now, and i havent had a problem, i do get it every week as lessens in efftectiveness after that time. I would really recommend trying it, jack hardly eats and he too would gag and throw up when i gave him the granules. Just need to shake it really well and it is so much easier., i am so greatful that i can give it this way afta fighting with the granuales for 3months. |
Posted By: arohanui
Date Posted: 19 July 2010 at 3:23pm
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yep def worth giving the liquid a go ------------- Mama to DS1 (5 years), DS2 (3 years) and... http://alterna-tickers.com" rel="nofollow">
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Posted By: Anonymous55
Date Posted: 20 July 2010 at 2:03pm
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I got the liquid last night and DH and I tried it out of solidarity with DD before she had her first dose this morning.
It tastes morbidly gross, might aswell eat a tablespoon of baking powder but it's much easier to get into her! The only thing is that the slimey, arrogant pharamcist 'Harvey' didn't have a clue about when the best time to administer is. Reckons it doesn't matter at all! In the end I decided to give her the ranitidine 15-30min before feed and the losec straight before the feed. |
Posted By: AandCsmum
Date Posted: 20 July 2010 at 7:08pm
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I would split it. Give the ranitidine in the morning & give the losec around 4-5pm ------------- Kel http://lilypie.com">
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: Kazper
Date Posted: 20 July 2010 at 7:49pm
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Oh FX it does the trick for you. I'm definitely going to question our chemist now as they give me a monthly dosage of losec, but it does seem to be working so may not need to worry.
I give Leah's in the morning first thing as I found her reflux was worse during the day time. ------------- http://www.fertilityfriend.com/home/545141" rel="nofollow"> |