Long term neocate use
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Category: Support
Forum Name: Reflux and Allergy Support
Forum Description: Struggling with a refluxy baby? Looking for tips to deal with allergies? Share your experiences here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=36817
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Topic: Long term neocate use
Posted By: blondy
Subject: Long term neocate use
Date Posted: 23 November 2010 at 12:44pm
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Looking for some advice! (and warning, it's a bit of a ramble!)
DD is 2 and a bit, and at the moment still having a (smallish) bottle/cup of neocate at bedtime, and we're finding that she is reducing how much she wants to drink rather rapidly! (A couple months ago, she would easily down 250mL+, and now we're lucky if she wants 100mL). I'm just wondering whether we go through the whole testing/specialist appointment/neocate script cycle again (as we're due for another appointment/script), or whether we look to 'wean' her from neocate..... but what to replace with? How old have other people kept their kiddies on the neocate wagon for? As background: We haven't had allergy blood tests done for a while, but the last couple tests we had showed negative for dairy (which had been moderate), and low for egg (which had been high).... however, every time we attempt to re-introduce 'pure' dairy into her diet (as in cheese, yoghurt etc - she seems to be fine with the small amount of milk solids in other foods), her allergy hallmarks (congested nose, eczema, waking hourly at night  ) step up again.
My personal theory is that maybe she now has a dairy intolerance rather than allergy (as she is definitely still reacting to it when she has a large enough amount of it, but obviously doesn't have the immune antibodies there in her system - so her 'allergy' really has reduced)..... She eats pretty well, and is good with things like meat, broccolli & other veges, and we do give her small amounts of soy milk to drink, soy yoghurt and occasionally soy ice cream  so she is getting a source of calcium and protein ... but I'm worried about upping the soy too much, seeing as she's still pretty young, and the research on soy as a major milk product in kiddies isn't that reassuring!
I guess I'm just wondering whether she'll be getting the full complement of nutrients she needs if we drop the (albeit small) amount of neocate she's having (and what if anything do we replace it with?) - but on the other hand, will there ever be a 'good' time to drop it? (I know if I ask the specialist about this, the answer will always be to keep her on it, as it keeps us going back for regular appointments so just looking for other people's experiences.-------------  
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Replies:
Posted By: AandCsmum
Date Posted: 23 November 2010 at 12:55pm
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I think that they would say to up the soy? When I have seen them re my boy, if he could have drunk fortified rice milk then I thinkt hat is what they would have made him drink rather than neocate.
How about trying one of those formulas from the supermarket which have had the dairy protein reduced? HA??? I think?? Also do you think that it might be a good idea to keep on with the specialist just incase you need a quick foot in the door with #2?? ------------- Kel http://lilypie.com"> 
A = 01.02.04 & C = 16.01.09 & G = 30.03.12 |
Posted By: blondy
Date Posted: 23 November 2010 at 1:01pm
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Thanks Kel - maybe it is worth us going back in for a visit! I tend to be a tiny bit skeptical of their motives sometimes
But you're right - it may be worth seeing if they have some suggestions about long-term solutions/ideas. (My head is firmly in the sand right now about #2 maybe having the same issues with allergies! This baby WILL have a completely 'normal' immune system, and WILL tolerate all kinds of foods  )-------------
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Posted By: cuppatea
Date Posted: 23 November 2010 at 1:08pm
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You could try her on cheese as that has no lactose in it or on a lactose free milk (this is what my 3.5 year old is on, he was on neocate till just after 2 and was allergic to dairy but now lactose intolerant).
Our paed told us when he was a little under 2 that he could wean off the neocate and we didn't need to replace it with anything, because he's a very good eater the doc said he would get everything he needs from other sources. We did however use a protein enriched ricemilk on his cereal right up until we switched to the lactose free milk a couple of months ago when we revisted and wanted to test to see if lactose is his issue now or the protein. And he was ok with cheese. My number 2 has no allergy issues at all so it's entirely possibly that yours won't either 
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Posted By: kabe
Date Posted: 23 November 2010 at 1:13pm
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My DD self-weaned off Neocate at about the same age. She still see's the specialist 3-6 monthly, as her allergies keep changing. She still has a dairy allergy, but it is getting better and she can tolerate small amounts. The specialist said to not use any substitutes (she also had a soy allergy) and she just gets normal milk on her cereal each day. If she has too much, like yoghurt and icecream, she'll get an upset tummy and we know to cut back.
I'm to go and see the specialist next mth, as he wants to put me on a special diet, to hopefully reduce the chances of #2 having food allergies. Might be something you want to look into. ------------- http://alterna-tickers.com"> 
http://lilypie.com"> 
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Posted By: blondy
Date Posted: 23 November 2010 at 1:19pm
Thanks two_boys  The issue is that cheese does set her off, more's the pity as she  it  She's ok with a tiny bit, but any more than that, and we're back to hourly waking at night
But that's a good suggestion about the protein enriched rice milk.... we'll definitely try that and see what she thinks of it. Yay about #2 - I hope that is us as well
I've bitten the bullet and made us an appointment in a couple weeks, so we'll see what they say. kabe - last time we were in, there were mentions about a restricted diet for me, but I know there are 2 opposing camps of thought about that issue, so I need to do some more research as to which camp I fall into No doubt that will come up in the appointment too though!
Thanks so much ladies for giving me some things to think and ask about when we go - we've been in such a routine with her food that I haven't really thought much about alternatives. (Thankfully, as unless we give her cheese, yoghurt etc. you wouldn't even know she has any food allergies - oh how far we've come! )-------------
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