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Reflux baby

Printed From: OHbaby!
Category: Support
Forum Name: Reflux and Allergy Support
Forum Description: Struggling with a refluxy baby? Looking for tips to deal with allergies? Share your experiences here.
URL: https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=37114
Printed Date: 23 November 2024 at 1:46pm
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Topic: Reflux baby
Posted By: snugglebug
Subject: Reflux baby
Date Posted: 14 December 2010 at 7:29pm
I have a 3 week old who has been diagnosed with reflux, luckily we have caught it early and got him onto losec. We have good days and bad days.

Was wondering if anyone else out there is going through this who I could chat to?

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">



Replies:
Posted By: AandCsmum
Date Posted: 15 December 2010 at 1:10pm
There are lots of us who've been through it. I've just recently, maybe just over a month ago taken my boy off Losec.

But happy to chat if you need help

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: nikitarose
Date Posted: 15 December 2010 at 1:36pm
Hugs its not a easy road,we are on our 3rd and worst refluxer she had surgery for it 3 weeks ago so anytime you need a chat or vent feel free.


Posted By: gmunster
Date Posted: 15 December 2010 at 10:01pm

LittleN we have a refluxer too and are on losec and gaviscon and still having apnoeas associated with feeding. happy to chat at any time hun.



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Posted By: KH25
Date Posted: 16 December 2010 at 1:01am
Us too    Have only just started with gaviscon (on Tuesday) and have randitidine (sp?) to try next, then losec. Very tempted to just go straight to losec though? I had ordered an easy baby after a very difficult pregnancy

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Kelly, mum to DD, 19Jun06 (26wks 1lb15oz) DS1, 24Oct10 (32wks 4lb11oz) and DS2, 31Dec11 (32wks, 4lb11)
http://lilypie.com">


Posted By: harry33
Date Posted: 16 December 2010 at 7:59am
We had 3 reflux kids, not easy but it does get better with time. Check out this site for products to help with reflux.

http://www.babytoolbox.co.nz/catalog/reflux - Baby Toolbox



Posted By: snugglebug
Date Posted: 16 December 2010 at 6:43pm
Thanks for all your replies. Im finding it really hard at the moment. Baby is on losec but we have had two horrid days where it's like he's not on it at all.

He is fighting the breast when feeding, arching his back, screaming, can't settle, can't be held in one position for too long, has to be rocked to sleep, jiggled all the time, my back is killing me.

I had to give him a bottle of formula for the first time today because his he is on a feeding frenzy (it makes him feel better I think) and I have literally run dry and can not get anymore milk that was hard for me to do.

Im worried Im getting postnatal depression and I'm really not coping with all of this... how do you guys manage? Any advice? I feel myself going downhill fast as the screaming and seeing him in pain just breaks my heart.

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: nikitarose
Date Posted: 17 December 2010 at 7:56am
Super hugs its not easy,have you got a front pack this was my saving grace and you have hands free to do what you need.How did i cope honestly its all a blur really a whole year i dont ever want to re live,it does get better with time trust me,if you feel like you are heading down the pnd path please go see the doc.have you got anyone that can give you a wee break,with my frist refluxer i was a smoker which was handy cos i got a wee break lol not with no 3 thou and i swear i couldve started back after the stress lol.


Posted By: snugglebug
Date Posted: 17 December 2010 at 12:15pm
Luckily my Mum lives around the corner and she comes every day and she's good at settling the baby which is a godsend, I couldn't do without her help. She will come when he's screaming to give me a break but it's the nights that can be really hard. He seems so much better today after his formula top ups that Im wondering if I have not been giving him enough through feeding either, though his weight gain has been good... or maybe he just likes the full tummy. Im not sure.

I have bought a sling from trademe waiting for it to arrive so here's hoping that helps too

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: AandCsmum
Date Posted: 17 December 2010 at 1:10pm
His Losec will be kicking in as well, it takes a few days to work & then also a week or so for the healing.

Do you have a rocker that you can pop him into so that he's inclined quiet steeply? Also when you put him in your pram, incline him up there as well.

Also don't bother with tummy time unless you do it on your tummy so he's inclined as well.

Raise up the bassinette/cot.

Also look at what you are eating in case something in your milk is bothering him.

You are very lucky that your Mum lives close

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: snugglebug
Date Posted: 17 December 2010 at 1:39pm
I dont have a rocker but I have a swing which he can sit up in but he hates it. Maybe I'll invest in a rocker.

He seems to actually quite like tummy time, is that weird for a reflux baby? He can happily lie on his back on the playmat as long as the reflux isn't bothering him, but if it is then it's a no go.

Are there foods that would be more likely to bother him? I know dairy can be an issue... would he have a rash or anything too if he did have an intolerance? Cutitng dairy seems a huge thing to do but I will if it might help

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: gmunster
Date Posted: 17 December 2010 at 2:07pm

Our rocker/swing is a godsend, will settle far better in there.

The basinet is inclined extremely high which helps heaps, have used a safety sleep to strap him in and stop him sliding down the bed.

 

Floor time in general is a no no here - usually starts of horrendous screaming again - unless a dummy is in his mouth!



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Posted By: snugglebug
Date Posted: 17 December 2010 at 3:21pm
Bub doesn't like taking the dummy it's so annoying because when he will take it it really helps him settle and get off to sleep but he always fights it, so annoying.

Im glad we can do the tummy time, I think in general his reflux is not severe, we've just had some really bad days.

I wish he would go in the swing! Would make my life a lot easier if I could put him somewhere for a bit when he's not sleeping. He doesn't seem to like to be in any one position for too long wherever he is, even when being held you have to shift or bounce him all the time

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: T_Rex
Date Posted: 18 December 2010 at 11:36am
If you are noticing ups and downs in his reflux, I'd be thinking it is triggered by things you are eating. Sorry! I know that's not a nice thing to contemplate, but I quickly realised that yes, I was giving up cereal, ice-cream, cheesecake etc, but I was trading it for SLEEP! Which was infinitely more desirable to me at the time

Fruit - strawberries? - were another big problem here, along with dairy.

I know it's hard hard going now, but it really isn't forever. You will survive this

I survived by using a wrap carrier (like a moby) for most of her day sleeps, elevating her cot, investing in a decent lazy boy, so when she was having a really bad night, one of us would sleep sitting up in it with her up on our chests.

Also, try to involve your DH. DD would only settle for me for ages, when it would have been awesome to be able to hand her off to DH for a bit. Invite your mum to stay the night if you are feeling really knackered.

Huge hugs to you. it's not a nice introduction to motherhood is it?

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http://lilypie.com"> http://lilypie.com">


Posted By: snugglebug
Date Posted: 18 December 2010 at 4:34pm
How should I go about figuring out if a food was bothering him? Just go back and think of all the things I ate on a bad day and work from there? Or should I just experiment and cut out dairy for 2 weeks, other things after that etc?

It saddens me to see how well he settles after a bottle of formula, breaks my heart that Im not giving him enough milk at the moment. Im sure some of his unsettledness has been from that.

You're right, it's not quite how I expected my first month with the baby to be!

ETA: yeah I can see a pattern developing where he only settles for me or Mum and I can't handle watching DH do something with him that won't work... I need to work on that as its doing my head in being the one to make it all better all the time



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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: AandCsmum
Date Posted: 18 December 2010 at 11:10pm
What you could do is just eat normally for now & write down everything you eat, the times as well & when you've feed DS, there might be a pattern that will occur.



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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: T_Rex
Date Posted: 19 December 2010 at 8:50pm
If the formula is a cows milk formula and he settles after that, I'd be looking at foods other than dairy.

He could be going through a growth spurt too, with the wanting to suck continuously. They are hard work, growth spurts! Basically he's trying to up your supply by sucking all day and all night (or it feels like that at least!)

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http://lilypie.com"> http://lilypie.com">


Posted By: MamaT
Date Posted: 20 December 2010 at 6:17pm
I found DS would suck constantly all day and night too, it was light it made him feel better. And later on I read somewhere that dummies were good for reflux babies as the saliva produced helped to neutralise stomach acid. Although like your little man mine wouldn't take a dummy, so I ended up getting a good carrier and wearing him while he continuously comfort sucked.

Good luck hun, I know it isn't easy, but it will get better and you can always come and let us all know when you're having a rough time, lots of us have been through it and come out the other side.

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Posted By: snugglebug
Date Posted: 03 January 2011 at 8:12pm
Hi ladies

How are you all going?

We have been going ok, ups and downs. He's on a big dose of losec now in capsule form which seems to help.

We had him on gaviscon after a feed as well and that was working great but it has made him incredibly constipated so I've had to take him off it as he was in too much pain. Anyone got any tips about that?

We have had some very trying days this week, Im never sure if it's reflux or just grumpy baby or what it is. Every time I think we are getting on top of things, there's another bad day, its really frustrating. Having a phase where he doesn't want to sleep more than an hour and he often just wakes straight after you put him down. So I don't get a lot done these days!

Just trying to manage each day

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: T_Rex
Date Posted: 03 January 2011 at 8:37pm
Originally posted by LittleN LittleN wrote:


Just trying to manage each day


That's all you can really do! I used to think of that silly blue fish (Dory?) in finding Nemo - just keep swimming, just keep swimming...

He's six weeks old already. You've made it that far. This won't last forever (it seems like it at the time, but it won't).

Reflux babies don't behave like the babies in the *manuals* and they don't respond in the way you might expect, but many of them are much better after only 3 months... many more by 6 months. You will get there.

My little girl still chucks several times a day, but she's happy and growing and I've just become very adept at mopping up puke It gets easier, I promise.

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http://lilypie.com"> http://lilypie.com">


Posted By: T_Rex
Date Posted: 03 January 2011 at 8:42pm
Just wanted to add, I hit rock bottom at about 5 months. It's hard to see everyone around you coping so well with their babies while yours cries all day and all night. I had to make peace with the idea that it wasn't my fault. I had a sick baby and that's why I couldn't get it *right*. So all those people telling you that things would be better if you did this that or the other don't have any idea what it's like to stand in your shoes so don't take it to heart.

Reflux babies are hard on any mother, but especially so on a first time mum cos it's so much easier to think you must be doing something wrong.

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http://lilypie.com"> http://lilypie.com">


Posted By: snugglebug
Date Posted: 04 January 2011 at 2:13pm
T_Rex that's pretty much how I feel, that everyone else in my due date forum seems to be coping really well, breastfeeding going great, sleeping well etc and I feel like the worst Mum ever with this difficult baby. I am at the point now where I don't want people to visit, and Im too scared to go to a coffee group etc in case he screams. I actually have the most placid, lovely gorgeous baby when he's not bothered by the reflux and I wish I could share that with people more. I definitely think Ive developed post natal depression so I'm going to see my GP about it when they come back this week. I am very hard on myself and want to get it right as you say so this is all a big struggle, that I can't make it all better for him.

Tried sleeping him on his side today after days of him going down to sleep and waking after 10 minutes, and he has managed to get 2 good sleeps!! So I might have found something to help! I don't like doing it as I know it's not as safe as back but I will do it if it helps!

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: gmunster
Date Posted: 05 January 2011 at 10:25pm

littleN - do you have one of those sleep wedges that stop him from falling onto his stomach? that way it safer for slide sleeping which is what we do also.

hugs hun



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Posted By: AandCsmum
Date Posted: 09 January 2011 at 1:34pm
Hugs little N. I side slept Cooper as well as having the cot raised. Was a sanity saver. You can buy sleep wedges for about $20. http://www.babycity.co.nz/baby-first-safer-sleeper.html#all-info - Linky This is what my one looked like. You have their back against the long side & each time I put him down to sleep I turned it around so he changed sides each sleep to save from flat head as well. You could do something similar with two towels as well.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: snugglebug
Date Posted: 14 January 2011 at 12:20pm
Hey ladies

Having some luck with the side sleeping but not always, he's forcing himself awake during the day at the moment then having a huge meltdown when he gets too overtired. Sigh.

Have had a much happier boy in general lately since giving the losec with pears, he's smiling and laughing and can sit quietly and happily for longer periods now.

But, the bad times seem to have gotten worse. He's gagging a lot more, vomiting more, screaming in pain and inconsolable when he wakes up, and massively constipated.

We have had to go to formula full time as he flat out refused the breast in the end. And my supply is pretty much gone.

I am going to a paediatrician on Monday and am going to ask about hypoallergenic formula as I wonder if he has a milk intolerance, reflux and that run in DH's family and I know the two are related. Has anyone had any joy on that?

Its just worrying that hes on 10mg of losec twice a day and thats not even really working... thats quite a big dose as I understand? We took him off gaviscon as we thought it was making him constipated but he's still constipated so considering using it again. Have colloxyl drops to help with the constipation but they don't even seem to work that well. Seem to be just trying one thing after another to combat the effects of something else, and never really getting anywhere at all.

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: newme
Date Posted: 14 January 2011 at 12:43pm
Oh LittleN, sorry to hear you are still having struggles!

Neocate formula can work quite well with reflux babies who have problems with cows milk. Def worth talking to the paed about. It does taste pretty bad though, so can take a bit of getting use to.   We tried it but DS1 just wouldn't drink it. Not sure what your DS's ethnicity is, but cows milk protein allergy is really common in asian and pacific island babies

Both my sons reflux improved dramatically with me cutting dairy out of my diet (as it passes through breastmilk)

Have you tried brown sugar and water to help with the constipation? Or else diluted fruit juice is also a good one.

Also talk to your paed about probiotics. I found them to be really good with helping reflux symptoms, and also combatting some of the sore tummy side effects of the reflux meds.

It sounds like you are trying everything, and I am sure you will find something that works soon.



Posted By: SeasideMama
Date Posted: 14 January 2011 at 7:49pm
Hey little N

I don't have a reflux baby but have had a few problems with feeding etc that have done my head in a bit and due to a number of factors have started to develop PND. I just wanted to say I know how you feel about reading the forums with all of the people doing really well and how it just makes you feel worse.

My DP made a good point though...he told me all the depressed ones who feel their not doing a good job probably are only reading and not posting, just like me! So please know your not alone in feeling anxious about going out and guilty about your baby.

The simple fact that you are doing all of this (on here asking/looking for help, going through all the reflux meds etc) is indicative of what an amazing mum you are. We all have our challenges and I'm sure the mums with babies sleeping through etc will have terrible teenagers ;P


Posted By: AandCsmum
Date Posted: 14 January 2011 at 11:23pm
My boy is on Neocate, there is a few tricks to get them to take it but they usually like you to trial Goat or Soy formula's first.

There is a hypo allergenic formula at the supermarket, I'm not sure what it's called now. AH? or something like that?

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: snugglebug
Date Posted: 15 January 2011 at 12:00pm
I read about the symptoms of milk intolerance and I could check of all but 2 of them so I think its a real possibility. His tummy has gotten really bad since being on formula, I wish we weren't but he made that choice for me. That sucks Neocate doesn't taste very nice, I hope if we do get it he will drink it.

Seasidemama thanks so much for your kind words, really gave me a boost. I have got PND, just been diagnosed and started meds so I really do feel your pain if you ever need to vent PM me. Feeding issues can be SO upsetting, I am still working through feelings of guilt and failure that it hasn't worked out for us.

Ive seen that formula at the supermarket and was going to buy it but it said don't use for children with diagnosed milk allergy so thought I'd wait and see what the paediatrician says first. I hope we do get some answers, Im sure he's got reflux but I think there's something else going on too.

Hila, how do you give babies probiotics? As he's on formula. I think that could be something helpful as his gut seems all over the place. Im using colloxyl drops for the constipation but they are not really working, could brown sugar and water be more effective maybe? Or is it the same sort of thing?



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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: newme
Date Posted: 15 January 2011 at 4:21pm
I am breasfeeding so I take the inner health plus probiotics myself and they pass through the breastmilk.
With DS1 we gave him Inner Health Kids directly from about 3 months, just mixed it with breastmilk and gave it to him but I am sure you could just add a teaspoon to your sons formula feed.

http://innerhealth.com.au/content/product/inner-health-for-kids - Here is some info. Not sure what amount to give to babies under 3 months. Maybe talk to someone at the chemist/health shop when you buy it, or the paed.


Posted By: Lillybetts
Date Posted: 18 January 2011 at 12:32pm
Ohh I'm so glad I found this page! My 5 week old daughter got diagnosed last night with silent reflux! She got put on gaviscon and within one feed we noticed the difference!

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http://alterna-tickers.com">


Posted By: asicsgal
Date Posted: 18 January 2011 at 6:03pm
Hi girls thought I would join in this thread as my midwife seems to think that Maddy has reflux. I've been doing a bit of reading (thanks google) and it seems this could be a possibility. Saw the doctor last thursday and he asked me what I thought. I didn't know as I'd not really had any dealings with it before and I'm a first time mum, so he didn't give us anything. My midwife is going to talk to peadiatrics and get a prescription for gaviscon. A lot of what you guys are saying is so true of life for us. Maddy is not an overly spilly baby but I have noticed that she does vomit up some of the milk as it has curdled by the looks. She also arches her back, is very unsettled- takes a huge effort at times to get her off to sleep. We have more bad days than good. At times she is screaming in pain (well that's what I think) and nothing will console her. Night times are worst, often she has had no sleep late afternoon and she finally settles around 10.30-11 at night. I breastfeed and often she will unlatch and cry which I put down to wind so try and burp her. She hates it when she gets hiccups (which shouldn't hurt) but she cries when she gets them (thank goodness for gripe water). Sometimes she will be asleep and then wake up screaming after 10 minutes. On top of this she is wearing a brace because she was breech her right hip is displaced and keeps falling out of the socket but that's another story. I can't take her anywhere because quite often she just cries all the time, even trying to put her in the stroller (I have got it upright and facing me) she won't tolerate for very long before she is crying. I feel like a total recluse as I feel that people will blame me for her being so unhappy and just makes for a lot of stress. Does any of this sound familiar???

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http://lilypie.com">


Posted By: newme
Date Posted: 18 January 2011 at 7:45pm
asicsgal - it all sounds completely familiar to me, and probably to heaps of other mums here!!

http://www.cryingoverspiltmilk.co.nz/MedicalTreatment/SilentReflux.htm - here is a really good link about a suggested treatment plan from the cryingoverspiltmilk.co.nz website which has fantastic information about reflux.

If your baby isn't sleeping well I would suggest investing in a Moby or similar. She might like the upright position, and even if she isn't self settling she is getting sleep which is so important (for you both)

Good luck - hope the gaviscon makes a difference!


Posted By: MHM2B
Date Posted: 24 January 2011 at 10:14pm
Hi all,

I have a reflux baby and was hoping for any advice you may have.

We started on gaviscon, went to ranitadine and now have gone to omerprazole today.

My wee boy is 16 weeks and will NOT sleep more than 45 mins and is really hard to get down. I still have to sway him holding him upright and he falls asleep easily enough but the minute I put him down he wakes up screaming! No matter what I try the minute I put him horizontal he wakes and thrashes and cries. At the moment it takes me about half an hour of up and down until he finally goes to sleep and then only for 45 mins. It is doing my head in and I need some suggestions.

Thanks in advance :-)


Posted By: AandCsmum
Date Posted: 24 January 2011 at 10:26pm
Have you got his cot/basinette raised?

Tried a dummy?

Also tried side sleeping (if you are comfortable with that)

I survived when my boy was young by using a rocker & I ended up rocking him just before he woke at that 45 min sleep cycle so he went back to sleep.

Omeprazol will take a few days to fully kick in so don't give up hope.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: charlotteandhuntersmummy
Date Posted: 25 January 2011 at 12:51pm
hiya, we have a refluxer aswell.
hes now 2 years old and still medicated but most of the time hes under control unless he eats some thing hes not allowed..... like the other day then we were up 6 times by 2 am!

good luck hopefully it settles down for you


Posted By: snugglebug
Date Posted: 26 January 2011 at 1:55pm
Asicsgal it sounds exactly like reflux to me, just what I have been through. Omeprazole (losec) has worked well for us, talk to your GP about getting it. Gaviscon works well combined with it but it can cause constipation.

Some helpful tricks I have tried are: vibrating rocker, side sleeping, elevating the head of the bassinette, sitting him up for half an hour after a feed, changing before the feed instead of after, dummy is a godsend its the only way I can settle him down for sleep/resettle after one sleep cycle, rocking chair to rock him to sleep. Definitely sounds like your girl needs some medication though you will be amazed how it does help in a few weeks

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: lostAmber
Date Posted: 26 January 2011 at 3:06pm
MHM2B- that is my daughter all over! You will find that some days are better than others but they are very few and far between. Unfortunately there is not alot we can do, so if at all possible, find help from family and friends. You need atleast a 15min break just for you per day, and even that isn't enough, but sometimes it's all we can manage.

I am so sick of people telling me that when she goes on losec I will have a different baby and wont know myself- she has been on losec for 2 months and it's still freaking hard going.

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http://lilypie.com"> http://lilypie.com">


Posted By: lostAmber
Date Posted: 26 January 2011 at 3:48pm
Other things we do to help Liv is put her nappies on a bit looser than we normally would, and try to keep her in dresses or bodysuits only- nothing around her middle like shorts or pants unless it can't be helped.

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http://lilypie.com"> http://lilypie.com">


Posted By: charlotteandhuntersmummy
Date Posted: 27 January 2011 at 8:40am
lost Amber- for some people on losac it can take MONTHS to get the dosage right! i know it did for hunter and we only started getting relief once his dosage was HUGE 40mg losac (couldnt be the dr reddys had to be real losac for some reason the dr reddys didnt work for us our chemist said so many people are having the same issues) also ranitidine twice a day and gaviscon.
we also found if i ate dairy while breast feeding it affected him and now being 2 he still cant eat dairy, apples, kumera, honey, cucumber too much tomato.......

a couple of tips that helped us were using a baby sling as he was attatched to me 24/7!
hunter was a tummy sleeper (but only did this when i was in the room as day snoozes only lasted 10mins at a time for us so the raised bassinet was in the lounge or where ever i was! car trips were impossible!!!!! but did have better success when he was out of the capsual and into a birth to toddler car seat!
dummy is a life saver and you notice how much it helps as DS is 2 and complains of a sore tummy now (he understands whats hurting him eg falls over and says sore knees or what ever hurts lol) anyway when he says sore tummy he NEEDS his dummy like screams for it where otherwise only has it for bed time! so sucking helps soothe it
we bought a automatic swing and once he was too big for bassinet he had day snoozes in this and because he was sitting up with towels keeping him up right and supporting his neck hes could sleep longer than in his cot! some bad nights i would sleep on the couch with him in the swing lol
also sleeping in bed on a towel (to catch the spils) would help for the times i was constantly feeding (breast milk) that way i could snooze till we woke me screaming!

anyway i hope you get on top of it quickly as it can be so hard!


Posted By: lostAmber
Date Posted: 27 January 2011 at 8:47am
Wow you had it rough cahm! Liv just went from 9pm to 6am without waking last night, this after her first evening losec dose- i'm so hopeful! She then went down for her morning sleep right after a feed and it's coming up 3hrs now, I just can't believe it. If only the spilling would stop now, but I know nothing will stop that.

Our automated swing is my heavensend, it means I can put Liv down and give my back a break. The sling and front pack don't work for us as I end up wearing the spill and then she face plants into it- not nice. She is also a dummy girl but will really only take it in bed and in the car, when she is distressed and back arching etc (typically wind related) she wont have a bar of it.

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Posted By: asicsgal
Date Posted: 28 January 2011 at 12:37pm
Thanks for the link Hila I have actually registered on the site now.   I was in Tauranga last week and went to see my old doctor who has prescribed Maddy Losec, he said to trial it for a week and if we didn't have a different baby to stop it. She has been on it for approx 5 days and perhaps I could be hopeful and say I have a different baby. Today is the first day that I have put her down and she went down without a fuss, she has been asleep for 3 1/2 hours which is a miracle. The real bad period in the evenings seems a lot less and she is not crying in pain. I also went and bought some pro-biotics yesterday so took my first dose today. Maddy won't take a dummy, some may say that's a good thing but she's a huge sucker of her hands and I feel it would be good to settle her. I just have a couple of questions re the losec. Doctor prescribed 10mg a day yet the leaflet say's for a 9 week old a lot less. I see many of you are giving it to your babies with pear?? Maddy is still quite tiny in size last weigh in at 7 weeks she was 7 pound 8 oz, I was paranoid to give it to her due to if she already has a sore tum then I might be adding to it. Poor girl hates it though, I put the granules in her mouth and wash it down with water, it's the only way I can get it in. Also the other question I had was I've read on the crying over spilt milk forum that you are not meant to feed your baby for half hour after giving it, is that right, the doctor nor the pharmacist never mentioned it. LOL she is awake now so apologies for the novel. Hope everyone is doing ok, a lot of hard work aye.

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Posted By: scribe
Date Posted: 28 January 2011 at 5:25pm
Yes you're not supposed to feed too soon after giving the Losec, our paed said min 15 mins. As to be most effective it needs to work on an empty stomach. He also said not to give it with anything except water (including pear) as anything you give it with will reduce its effectiveness, but a lot of people report success with giving it with pear. That dosage sounds right as my baby is the same age and has 10mg a day.


Posted By: snugglebug
Date Posted: 28 January 2011 at 5:53pm
Asicsgal, perservere with the dummy, my baby wouldn't take it for a long time but now he has come around and it is so helpful especially in getting him to sleep, it really changed things. I just kept giving it and trying to teach him to take it, and you can tap on it in their mouth to try keep it in.

My bub is on 10mg twice daily and he's fine so don't worry about the dose. I am reluctant about the pear too as it seems to be causing some tummy problems, but any other way I have tried it just comes straight back up again.

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: asicsgal
Date Posted: 29 January 2011 at 9:34am
LittleN thanks for the encouragment to persevere with the dummy.
LOL I spoke to soon, Maddy didn't end up having an afternoon nap, I put her down twice and she wouldn't go down for longer than 10 minutes. We had a bit of a crying period last night for 2 hours and I finally was able to get her down 9ish, she slept through though until 2.45. I'm pretty sure she had an upset tummy. Perhaps I gave her the dose to late. Of course doesn't help when she she's crying when DH gets home, he doesn't believe me when I say she'd been good for most of the day.
She was quite spilly this morning and took a while to go down but she finally has so I hope she has a good sleep.

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Posted By: newbie08
Date Posted: 21 February 2011 at 6:27am
Originally posted by LittleN LittleN wrote:

My bub is on 10mg twice daily

Does that mean 20mg altogether per day LittleN?

Thanks for starting this thread btw. I was looking for exactly this in the early days of Seb's reflux, but was about a month early. Wish I kept looking or started one myself.

Hope you guys are still out there.

Our boy is 4& a half months now and we're still struggling. He went on 10mg of omeprazole (Dr Reddy's) on Jan 5th. He was 7kg then, and now is just under 8kg. The 10mg made a huge improvement at first (given each morning), but them it felt like we were going backwards. He was waking every 2 hours through the night and I was crying 2-3 times a day. I've started giving him another dose 20+ mins before his night feed. BIG DIFFERENCE. The last 3 nights he has only woken once from 7pm - 7am!!

My sister was shocked though, cos 20mg is an adult dose. But I'm not worried because
1.) I keep hearing that Dr Reddy's is less effective than Losec.
2.) Why should my boy be in pain and struggling to get decent sleep just because of over-cautious doses? (I wish we'd not had to fart arund with Gaviscon for weeks and weeks first either).

Anyway, I'm taking my baby back to the Doc to talk dosages, and hoping he'll support the higher dose.

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Posted By: AandCsmum
Date Posted: 21 February 2011 at 11:46am
When I was first prescribed Dr Reddy's the Dr wrote the script for 20mg tab which I was to split & give 10 mg once a day & if I felt he needed it to up it to the full tab.

If you are getting results on that then I hope they say it's fine.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: AandCsmum
Date Posted: 21 February 2011 at 11:48am
Oh & My boy would have been 8kg when he first started it, he was a year old though.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: newbie08
Date Posted: 21 February 2011 at 5:50pm
Thanks A&CsMum. Good to know.


Posted By: lostAmber
Date Posted: 23 February 2011 at 2:37pm
newbie, some babies are on 40mg a day, so don't stress love, if it's working stick with it!

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Posted By: lostAmber
Date Posted: 25 February 2011 at 5:27pm
Olivia has just been changed to losec twice a day at 7mg each dose, and ranitidine 3x a day *sigh*

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Posted By: snugglebug
Date Posted: 26 February 2011 at 3:37pm
Sorry I only just came back to look at this thread, yeah he has a 10mg capsule in the morning and a 10mg capsule at night- so 20mg a day. And even then it doesn't always work. Lately we seem to be having a relapse, back to fussing on feeds, spilling a lot more, and not wanting to go back to sleep after 45 minutes and screaming a lot more. It really sucks as I thought we were on top of it. I hope it's just a flare up and will go back to being better again. Considering putting him back on gaviscon as well as he's spilling SO much.

Reflux SUCKS.

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: CJsays
Date Posted: 26 February 2011 at 9:26pm
wow glad I found this site, we think our girl has reflux, we thought it was colic cuz mainly 1 time at nite, but we get back arching and she so hard to settle, crying and must eb in pain, coming off the boob when feeding, ohh its so hard. then I found some sites that it really does seem like reflux. she doesn't do huge spills tho, just smallish ones - altho last nite she did 1 gigantic 1! so from what i read, some tips are to BF her in a more upright position, straight spine, burp on shoulder. we always have her upright at least 15 mins after feeds.
Doesn't help she is a premmie either, was born at 29 weeks and is nearly 3weeks "normal" age now.
Should we try doing the above things first or go to dr straight away? it is def hard work, and i so understand wot you say lilnic about how hard it is mentally on the parents and how you feel it could be PND, i have had the same questions for myself.
Hugs to all that have gone thru/are going thru this.

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Posted By: snugglebug
Date Posted: 28 February 2011 at 5:57pm
Cj, I would try all those things as they help manage reflux, however I would go to the doctor too as without medication it can be difficult to get on top of. Even if they just say to try gaviscon it's worth it to see. Noah came off the boob when feeding to the point where I had to give up breastfeeding :( I heard somewhere that prem babies are quite prone to it too so could be worth getting checked out.

I ended up with PND from struggling with reflux for a while as doctors didn't get the meds right for baby at first, so I definitely reccomend getting on to it as soon as you can for your happiness as well as your baby :)

Been to the doc today myself it seems bub is having a reflux flareup so thats not much fun. He might be early teething as well! So Ive got my hands full. He's spilling HEAPS so Im thinking of trying him on thickened formula, but hes on constipation formula at the moment as he was having trouble with that so Im worried he'll get constipated again. He's been screaming in his sleep, I hate that :(

Any advice? Does the thickened formula really make a big difference to the spilling? He doesn't get pain from spilling but he spills all the time. Is it more/less effective than gaviscon?

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: lostAmber
Date Posted: 02 March 2011 at 11:31am
Originally posted by lostAmber lostAmber wrote:

Olivia has just been changed to losec twice a day at 7mg each dose, and ranitidine 3x a day *sigh*

just saw pediatrician, back to 10mg morning and night and ranitidine twice a day, and double dose of lactulose

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http://lilypie.com"> http://lilypie.com">


Posted By: lostAmber
Date Posted: 02 March 2011 at 11:34am
LittleN, we could never go back to a regular formula, the difference with Liv is immense. As far as constipation goes, it is easy enough to deal with. You can either mix prune juice in with his formula, or add a tsp of brown sugar to it, and if that doesn't work then there is the option of lactulose (which is non stimlant) or coloxyl drops. The thickened formula will not stop the spilling though, just greatly reduces it in our experience.

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http://lilypie.com"> http://lilypie.com">


Posted By: CJsays
Date Posted: 04 March 2011 at 6:07pm
wow dr put E on gaviscon and it seems to have made a huge difference! only been 1 day... but wow! no spills! no back arching!!! even stuff all wind!!! woohhooo

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Posted By: karenb_chch
Date Posted: 12 April 2011 at 1:49pm
So glad I found this thread ... My 4 week old has suspected reflux, and it's nice to know I'm not alone (or crazy). She spills multiple times after each feed, often cries/screams unconsolably after each feed, won't sleep flat on her back (have bassinet raised, and side sleeping), likes sucking (fists, boobs, bottle etc) but hates a dummy, sometimes gags on the bottle (but not the boob), hiccups etc.

I took her to my GP a few days ago, and GP says it sounds like mild reflux, but she was reluctant to prescribe anything (of course E was being an absolute angel at the docs). I'm going back to see her in a couple of days, but I'm wondering if I can wait that long, as it seems to be getting worse ... Even some gaviscon to start with would be good ...

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Posted By: AandCsmum
Date Posted: 12 April 2011 at 2:25pm
Ring them up & say that you want gaviscon! If it is reflux the longer you delay the more damage the acid can be doing. If you want I can pop some gaviscon in the mail to you tonight? Just pm me.

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Kel
http://lilypie.com">

A = 01.02.04   &   C = 16.01.09   &   G = 30.03.12


Posted By: karenb_chch
Date Posted: 13 April 2011 at 11:36am
Thanks AandCsmum. I will nag my doc today. I have found that keeping her upright for at least 30 mins after a feed has been really helpful ...

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Posted By: snugglebug
Date Posted: 13 April 2011 at 1:05pm
Also you can buy gaviscon at the chemist without a prescription if you get really desperate.

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">


Posted By: Kazper
Date Posted: 13 April 2011 at 1:58pm
hugs to you ladies going through the toughest part right now. I found once the dr recognised the prob and got losec for dd things changed, but unfortunately in our case, DD is one that has gotten worse and not better. I think that is pretty rear as most grow out of it and show signs of improvement when they start solids.

I had to switch to formula. I was really sad about it, but I knew it was best for DD and also the stress, anxiety and sleep deprivation meant my milk kept drying up and after the fifth attempt at trying to build my milk supply, I couldn't do it anymore.

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Posted By: snugglebug
Date Posted: 24 April 2011 at 11:37am
Please vote for my reflux baby Noah in the baby of the day, after all he's been through he deserves it hehe :)

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Me 28, DH 29
DS born 20 Nov 2010 (4 years old)
#2 due October 7
http://lilypie.com" rel="nofollow">



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