Cow’s milk protein allergy

Connor has milk protein intolerance and egg intolerance. He's a pepti junior kid.... anyway, his skin prick allergy test came up fine (no reaction) because he has a non-iGe reaction - that doesn't mean he can have diary or egg though. Connor sees Jan Sinclair too - she's great. Good luck with it all!

Hi foxxy_one, just posted a message in your other thread.

heh. Just read Maya's post about allergies a page back - it's funny (in a really disturbing, worrying way) how much misinformation there is about allergies and intolerances.
Connor has dairy and egg protein intolerances. This means, although he won't go into anaphylaxis, if he has egg he'll have violent diarrhea and if he has diary he'll get colitis, days of screaming, writhing pain, diarrhea and occasionally blood in his poo.

When he had his first reaction to milk protein (he was four days old) he was taken to Starship (he had gone pale, floppy and unresponsive) and after hours of waiting around and seeing a junior doctor, we were told it was probably a reaction to the formula and not to give it to him any more and to exclusively breast feed.

At six months we had an appointment with an immunologist at Starship and were told it probably wasn't anything to do with the milk and we could start him on formula and milk in his solid foods. Two weeks later we were back at Starship emergency after he pooed blood (and lots of it - we took him to our GP first who absolutely freaked). Yep, back on the idea that he could have an intolerance and by that time my breast milk had dried up, so no going back onto that. We were given pepti junior, but only one tin and told to wait for an emergency immunology appointment.

Six months of formula and no dairy or egg later, we get another appointment with the immunologist who asked that we trial egg and dairy to see if there is a reaction, because lots of kiddies grow out of it. Sure enough, another trip to the emergency department because he has been screaming inconsolably for two days and we needed to check that he hadn't twisted or ruptured anything and the medical professional confirms that he might still have an intolerance. The doctor that we saw then, was absolutely lovely, however hideously uninformed on allergies and intolerances. He suggested that we start introducing milk to Connor in watered down amounts over a month so he could get used to it. Our immunologist, when we finally saw her, freaked out, that someone could give us such bad advice.

It was only at 14 months that we got access to a dietitian to give us support and ideas for food options for Connor. At this stage, he was on the 20th weight percentile for his age.

Allergies and intolerances have become so common, but there is still so little support and expertise available to assist parents. You often feel like you are navigating blindfolded through a minefield with your child's health and wellbeing all reliant on you not tripping or knocking something you shouldn't.

Good luck!!!!

Elemental formulas like Pepti and Neocate leave a filmy residue on the bottles, not sure why, but the best way to clean them is to soak them in baking soda and warm water. I used to do ours once a week.

so the rest of the time you just clean them in hot soapy water Maya?

yeah thats what we do atm.. cool..thanks:)