IVF with PGD

Goodluck for tomorrow Orca!!!!

Hi Guys,

I have my app on the 14th of sep wondering what will be involved? It was pretty expensive so does this cost cover some of he tests or just a chat?

How are you going Orca?

Hey peeps, we're up to seeing the FS on Monday, looking at cycle starting October

So relieved, as I heard that there's (virtually) no accommodation in AKL atm due to the world cup. Gives us a hope in hell of finding somewhere in November.

Anyone know what the two hotels near the auckland clinic are?

Oooooh thought we were cycle buddies then, but misread it, TK.
If initial appt, should just be basic bloods and scan and chat, maybe start feasibility test? I don't know, thats how it was for our first appt with FA

I have a prescription now for the contraceptive pill. there's some query about when the cycle starts, as we have a wedding to go to on the other island in first few days of December, and if we leave it till Day 1 in October, its likely to clash with egg retrieval in AKL (DP is doing the wedding photos).
We asked if we could count CD1 from September (I'm due on about the 20th) but that might be too early for the AKL clinic. And would be next cycle. So I might end up taking an extra week or so of the pill to help with the timing. Mid-November ER would be ideal - even if we don't have a result before the wedding (might be best) I can always do HPT if I need to know over there.
Hoping we get some viable embies, of course

yep morbid for some is reality for others. Its scary how matter of fact we get about it, isn't it. We did ttc (impatient me!)for 2 cycles and it was all based on "if I could miscarry, with or without retained products, quickly enough not to affect ivf"

I think even if you did get pg and (hopefully not!) miscarry, its good to have a plan b and plan c as back-up, these waits are so long and I think (depending on which chromosomes) many UBT babies stop developing by 8-9 weeks, although obviously this isn't a scientific and concrete statement from me. So even though wait might be 3 months min to start ivf, its worth definitely following. I would say anyway, although everyone is different

I think what I will end up doing is taking the pill for 4 weeks and proceeding with a 'day 1' at the earliest point. We were told this didn't affect anything, so hopefully I start the pill in 3 weeks and take it from there

I think they put back max of 2. Freeze the rest. I don't think there's much chance of getting viable frosties from a BT situation though (although the FS is optimistic). I much prefer the idea of FET to all the drugs and invasivesh*t.
The sperm get ICSIed into each egg, so I'm sending lucky lotto-winning vibes to the embryologist who is going to do this for us. Hope he/she picks viable sperm, would be gutting if they were all unbalanced chromosome sperm.

You will most likely need to go for genetic counselling also, its unlikely you will progress through ivf without it (hey thats what I was told - that the clinic need to have GC report to move on). The genetic counselling should go through all your options and the talk about the chromosomes from the genetics expert point of view. I think with smaller breaks more likely of carrying to term, and it also depends on which chromosomes involved, as they decrease in size - so Chromosome 1 is heaps bigger than chromsosome 23. We were told we had a 15% chance of carrying a baby with UBT if we make it out of 1st trimester without miscarrying. Some of the chromosomes are known to be more likely to be carried to term - 13/18/21. I think they are all trisomies though. Not really read much about them

Do you have your actual karyotype? I found Unique in the UK really helpful when I found out about our BT, emailed them directly.

Unique

also joined the Balanced Translocation yahoo group - I don't post much if at all, and seems to be a lot of americans (not being American-ist, just their whole insurance/health structure is a little different)

Glad to have someone to ride the wave with, I've only met/spoke to one other person in NZ dealing with BT/Ivf+PGD, and its such a cliff-hanger, so am more than happy to keep in touch.

How's Orca going on?

Hi ladies

It is good to have a plan and to get the ball rolling. I have explained it to friends that once we started the IVF cycle we felt like we were taking some control of a situation that for a lot of the time is out of your control. Sounds confusing I hope you get what I mean!!!

It seems like my body has responded well to everythign and I found out today that I am all set for EC this Friday!! I had a scan on Monday and have a total of 13 folicles. I am feeling pretty good about everything at the moment and will let you know how I go on Friday!

How things going, Orca? Hope all good

I'm downregulating on BCP right now - 3 daze in

Sorry to hear that Orca1, that sounds really disappointing. I'm dreading EC. What drugs did you have, do you know?

So far so good, but I'm only taking BCP. The nurse phoned through this morning with a plan - all dependent on blood tests and scans along the way, as you probably know. Learning to do injections next week - should be fun as I haven't been able to look at a needle since forever. DP will be doing it all, but I have a goal: to be able to inject myself - and EC around 2nd week of November

Do you not have to wait between cycles? I thought we were told 3 months - but not sure if thats just because of the funding

Oh, hard not to stress about EC. I hate needles, and I'm pretty sure one through my ladytube is going to be unpleasant. What do they give you, do you know? I know midazolam is one (a benzo, it got me to the dentist so it might get me in the stirrups without too much fuss).

Quite different drugs - am on bcp then start 2 weeks of Buserilin. Stim with Puregon and Ovidrel for trigger. Progesterone will be through utrogestan, which I believe are pessaries (invisible liners at the ready).

It must be the funding then. We were definitely told 3 months minimum (I'm already thinking through my second cycle - Feb/March) between, private they won't worry about spreading it out so much I reckon - although thats definitely one of the perks about going private - the control over your time! Did you have to pay privately to have your PGD probe built as well?