Soy milk/Neocate/Neocate advanced - help!

Sorry long story..I been suspect my DS2 may have problem with soy for a long time and his paed specialist doesn't believe it and refusing to prescribe Neocate because he is allergic to milk but still breastfeeding.
However two weeks ago on my requested, I asked for allergy test on soy and show up negative. So I gave in and gave DS2 soy milk for breakfast cereal as well as start to introduce afternoon drink while still breastfeeding at night and morning. Since then he has been very poor sleeper eczema flare up very bad soon after had soy milk in the morning and afternoon and his poo is light mustard colour in paste-type and it is very stinky smell. some nights I end up need to give him phenergan to get him to stop scratching legs as well as get him to sleep!!. As I mentioned in previous post that environmental allergens have been rule out, I was baffled till today, the pin drop today that I realise it maybe soy milk causing the problem. I have contacted his specialist to get him onto neocate or similar for 2 weeks to see if there any change without soy but just in case i end up with another "no" from her......what I can do? what is other options I can do? what other milk I can give him? can I able to buy neocate to prove her that DS2 got problem with soy? etc
Thank you

Hi Soph,

I am due to get another script of Neocate within the next few weeks. I can give you a couple of tins if you want to try it. I will e-mail you when I get it.



Did you ever hear back from the hospital??

Edited by 2girlsandaboy

No sorry, a dietitian can't write the script, but depending on how the hospital works they may be able to advise the Paed that Neocate be prescribed, and it's the Doc who needs to apply to the MOH for a special authority number to allow you to buy Neocate at the subsidised price. And that can take time. They should be able to get it done in a day or 2 if the Doc marks it as 'urgent', but ours was and it still took weeks because someone lost the paperwork on their desk!!

I've asked a couple of chemists if we could buy any at the full price without a script (desperate situation where Ella suddenly self-weaned from breastmilk while we were on holiday, and I'd only bought enough Neocate to mix with her solids!), and they both said no, that you need a script to even order it in.

Im assuming that Michelle works in the same area as the dietician that we see. She organised the doc to do the script as well as the special authority.

It was bad mistake to give him soy milk for breaskfast this morning...I did end up taking him to dr because he was such in state, very distressed, won't stop scratching his legs and hands and eczema was in angry red state. I rang nurse for an advice and was told to bring him in. Dr saw his eczema and listen to me about soy and pead dr then ask lots of questions about history etc. He had prescribe stronger steriod cream as DS need it to bring it under control temporary and Dr have wrote letter to pead dr urgently to sort DS's hypoallergenic milk out asap...I feel so afterward that I broke down at dr!

That's great news. If its not neocate it might be pepti junior, however neocate make a toddler formula so it might be that one that they give you.

Andie wrote: No sorry, a dietitian can't write the script, but depending on how the hospital works they may be able to advise the Paed that Neocate be prescribed, and it's the Doc who needs to apply to the MOH for a special authority number to allow you to buy Neocate at the subsidised price. And that can take time. They should be able to get it done in a day or 2 if the Doc marks it as 'urgent', but ours was and it still took weeks because someone lost the paperwork on their desk!! I've asked a couple of chemists if we could buy any at the full price without a script (desperate situation where Ella suddenly self-weaned from breastmilk while we were on holiday, and I'd only bought enough Neocate to mix with her solids!), and they both said no, that you need a script to even order it in.

yeah and we couldn't even find a chemist that stocked it or would get it in either:(


they generally(but not always) try people on pepti junior first... ?hope it's getting sorted for you

Oh Soph - poor you - sounds like you are having a nightmare!!
I wouldnt think that dieticians have the authority to change milk but where did you see the pead dr?? Maybe another doctor working in the same place can help you get a new script tomorrow.
I have not ordered my Neocate yet but even if I order it tomorrow it wont be delivered till Monday - which does not help you over the weekend - Sorry

they can do it urgently Maya said over 24 hours if necessary ..sorry didnt read anywhere in your post that he had reaction to Pepti? why would they try him on it if he is? the script number is the same so the paed can just change it and let biolab know..

Yeah Soph hopefully that works for you. We were at the hospital today - they told me to try DS on Soy - Bad Idea!! We have a very sick, very red little boy. Back onto Neocate
Let me know how you get on